Thoughts on my condition, please help

[webslave]

Why is sitting on a toilet seat bad?

Where did you hear that?

When people get over this is, is it typically flare ups that just get further and further apart from each other until they're gone....or does it ever just stop abruptly one day?

I never have flare-ups anymore, and I was sick with this for 10 years.

What is causing the actual pain in the perineum and penis..... is it the nerves? Is it the prostate squeezing the urethra? Is it the muscles strained?

Trigger points, nerves, and at the end of nerves, mast cell degranulation.

Have you looked into meditation, breathing and relaxation?

[tweezerr]

I have read on multiple threads here that you don't want to sit on the toilet seat taking a bowel movement for very long. I even read where you recommend padded toilet seat covers. Maybe the problem isn't sitting on the actual toilet seat, its taking a BM for a long period of time.???

When people get over CPPS, is it typically an abrupt halt of symptoms or is it more of a gradual healing process?

I have definitely studied and read and practised lots of meditation and breathing and relaxation. Its not something that I do on any consistent basis. I am going to try and be more proactive about it now that you mentioned it.

Again, thanks for your answers. I appreciate all your help and time!

[webslave]

I have read on multiple threads here that you don't want to sit on the toilet seat taking a bowel movement for very long. I even read where you recommend padded toilet seat covers. Maybe the problem isn't sitting on the actual toilet seat, its taking a BM for a long period of time.???

Sitting with the bowel open for long periods is not recommended for reasons that have nothing to do with chronic prostatitis / chronic pelvic pain syndrome and more to do with haemorrhoids.

When people get over CPPS, is it typically an abrupt halt of symptoms or is it more of a gradual healing process?

Always gradual.

[tweezerr]

I went to a Urologist today. Dr. Larry Bans (prostate solutions of Arizona) in Phoenix, AZ. I went just to have a Urologist examine my prostate, I am 100% on board with Wise-Anderson protocol and have read hours upon hours on here about CPPS. I just wanted to at least get a Docs thoughts on my condition. Dr. Bans is suppose the best doc for prostate in Phoenix.

I briefly explained my thoughts that I have a neuromuscular problem with my pelvic floor and how it started from over-sexual activity. He basically agreed with me. He gave me a prostate exam and also examined my pelvic floor. He actually found a few TP's and said it felt like taught bands, like ligaments in there..... which hurt like hell when he pressed on them, 8 out of 10 on pain scale!!! He then massage my prostate to excrete some fluid to examine it for inflammation. He put the prostate fluid under microscope in his office and showed me the white blood cells and the how they looked very inflamed and the big cluster of cells. He said "yep you have chronic prostatitis"

He said he could culture it but that its 95% always non-bacterial and I didn't have any symptoms of bacterial infection. He told me to take any accredited quercetin product for the inflammation, I told him I had been taking Quercetin from vitamin shop for 1.5 months already. He then prescribed me Bactrim (antibiotic), I asked him why he would do that when he said its not bacterial, he agreed with me but said that it still seems to help, I questioned him again on this and he still thought it would be good to take it. Thought I'd clear up in a month.

My questions are:
1. Is there ever any good that can come from taking Bactrim if its non-bacterial. I've already ready many posts on here that basically all say no, but a lot of what the Dr. Bans said was pretty spot on.
2. Does anyone have any good advice on finding a PT that does internal work on men, and that is even familiar with Wise-Anderson. I have this website and will call a few of them that aren't just womens clinics http://www.pelvicpain.org/providers/find_provider.aspx. Does Dr. Wise know of people around the US?

I'd love to go to the clinic but I just can't take that much time off work. The biggest thing I learned from the Dr. Bans is that there are definitely TP in my pelvis that need some work and that my prostate is definitely inflamed.

Thanks again in advance for any thoughts.

[webslave]

Is there ever any good that can come from taking Bactrim if its non-bacterial.

No. It's to cover the doc, just in case, & it's because of long tradition, and it's because some men feel temporarily better from the anti-inflammatory effects of antibiotics.

Does Dr. Wise know of people around the US?

Yes, call him.

[tweezerr]

Thanks webslave for you help so far, it’s really kept me on the right path.

Ok, so I feel like I’m to the point in my recovery that I can stay relatively symptom free most of the time IF I avoid the main things that cause my symptoms and flares……Which are: too much sex/porn/masturbation, too much sitting, stress, weight lifting and tensing pelvic floor…… with too much sex/porn/masturbation and sitting as the main cause. Which can be very hard to avoid but doable.

My questions are:
1. Do you recover the most when you can avoid flares and symptom?
2. If you cause flares and symptoms, by doing the causes listed above, are you taking steps back in your recovery?
3. Is recovery about doing everything you can to eliminate the things that cause you symptoms/flares to allow your pelvic floor to rest and heal?
4. And if this is the case then how long would you have to go without flares and symptoms to let your pelvic floor heal?

[webslave]

1. Yes. The more you can break the neuronal windup cycle, the more the symptoms are suppressed and the nerves can reset.
2. Yes.
3. Yes.
4. Unknown — depends on your individual genetic makeup.

[tweezerr]

So I feel like I am getting a lot better. Again, I feel like if I can just avoid my big triggers/cause of symptoms that I can feel 80-90% better......But I haven't done internal TP therapy (I can't figure it out)...so I'm concerned that I may have knots and trigger points internally that need worked out.

So my question is: If I can get to a point of feeling 95% better without doing internal trigger point therapy, do you think it would still be a good idea at that point to do internal trigger point therapy..... to work everything out and possibly prevent any future problems?

Side note: I have done just about everything else though---ie internal and external stretches, some outer tp therapy, abdominal massages, relaxation, etc

[we.the.hulk]

Tweez, of course you should try internal work, this may be the heart of your problem. Despite Tim Parks ("Teach us to sit still") meditation-only approach, I think if he'd gone internal he could have saved some time. You say you've done everything else, including internal stretches. What is an internal stretch?

I would suggest getting some nitrile exam gloves and jelly lubricant from the cvs. Put a glove on, lubricate the anal opening, lubricate your middle finger, put a leg up on the bathroom counter, reach behind you and slowly insert the finger. No big deal...be gentle and just feel around. Pull the sphincter to the side. Pull up, pull down. Gently reach for the prostate. Just don't be afraid. There are plenty of diagrams on this site and in A HEADACHE IN THE PELVIS showing the internal map. Gentle is the key until you get comfortable. You really have to try and hurt yourself to hurt yourself. A lot of emphasis is put on trigger points. But I feel that just stretching out the area is tremendously important. I never found classic trigger points, but I go in most every night and just stretch it out.

Took me way to long to go internal for some reason. You sound like a classic case. 5 4 hour long masturbation sessions is extreme masturbating and your muscles are all tense. The insertion behind your prostate are probably tight. Just by putting a finger in and hooking the inside of the anus and pulling down or out will help stretch all this.

The other important thing to note. You don't just "try meditation" or try relaxation. You create a practice. And you do it every single day. And you don't stop doing it. The changes in mind and body come slow. But they come and you will one day see an extraordinary difference. Search out boudreax posts on here.

Good luck

[tweezerr]

Hulk, thanks for your response.

When I said I do internal stretches, I was referring to stretching out the anal sphincter...almost exactly how you described you do it. I've done a lot of internal stretches but I've never been able to find any internal TP, but I believe there has to be some in there I just can't find them. I've looked at all the diagrams and spent hours navigating around inside but no luck. So my question is should I go seek out help through physical therapy to try and work out these potential internal TP's .....IF I can still get better without it?

[we.the.hulk]

Oh ok. Cool. I misunderstood. So you've spent time "exploring". Well, without a doubt you should find a pt that has some Wise / Anderson knowledge. They can map out where your trigger points are if they exist. But do note, many therapists, (especially women with weaker shorter fingers ) can miss trigger points. You want someone good. It took me going to Tim Sawyer to really "get it".

It also seems to me that those men suffering with "golf Ball" type symptoms tend to get better quicker than men with urinary issues. But, the key will be you learning to work on the trigger points yourself. No PT will be able to fix you. Once or twice a week is not enough. You gotta do it yourself. The wand from the clinic is amazing. I don't know if that's available in the US yet. Seems like I read that people in Europe could buy it now. Maybe webslave knows. Its a J shape and really allows one to accurately place force.

So, bottom line...seek out a physical therapist. Its not an extraordinary cost and can really make a difference. Don't worry you. Just the fact that you got to this site is gonna help you. You'll be just fine. Just give it a little time.

[tweezerr]

So I feel like I'm finally on the right path to recovery. I've uncovered and eliminated the source of my flares. I've got a pretty good regimen that I put together after reading headache in pelvis and this board that's really been helping. Once I've gone a little bit further with my recovery I'll list what I thinks been working for me. Mainly a combination of diet, exercise, stretches, relaxation and supplements.

I feel like I can feel like 85% better but there is always still this hint of dull discomfort. Is this dull achy feeling normal, does it every go away? How can I get over this last little hump? What is this dully achy feeling? Its like a 1 out of 10 on pain scale. Its more annoying than anything. It feels like its just waiting to flare up at any moment.

Thoughts?

[webslave]

Look up hyperalgesia and allodynia. It will fade, but that last 5-10% can take quite a long time. Try to ignore it.

[tweezerr]

I have been taking benzo's off and on now for 2 months, trying hard not to become physically addicted in the process. When I take them I am literally 100% symptom free, fully back to my old self. And it doesn't take a big doses, just .25mg.

My question is when I take the benzos and it alleviates all my symptoms is it helping me get better in the process or just alleviating the symptoms? And if I could take them everyday for like 6 months could it be possible to give my neuromuscular system a break to kick this thing for good? (taking out of consideration the withdrawal effects when you stopped the benzo's)

[webslave]

It could be helping you to get better, and not just alleviating symptoms, but allowing your nervous system to reset without noxious inputs.

Just look out for addiction!