Need help
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Re: Need help
Oxybutynin exerts a direct antispasmodic effect on the smooth muscle of the bladder. Bladder spasm is not a typical problem seen in CPPS but is part of IC:
https://pubmed.ncbi.nlm.nih.gov/10799190
You may get an even better outcome with intravesical instillations.
https://pubmed.ncbi.nlm.nih.gov/10799190
You may get an even better outcome with intravesical instillations.
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Kylemccormick61583
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Re: Need help
Thanks for the info....so I'm thinking it's a combination of things.... I masturbated last night...and had crazy spasms in my perineum...
?
?
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Kylemccormick61583
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Re: Need help
False alarm...meds helped for a day
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Kylemccormick61583
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Re: Need help
So I saw a myofascial massage therapist.... Was able to recreate the lower abdominal pain I always seem to have by massaging other areas of my abs..... I still can't unclench my butt...... I also saw a hypnotist just to see what that would be like..... After deep relaxation with her I immediately peed freely..... This has to be a muscle problem..... Right?
Like my diabetes team... Saw them today.... They still not convinced this has anything to do with. And I mean do the muscles ever stop clenching if I stretch everyday and try to relax?
Like my diabetes team... Saw them today.... They still not convinced this has anything to do with. And I mean do the muscles ever stop clenching if I stretch everyday and try to relax?
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Re: Need help
Watch the videos and listen to the podcasts I added yesterday:
viewtopic.php?f=36&t=8991
viewtopic.php?f=36&t=8990
viewtopic.php?f=36&t=8991
viewtopic.php?f=36&t=8990
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Kylemccormick61583
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Re: Need help
Interesting stuff....feels like exactly what I have
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
Re: Need help
Hey Kyle, her recreating the pain while doing the trigger point is excellent news ;) that should be a light bulb for u in terms of pin pointing your symptoms. Keep it up
Age:33 | Onset Age: 32| Symptoms: burning sensation after urinating, frequent urge to go to bathroom, right testicle pain, constant left abdomen pain, lower back pain, ejaculation pain afterwards, unable to eat stuff acidic: causes burning in penis and frequent urination, unable to sit for too long | Helped By: Prosta -Q, stretching excercise for pelvic floor, internal massage with Therawand, breathing & relaxation | Worsened By: symptoms flare up when ejaculation occurs and sitting for too long | Other comments:
Re: Need help
Maybe give it a break? Let yourself heal up for awhile!Kylemccormick61583 wrote: Mon Oct 22, 2018 3:00 am I masturbated last night...and had crazy spasms in my perineum...
Age: 52 | Onset Age:49 (but I may have had warning signs 25 yrs earlier)| Symptoms: Pretty much all the usual suspects. Frequency, urgency, inability to always empty, burning and numbing uretheral, penile & perineum pain. Frequent urination at night.| Helped By: Internal PT. Myrbetriq helps but is by no means great. TENS to help sleep, and hand held massages of the lower back, hips and buttocks. Standing and physical labor help. Stretches and hot baths. Occasionally use gel iced pad on the perineum. Worsened By: Sitting (being sedentary), driving, sex, bowel movements, tight clothing and underwear. | Other comments: Currently trying L-Theanine
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Kylemccormick61583
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Re: Need help
Yea I'm in no mood too 
Just stretching praying and trying to find a way to not catastrophically think about all this.
Those podcasts are good stuff....I wish there was a pm option. Hows it going chgoguy?
Just stretching praying and trying to find a way to not catastrophically think about all this.
Those podcasts are good stuff....I wish there was a pm option. Hows it going chgoguy?
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Kylemccormick61583
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Re: Need help
Oh and amonges.... the massage I got was not with my physical trainer. It was with a massage therapist. He works independently close to me but has an office on the other side of my state line that accepts insurance. I'm going to try to get my doc to write a script for PT and see if I can bill insurance for his services. I'm trying a trigger point massage in the morning. But 70 dollar massages rack up a huge bill so can't do it too often... especially seeing if it works or helps at all.
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Kylemccormick61583
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Re: Need help
Does this sound like a good pelvic floor therapy people?Our therapists have gained valuable training and experience through continuing education seminars by Janet Hulme, a leading physical therapist specializing in pelvic floor therapy, and John F. Barnes, the leading authority on myofascial release (MFR). We’re here to help you find a solution that works for you.
Like I'm pretty sure this is my issue now. Like I noticed that when I'm clenching my butt it's pulling muscles in the front. And it's like I have to do everything to relax my sphincter to pee standing up. Sitting....I have zero problems?
What ya think webs?
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
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Re: Need help
I think it sounds good, and it's the right direction for you.
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Kylemccormick61583
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Re: Need help
Thank you for not putting me on read only btw... I like how they say they incorporate myofascial therapy....
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting
Re: Need help
It sounds great! Go for it :)
Age: 25| Onset Age: 24 (perhaps 22)| Symptoms: Sore & Sensitive Testicles, Sore abs, Pressure in Rectum, Coccyx Pain| Helped By: Deep and wide squated position against the wall | Worsened By: Sitting, Pants, Walking| Other comments:
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Kylemccormick61583
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Re: Need help
Well kinda bummed.... that PT place said her myofascial stuff was all internal.... I really need someone to work on my abs and figure out how to break the cycle of clenching my butt. I feel like its rearing up whatever muscle allows you to relax and pee standing.
Any thoughts on this.
Bought any accredited quercetin product and using NAC (N Acetyl Cysteine) and stretching.... have been able to pee "better". Currently also using magnesium and multivitamin.
Appears to be helping. This is a slow road. I just wish I wasn't so tired from the benzos. Sadly if I don't take any I have like a full blown panic attack over this.
I hope the zoloft starts working better to help with this.
I'm finding it hard to zone this out and meditate.
:/
Any encouraging words of advice?
Any thoughts on this.
Bought any accredited quercetin product and using NAC (N Acetyl Cysteine) and stretching.... have been able to pee "better". Currently also using magnesium and multivitamin.
Appears to be helping. This is a slow road. I just wish I wasn't so tired from the benzos. Sadly if I don't take any I have like a full blown panic attack over this.
I hope the zoloft starts working better to help with this.
I'm finding it hard to zone this out and meditate.
:/
Any encouraging words of advice?
Age:35 | Onset Age: 35 | Symptoms: felt like a UTI with no burning at first. Constant need to pee. Weak stream / now vary degrees of stream quality/ pain in rectal area extreme tightness in abdomen and tight pelvic floor diagnosed by pt | Helped By: the stretches seem to help/ realizing its not gonna kill me..valiums good Theracane is working what the physical trainer does | Worsened By: ejaculating/ being stressed....tense stomach muscles after sitting long time | Other comments: ..physical trainer is interesting

