Not doing great!

[webslave]

Your lifestyle could be better. Have you thought of it that way?

[Impressivesafe]

No - I guess just trying to find whether you can beat it for good like a cut or if its able to come back

[webslave]

Yes, it can come back, it depends on the actions you take.

[Impressivesafe]

Ok

I'll listen to the PF PT then I guess and treat it as CPPS rather than a direct injury

[Impressivesafe]

Just an update that my pains still pretty bad 6 months on. It’s all on the left side of the penis.

I am thinking I’ll go back to my doctor to rule out any infections and perhaps order am MRI.

[Impressivesafe]

Spoke to GP today who has referred me back to urologist

[Impressivesafe]

Can there be a way I can diagnose if what I have is CPPS. I and drs finding it hard to pin what I likely have.

Really need a hand

[webslave]

Your pain came on directly after an injury.

You were told that nerve injuries can take a long time to heal, many months.

You have not given the nerves time to heal, while leaving the penis alone.

The worst possibility would be a regional pain syndrome provoked by the injury, perhaps a mild form of complex regional pain syndrome (CRPS) or something similar.

In your shoes, I would

- stop touching the penis and using it for sex for at least a month.
- stop thinking about it, because concentrating on it causes the brain to focus pain there
- stop seeing uros and doctors about it
- NO KEGELS
- Take quercetin and PEA

Come back in a month and tell us if there is any improvement.

[Impressivesafe]

Ok ill give it a shot - pain came on next day (similar to a prev bout of PF issue that i got over)

Thanks

[Impressivesafe]

Just update - I had my PF physio appt yoday and kept it as cancelling would mean a fee. My physio says my localised pain is hypersensitivity connection to the brain and that I should continue soft kegal exercise concentrating on the release.

I spoke to her about how I should maybe be doing reverse kegels (pushing my poo and wee out) and she said no, that does not do anything. A slow and soft kegal with a release and relax rather than a push is needed.

I also asked about hands on trigger point therapy by then and she said they don't do this anymore as it is only a short term relief and does not fix the ‘driver' of the vehicle so I'm all theory no hands on.

PF therapist is 100% certain its PF related.

I've ordered the supplements webslave but I'm torn on my diagnosis and I've always been told to follow doctors orders. PT wants an appoint every 2 weeks ($140 AUD a trip) is there a way I can work with you somehow to go thru my symptoms abs issues and come to a reasonable suspicion on if its PF related in your experience

[Impressivesafe]

Just wanted to add i have post ejac discomfort too (next day that lasts ages) I've read on here that this is a hallmark CPPS symptom . Masterbation is off putting and would hurt.

Does this help diagnose?

[webslave]

Post ejac pain does suggest UCPPS, but would also occur if there is a nerve injury. If you are going to trust a physiotherapist above my advice, go ahead. Come back in a few months and tell us if the kegels have helped.

[Impressivesafe]

I have done my own research and have spoken to my PT and had a somewhat honest conversation. I've decided to not continue with her treatment and trying your advice and booked into another PT for review.

I am taking your and everyone’s advice seriously and appreciate this place. I have the supplements on order you have recommended plus BCP 157 in tablet form

Ill check back in

[Impressivesafe]

Afternoon I now have the supplements recommended in this thread. I had a followup appointment with my GP today that was booked some time ago and has recommended I try amitriptyline for the pain that I have seen recommended around here. Would you suggest I also take this during my time off with the supplements recommended or could that possibly confuse a diagnosis.

Appreciate your help

[webslave]

There is no harm in taking the amitriptyline concurrently. However, cut the pills down and titrate up from the smallest piece, say ¼ of a tablet for a week, then ½, etc.