"Nerve damage"

[GP2]

I have read here that most of us will never get our nerves 100% better again down there in our pelvis. But it is also clear that nerves do heal over time but maybe not 100%

I think it is safe to say that even if we do recover really well our pelvic nerves may always be a little vulnerable. Not that it really matters.

Is that people's general understanding?

[GP2]

And also some quarters argue that long term pain (many years) gets "wired" into the brain and nervous system. Almost like a "pain link" is established that keeps perpetuating itself.

Is the SP one way of breaking this loop or to a certain extent due to muscle, cell, nerve meory is our pain never really "curable"??

I'm not saying this to be negative. All this doesnt really matter if we can resolve our pain through muscle treatment etc. I personally believe that you can "un wire" the brain again. I think David wise says that your pelvis has to get used to being pain free again.

I know some of you think there may be a link with the nervous system through the spine? I am sure there is research in this department.

[Rufus]

I think the sympathetic nerve blocks that two people I know who suffer from chronic prostatitis / chronic pelvic pain syndrome have had the cycle of pain broken and have given the mind/pelvis a chance to unwire itself from the perpetual pain cycle.

As much as I hate to be poked by a needle in such a sensitive and delicate area, I'm willing to explore this option.

These guys have just started this type of block so it's way to early to tell how long it will last but I'll let you know what develops as time goes by.

PM me if you want their contact info as they are more than welcome to share their stories.

[Rufus]

I also want to add that in recent sessions with PT, I have noticed some amazing improvements. I'm not 100% but I'm pretty close.

For those of you that have read some of my post, the majority of them have been pretty depressive but given my state of perpetual pain in the most sensitive part of a mans anatomy, I'm hoping that all of you will understand.

Is this a success story?
Well I measure success but reverting to a state of pre chronic prostatitis / chronic pelvic pain syndrome but I will attest to PT helping me tremendously.


There is most certainly a mind/body link in the healing process and a person with this condition must ride out the worst of times and give the body a chance to heal which comes with relaxation therapy.

The difference between paradoxial relaxation and nerve blocks (in my opinion) is that the nerve blocks may "cut to the chase" and reset the nerves which may be hard wired to a perpetual pain state.

I'm no doc, this is just my personal view on things.

Do the blocks work for everyone?

I don't know.

Do doctors perform the right blocks in the right area?

Not all the time.

Some lack the experience, some don't care and most doctors seem to think we're all a couple of cans short of a six pack so whatever it is that makes you better, keep it up and keep sharing.

The two guys I know (it was first one now two) have found relief from a sympathtic nerve block of the ganglion nerve.
The doctor who preformed the block for one of my buddies can be found at this site: http://www.painmngt.com/clinics.html

Hope this is helpful.

[kevin]

Autonomic and peripheral nerves, such as those that connect to the bladder, genitals, and pelvic floor muscles, recover and regenerate from injury remarkably well. Also, rewiring of connections in the brain happens all the time. So, I don't think irreversible nerve damage should be a big concern on anyone's mind.

As for the question about spinal nerves, a lot of the recent research on neuromodulation shows how treatment of pelvic floor spasticity can fix mis-wiring in the spinal cord. In my mind, this probably had a role in how the LUTS of many people (such as Scoobysnacks and carld) were reduced after starting physical therapy.

[GP2]

Thanks Kevin

Rufus - pleased for you buddy Be patient though - there may be some setbacks!

[Rufus]

Yeah, I just learned that they started to feel pain again...

Their docs say that over time the nerves could be deadened but I don't know what to think.

Just wanted to report it's not the silver bullet I thought it would be.

[Clay]

My PT says that TENS devices can also be very helpful in breaking the pain cycle with nerves, and that's a lot easier to consider than a needle!

[damien6]

Hello,

I saw a program on TV about this issue. It focused mainly on long term back pain. It seems the research is still pretty early on but it is happening.

Damien

PS On the show they discussed a guy who had chronic pain in a phantom limb, now THAT would be a bitch!

[alprost]

A critical point here is that, in the vast majority of cases, I don't think there is any nerve damage in the first place.

What we have are nerves and nerve pathways which are hypersensitive due to the presence of trigger points and an over-aroused brain/sympathetic nervous system. To me the basics are - Rule out Urology, identify and treat trigger points and calm the mind and nervous system.

[webslave]

In my experience nerves, once they have become as disturbed as in CP/CPPS, cannot ever be entirely normal again. I sit here now with no symptoms whatsoever, but I know that I could get sick again quite quickly, probably, if I started doing all the things that caused the condition in the first place. And this time I believe it wouldn't take as long to re-create the symptoms.

What evidence do I have? Only this: I also have pain syndromes in my hands and arms from 15+ years of intense mousing and computer work. I eventually got rid of the pain by changing my work habits, using my hands less, getting rid of the mouse, etc. BUT if I start using the mouse and fall into old habits, the pain rapidly returns. So while I am "healed" and symptom-free, I can become symptomatic very quickly again. My deduction is that neurological damage cannot entirely heal, and the pathways for pain and dysfunction are there forever, easily provoked.

Nerves can be nasty. They "scar" a little when abused, just like the skin scars when cut. That is my experience.

Interesting page:
http://en.wikipedia.org/wiki/Neuropathy

[carld]

Autonomic and peripheral nerves, such as those that connect to the bladder, genitals, and pelvic floor muscles, recover and regenerate from injury remarkably well. Also, rewiring of connections in the brain happens all the time. So, I don't think irreversible nerve damage should be a big concern on anyone's mind.

As for the question about spinal nerves, a lot of the recent research on neuromodulation shows how treatment of pelvic floor spasticity can fix mis-wiring in the spinal cord. In my mind, this probably had a role in how the LUTS of many people (such as Scoobysnacks and carld) were reduced after starting physical therapy.

That's why I'm a supporter of Elavil and supplements like any accredited quercetin product because they can quiet the nerves over time and allow them to at some level, heal...

I also agree with webslave in that once you sprian your ankle, you can fully recover, but it becomes easyer to sprain it again after you recover. Same thing with nerves that have been irritated by tension and anxiety and tight muscles.