Scooby,
How would you say the overall change has been since you started lifting again? In general worse? In general better? The same? I'm noticing some better weeks this last week as I've stopped all exercise, but it may also be that I am taking more time relaxing instead of running to the gym on my lunch break? It definitely helps with my hypersensitivity to work out - that is one of my worst symptoms and for the evening following a work out I often feel MUCH better (sometimes even completely) - I want to try adding it back in in about a month and see how it goes.
Gay men with CPPS (Popburner's Case)
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popburner
- Intermediate Member
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Re: The exercise question again...
Age:29 | Onset Age:29 | Symptoms: ORIGINALLY - rectal pain, penis tip pain, perineal spasms, golf ball feeling in perineum, painful ejacualation ONGOING - rectal pain, penis tip hypersensitivity, urethral pain at beginning of urination, ejaculatory pain, burning skin around legs and buttox | Helped By: warm baths, NO catastrophic thinking, Physical Therapy; Stanford/Wise-Anderson Protocol; Mirtazipine (Remeron) for anxiety and sleep, dry needling of TPs (NOT injections), PAIN PSYCHOLOGIST (CBT and Commitment and Acceptance Therapy), diet changes - so far eggs are out doing an elimination diet now :) | Worsened By: ANXIETY, FEAR, STRESS, CATASTROPHIC THINKING,heavy weight lifting , sitting too long
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popburner
- Intermediate Member
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ejaculation pain and decrease in volume/intensity
Anyone narrowed down a trigger point or reason for the significant decrease in volume/intensity of ejaculate or the penis tip pain (feels different than then hypersensitivity I normally feel during the day from CPPS) during ejaculation?
Thoughts?
Thanks guys!
Thoughts?
Thanks guys!
Age:29 | Onset Age:29 | Symptoms: ORIGINALLY - rectal pain, penis tip pain, perineal spasms, golf ball feeling in perineum, painful ejacualation ONGOING - rectal pain, penis tip hypersensitivity, urethral pain at beginning of urination, ejaculatory pain, burning skin around legs and buttox | Helped By: warm baths, NO catastrophic thinking, Physical Therapy; Stanford/Wise-Anderson Protocol; Mirtazipine (Remeron) for anxiety and sleep, dry needling of TPs (NOT injections), PAIN PSYCHOLOGIST (CBT and Commitment and Acceptance Therapy), diet changes - so far eggs are out doing an elimination diet now :) | Worsened By: ANXIETY, FEAR, STRESS, CATASTROPHIC THINKING,heavy weight lifting , sitting too long
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boulder
- Experienced
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- Joined: Wed Nov 29, 2006 8:52 am
Re: ejaculation pain and decrease in volume/intensity
I'm no doctor, but... Retrograde ejaculation maybe, side effect of the Mirtazapine in your sig?significant decrease in volume/intensity of ejaculate
http://en.wikipedia.org/wiki/Retrograde_ejaculation
Age: 36 | Onset Age: 29 (Summer 2005) Main Symptoms (all intermittent): penile/anal/rectal/perineum pain/numbness/tingling/coldness, LUTS, ED | Helped By: duloxetine (Cymbalta), topical benzocaine, occasional benzodiazepines, hot weather, hot baths, understanding friends & family, pushing myself to be more sociable and active, psychotherapy (mostly CBT), diaphragmatic breathing, relaxation, meditation (concentration and mindfulness), adequate sleep | Worsened By: cold weather, stress, inadequate sleep, prolonged sitting or standing in place, walking uphill, heavy exercise, erection/ejaculation (sometimes)
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.
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VBBronco
- Intermediate Member
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- Location: Virginia Beach
Re: ejaculation pain and decrease in volume/intensity
I have had a decrease in ejaculate. I noticed this early on. I still have it as well as it thickening and more of a yellow color due to more white blood cells caused by inflammation. Intensity of it shooting out has decreased as well. I think this is a sure sign of a muscle problem. I always have a split urine stream as well. I think the muscles won't relax.
NEVER SURRENDER
Age: | Onset Age: Helped by vicodin, valium 10mg, Qurol, regular ejaculation
Age: | Onset Age: Helped by vicodin, valium 10mg, Qurol, regular ejaculation
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popburner
- Intermediate Member
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- Joined: Thu Sep 13, 2007 4:38 am
eyelid redness/swelling
Ok - I know that we all have crazy symptoms, but I don't know what to make of this one. Since this disease started I've been getting some single-eye (used to be left, but this time it's the right) lid swelling. It starts to ache and then it swells slightly and gets red. My eye gets a little crusty, but nothing major. There isn't any redness in the eye, though it does get a little glassy. And the weird part, it make my pelvic pain less intense. Any thoughts??? Anyone else with this symptom?
Age:29 | Onset Age:29 | Symptoms: ORIGINALLY - rectal pain, penis tip pain, perineal spasms, golf ball feeling in perineum, painful ejacualation ONGOING - rectal pain, penis tip hypersensitivity, urethral pain at beginning of urination, ejaculatory pain, burning skin around legs and buttox | Helped By: warm baths, NO catastrophic thinking, Physical Therapy; Stanford/Wise-Anderson Protocol; Mirtazipine (Remeron) for anxiety and sleep, dry needling of TPs (NOT injections), PAIN PSYCHOLOGIST (CBT and Commitment and Acceptance Therapy), diet changes - so far eggs are out doing an elimination diet now :) | Worsened By: ANXIETY, FEAR, STRESS, CATASTROPHIC THINKING,heavy weight lifting , sitting too long
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neue01
- Senior Veteran
- Posts: 225
- Joined: Wed Feb 06, 2008 6:17 pm
- Location: San Francisco
Re: eyelid redness/swelling
I go through strange flare ups in my pelvic floor related to diet that end with swelling in my nostrils and intense pain at the tip of the nose. Really weird and totally unrelated but maybe there is some sort of connection? After these sorts of flares I usually end up feeling better for a few days.
Age: 33 | Onset Age: 28
Flare | Symptoms: burning after urination/defecation, post-urinary dribbling, low libido, low arousal, pelvic aches and pains.
Helped By: Physical therapy of the levator ani muscle group, Relaxation, Diet
Worsened By: Eating refined sugar and gluten, coffee, beer, stress
Flare | Symptoms: burning after urination/defecation, post-urinary dribbling, low libido, low arousal, pelvic aches and pains.
Helped By: Physical therapy of the levator ani muscle group, Relaxation, Diet
Worsened By: Eating refined sugar and gluten, coffee, beer, stress
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webslave
- Maintenance
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Re: eyelid redness/swelling
When you have CPPS, you will have more pro-inflammatory chemicals in the body, or put another way, less anti-inflammatory chemicals (think cortisol). So you are more likely to have problems with inflammation.
Good News! The great ProstaQ is BACK at last! You must try it.
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popburner
- Intermediate Member
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Re: eyelid redness/swelling
Webslave, I definitely agree this is probably all connected - yet my cortisol levels and all my other adrenal levels are normal...perhaps some of us have something else going on?
Age:29 | Onset Age:29 | Symptoms: ORIGINALLY - rectal pain, penis tip pain, perineal spasms, golf ball feeling in perineum, painful ejacualation ONGOING - rectal pain, penis tip hypersensitivity, urethral pain at beginning of urination, ejaculatory pain, burning skin around legs and buttox | Helped By: warm baths, NO catastrophic thinking, Physical Therapy; Stanford/Wise-Anderson Protocol; Mirtazipine (Remeron) for anxiety and sleep, dry needling of TPs (NOT injections), PAIN PSYCHOLOGIST (CBT and Commitment and Acceptance Therapy), diet changes - so far eggs are out doing an elimination diet now :) | Worsened By: ANXIETY, FEAR, STRESS, CATASTROPHIC THINKING,heavy weight lifting , sitting too long
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webslave
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Re: eyelid redness/swelling
I wouldn't simply accept that your cortisol levels are normal. Rod Anderson found CPPSers have abnormally low levels of cortisol when stressed. A simple resting test of cortisol is insufficient.
Good News! The great ProstaQ is BACK at last! You must try it.
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popburner
- Intermediate Member
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Re: eyelid redness/swelling
Cool - which study are you referring to...I'd love to look it over!
Age:29 | Onset Age:29 | Symptoms: ORIGINALLY - rectal pain, penis tip pain, perineal spasms, golf ball feeling in perineum, painful ejacualation ONGOING - rectal pain, penis tip hypersensitivity, urethral pain at beginning of urination, ejaculatory pain, burning skin around legs and buttox | Helped By: warm baths, NO catastrophic thinking, Physical Therapy; Stanford/Wise-Anderson Protocol; Mirtazipine (Remeron) for anxiety and sleep, dry needling of TPs (NOT injections), PAIN PSYCHOLOGIST (CBT and Commitment and Acceptance Therapy), diet changes - so far eggs are out doing an elimination diet now :) | Worsened By: ANXIETY, FEAR, STRESS, CATASTROPHIC THINKING,heavy weight lifting , sitting too long
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webslave
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Re: eyelid redness/swelling
Watch the videos in the top forum.
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superuse
- Senior Veteran
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Re: eyelid redness/swelling
Stuff with eyes, (usually blurry vision), sinusitis, and tooth pain seem to be reported by many. Many with sinusitis report problems with the eyes (usually pain) as the sinuses surround that area. Whether its a reaction to anxiety about chronic prostatitis / chronic pelvic pain syndrome or the adrenal problem, resulting in inflammatory responses mentioned in susceptible areas seems plausible. I would imagine experimentation with remedies for the adrenal problem, may be fruitful if there are any.
popburner wrote:Ok - I know that we all have crazy symptoms, but I don't know what to make of this one. Since this disease started I've been getting some single-eye (used to be left, but this time it's the right) lid swelling. It starts to ache and then it swells slightly and gets red. My eye gets a little crusty, but nothing major. There isn't any redness in the eye, though it does get a little glassy. And the weird part, it make my pelvic pain less intense. Any thoughts??? Anyone else with this symptom?
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
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Rufus
- Senior Veteran
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Re: eyelid redness/swelling
My mother recently confided to her voice coach about my problem and turns out he too suffered from CPPS. Like Popburner had irritation in the eyes along with the typical urinary and pelvic pain problems here.
Suffered for 4 years until he went on immunomodulatory drugs.
He's been fine for years.
Suffered for 4 years until he went on immunomodulatory drugs.
He's been fine for years.
Age:37 | Onset Age: 35 | Symptoms: pain in testicles that comes and goes that also switches sides-trying to find a pattern as to "why" this happens/Rectal Burn at the 6 O'clock position at my anus which tends to flare around the periphery of my anus typically after defication but no perineum pain-no "golf ball" pain. Pain in testicles worsens as I sit but not always...Pain is not always present but depresses me. Pain used to be at a very high level but has subsided in time to a low level but has not gone away. Pain used to flare after sex but not as much as before although it still like playing russian roulette./
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
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ramana
- Old Hand
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Re: eyelid redness/swelling
This is significant. To me this proves the hypothesis (at least in some patients) and also provides a treatment option
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
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webslave
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Re: eyelid redness/swelling
Can you find out the exact drugs he took?Rufus wrote:Suffered for 4 years until he went on immunomodulatory drugs.
Good News! The great ProstaQ is BACK at last! You must try it.
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