HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓ Contact me at support at ucpps.men
Haven't posted in a while, so here's an update. As always, your advice is appreciated.
Still have many symptoms - but they fluctuate. I still have urinary issues; I get burning on urination/discomfort after urination 5/10 times. Recently I've had pain in my left hip. Testicular pain has died down thankfully. Muscular pain in the rectum has got worse, as has the lower back pain
I have been taking St Johns wort and this has lifted my mood and a supplement called Prostabrit.
Still doing occasional TP therapy and regular stretching
I am thinking about going on amitriptyline. I tried this before at 10mg and although it helped, it turned me into a zombie. Can you get them in 5mgs?
Still despite all this things aren't too bad
Take care
Age: 39 | Onset Age: 21 | Symptoms: burning on urination/back pain/nerve pain in thighs/anxiety | Helped By: relaxation/internal/external trigger point therapy activity/swimming/exerise | Worsened By: sexual activity/stress/anxiety/ocassionally alcohol/gluten
HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓ Contact me at support at ucpps.men
Most of my discomfort now comes from pre/post urination. I can feel discomfort just before I urinate and am left with a feeling with urethra discomfort. This usually calms down after 5 mins or so, but it leaves a nerve pain/cold sensation on my upper thighs and penis tip. Any ideas?
Much appreciated
Age: 39 | Onset Age: 21 | Symptoms: burning on urination/back pain/nerve pain in thighs/anxiety | Helped By: relaxation/internal/external trigger point therapy activity/swimming/exerise | Worsened By: sexual activity/stress/anxiety/ocassionally alcohol/gluten
A few ideas:
- Have you tried tracking your water intake? It may just be a case of dehydration.
- Are you on any drugs? Have you tried or considered trying an alpha blocker or Urelle?
- Have you tried tracking your diet to see if any foods trigger discomfort on urination?
Age: 26 | Onset Age: 23 | Symptoms: Neuropathic-like pain and hyperalgesia (lateral/anterior thighs mostly, but distributed throughout body); Pain (penis shaft, right side, when erect for long or excess masturbation) | Previous Symptoms: Pain (testicles; penis underside, mostly near base and running up urethra, sharp/burning; perennial region, dull; ejaculatory; post-ejaculatory); Urinary (moderate incomplete voiding; moderate frequency and pain on bladder filling); Sensations (cold in head of penis) | Helped By: Stretching (especially hip rotators and flexors); Yoga (especially lunges, warrior 2, and pigeon) Trigger point release (abdominals; iliopsoas; gluteus muscles and piriformis; bulbospongiosus & ischiocavernosus; thigh adductors); Meditation (mindfulness); Walking & Aerobic Exercise | Worsened By: Stress, anxiety, too much alcohol, lack of sleep, sitting at length | Current prescriptions: nortriptyline (10 mg, 1x at night; for CNS sensitization and IBS) Previous prescriptions: hydroxyzine (10 mg, 1x at night; for urinary symptoms/mast cell stabilization; useful), clonazepam (0.25-0.5 mg, 1x at night; for anxiety/CNS sensitization; useful for short time)
Caedar wrote:A few ideas:
- Have you tried tracking your water intake? It may just be a case of dehydration.
- Are you on any drugs? Have you tried or considered trying an alpha blocker or Urelle?
- Have you tried tracking your diet to see if any foods trigger discomfort on urination?
Thanks for the reply
I began drinking about 8 glasses of water a day from yesterday to see if it helps out. Only thing is it obviously makes me pee more, which means more discomfort.
I am on no drugs, just some supplements( st johns wort, starflower and magnesium oxide). I am seriously thinking about medication though. Can anyone tell me the names of medication that helped them with these urinary issues?
Diet wise, i have tried lots of combinations - can't put my finger on anything that particularily flares me.
Funny thing is as i sit typing, i feel pain free, until toilet time
Age: 39 | Onset Age: 21 | Symptoms: burning on urination/back pain/nerve pain in thighs/anxiety | Helped By: relaxation/internal/external trigger point therapy activity/swimming/exerise | Worsened By: sexual activity/stress/anxiety/ocassionally alcohol/gluten
I don't think you need 8 glasses of water a day, at least if you are not sweating or exercising every time. You can judge it by the color of the urine. I have read in one article that drinking too much water is bad for the health and a burden for the kidneys.
(search google "why drinking too much water is bad for your health")
Onset Age:26 | It was probably due to Upper Cervical Instability and a connective tissue disorder like EDS