My story so far:
It all came on over the course of a few days. Felt like a urinary tract infection but no burning. Just got more difficult to go. Got to the point where I felt like I couldn't go without a ton of effort and it hurt "inside" like right below the navel and above my junk. Also it felt like I was using all my ab muscles to urinate. What little was coming out was not a lot. I had not had any problems urinating up until this point. Went to a walk in clinic and the doc said it sounded like prostatitis. But since I had a new woman in my life who lets say was not the most honest. He suspected it could be a STD. Asked if I wanted a test and since I had been with her about a month I didn't think anything of it and said no because "he would treat me the same" anyways. Got a shot of rocheprin and some doxy for ten days. Started feeling much better things opened up I thought I was going to be ok.
I was not
I ended up going to the ER 5 days later because all the symptoms returned. Urgency, feeling of inability to go pressure inside but no burning. Was given 2 weeks worth of levaquin and a referral to a urologist. Made it to the urologist. Levaquin had made me feel about 50 percent better but not near as good as the first few days of the initial drugs. Fact... Girl decided she thought "I" might give her something and broke up with me. Urologist spent 5 minutes with me and said its prostatitis stop levaquin and take tri? Something a low dose one a day pill. I actually felt somewhat better but a week and a half later all symptoms returned. I called office they didn't return my phone call for 5 hours at which point I was already at the urgent care again. They thought bactrim would be appropriate and the urologists nurse agreed. At this point it had been a month.
A little backstory... I had something similar happen 7 years ago and went through the mill of drugs doctors etc. And finally it seems augmentin cured me on a 30 day dose. This was very much in the back of my mind.
The bactrim did not seem to help maybe improving me 40%. Still having the feeling of using muscles I have never have used before to pee still having urgency. Made 2 different urologist appoints for 2nd opinions at this point. Folks. I'm a type 1 diabetic and weird stuff happens to me. I take care of myself. However leading up to this I had been drinking a lot and basically eating whatever yet keeping my sugars in check. My last a1c was a 6. 9.
As the bactrim didn't work I called this urologist I had been seeing because I couldn't get into the new urologists for 2 to 3 weeks, they got me in to see him and he prescribed me keflex once a day 250 mg. This seemed to initially open me up more but didn't do the job completely. I called him after a week of still suffering and he recommended we do a scope. I refused at this point. Having come on so suddenly and having had this happen once in my life before I felt it was a bacterial thing. So I went to my primary doctor for advice on this. He threw 2 weeks of Cipro 250mg 2xs a day at me and said go to the urologist affiliated with his group. The Cipro got me about 50% better but I started having side effects too. But made it to the 2nd urologist who wasn't much help. He talked to me for about 5 mins longer. Said get off the drugs and come back in a month to see what we are dealing with. I agreed. He also had me do an STD test which came back clear. He did however say there was a small amount of blood in my urine. After about 5 days off the drugs and symptoms returning I called the 2nd urologist and could not get a sooner appointment. My 3rd urologist which is at a major teaching medical hospital was still a few weeks away so I bugged out and went back to the clinic where this all started at and luckily the same doctor was working that day and I told him all this. He suggested that maybe if I had had an STD and since the rocheprin and other drug seemed to help maybe I got reinfected and that's why I was till having issues. Got the shot again and this time got a Z-pack and folks I was a new man for about 5 days. Almost felt normal. Almost was better could basically pee normal not straining the works. But it started coming back again. At this point I didn't know what to do. Called my doctor he said he can't help. So I faked a sinus infection and cause I have allergies and got augmentin for ten days. This seemed to be maintaining the level I was at. Not terrible but not improving. At this point the major hospital called and somehow I was able to see them 4 days into the augmentin. I was still peeing pretty good. When I got to my appointment he checked my prostate said it felt fine and since I completely emptied my bladder said finish the augmentin and if its not 100 % see him in 3 weeks.
Well I finished the augmentin and was feeling maybe 50% still. Not as good as when I got the shot and Z-pack. My balls started hurting as well at this point which was new and I freaked out and went to the hospital again. Told an ER doc all this and he prescribed me 5 days worth of keflex 2 xs a day until I was seeing the 1st urologist again. I had called them during all this and agreed to the scope. Made it to that appointment still straining to pee but not as bad as initially and well everything looked normal to him. He did give me more Flomax which I had to stop taking due to weird erections? My follow up with the 2nd urologist is in 2 days and I dk what to do.
Current symptoms are:
- Still struggling to pee standing. If I relax I can get a weak stream (the stream was basically normal on the STD cocktail). I can pee easily sitting down but not with force
- I am now constipated as all heck and using miralax and sometimes a motility laxative to get things going if I don't go for a day or so. I was very regular before this
- My anxiety and stress are through the roof
- Not sleeping well due to this
Completely lost. I know this is a lot and long winded... I typed this all up very fast because I am desperate and want this resolved.
Its been 3 months going on 4 and I peed very regularly if not too much prior to all this due to some ying yanging blood sugars.
Things do not feel normal
I have bought all the supplements suggested on this site and am taking a lot of anti anxiety meds.... Small dose Xanax during the day and clonazapam at night to get what little sleep I can but they don't seem to be working like they used too. No real pain
I don't know what to do
Input please
I don't understand how I bnasically felt better after a shot and then all these other antibiotics don't work.
Thank you for reading.
