Need to get this off my chest (Garyholc's Case)
-
garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Re: Tummy ache
Is it possible to get a Theracane in the UK? I have seen them on Amazon abroad but says they won't deliver it to the uk...
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
-
alprost
- Retired Mod
- Posts: 557
- Joined: Thu Oct 31, 2002 2:15 pm
- Location: Scotland, UK
Re: Tummy ache
http://www.hypnosishealthcare.com/garyholc wrote:Is it possible to get a Theracane in the UK? I have seen them on Amazon abroad but says they won't deliver it to the uk...
I can't get this link to work, but go to this site, and click on health and massage and scroll down - it has free delivery!
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
-
scotsman
- Retired Mod
- Posts: 1415
- Joined: Mon Aug 18, 2003 4:26 pm
- Location: Scotland, UK
Re: Tummy ache
I bought mine a couple years ago from an ebay seller in the US - delivery was just fine. Worth a look.garyholc wrote:Is it possible to get a Theracane in the UK? I have seen them on Amazon abroad but says they won't deliver it to the uk...
Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
-
superuse
- Senior Veteran
- Posts: 234
- Joined: Thu Jan 03, 2008 1:08 pm
Re: Tummy ache
Do you have diarrhoea or constipation as well as low ab pain?
--jjf
--jjf
garyholc wrote:Well I've been doing the stretches again, relaxing in bath again, and the pain I was getting between my legs seems to have subsided a bit. I am also going to see Bill in March. However, I .
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
-
alprost
- Retired Mod
- Posts: 557
- Joined: Thu Oct 31, 2002 2:15 pm
- Location: Scotland, UK
Re: Tummy ache
I had that, and it seemed to be linked to one specific TrP.superuse wrote:Do you have diarrhoea .....
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
-
garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Re: Tummy ache
Not diarrhoea no, but sometimes I do get what I call a day of nothing but sheep droppings - lots of effort to get them out and when they do pop out, well, they look like sheeps droppings! Though I blame this on my diet as I know I dont eat enough fibre at the moment......superuse wrote:Do you have diarrhoea or constipation as well as low ab pain?
--jjf
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
-
superuse
- Senior Veteran
- Posts: 234
- Joined: Thu Jan 03, 2008 1:08 pm
Re: Tummy ache
Never seen sheep droppings, but if they are like pellets or stones that would be it. Alternating with the opposite.
--jjf
--jjf
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
-
garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Re: Tummy ache
Yes little stones/pellets I would say - why, does this have any significance?
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
-
superuse
- Senior Veteran
- Posts: 234
- Joined: Thu Jan 03, 2008 1:08 pm
Re: Tummy ache
Not sure if its just a symptom of constipation in general, or the muscle spasm that is significant with the levator muscles and CPPS. You can try metamucil, benefiber, or citrucel. I have had no significant consistent success with any of them. Others have mentioned products that aren't powder like. These may be better. The pain seems to refer directly to the pubic bone or a stabbing or "stick" pain or general abdominal discomfort several inches below the belly button. I think the solution is the solution to the pelvic pain. (for now, Stanford/Wise-Anderson Protocol)garyholc wrote:Yes little stones/pellets I would say - why, does this have any significance?
--jjf
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
-
superuse
- Senior Veteran
- Posts: 234
- Joined: Thu Jan 03, 2008 1:08 pm
Re: Tummy ache
What trigger point did you identify?alprost wrote:I had that, and it seemed to be linked to one specific TrP.superuse wrote:Do you have diarrhoea .....
thx
--jjf
Age:43 | Onset Age:36 | Symptoms: First urinary and backside, golf ball feeling, now ok (no heavy exercise) . Major onset seemed to be with heavy coughing spell , felt "tearing" or nerve pain in rectum/prostate. | Helped By:Hot showers,sleep.Worsened By: Type A obsessiveness ... Stressing, what-if thinking, weights.
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
Not a doctor. -
The usual... anxiety prone programmer (my case), accountant, lawyer or self employed sitting 50 hrs/week combined with compulsively exercising on a bike,weights or running to compensate for stress. Also aka "graduate student syndrome" New email sigma556@hotmail
-
garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
New job
Well, a bit of good news today. Been really depressed the past few months, rock bottom, thankfully a bit of good news today, I had an interview last week for a very good job with a big company, and they rang today to say I have got it. Has lifted me up loads and I am hoping that this is the start to a better year for me, and hopefully, feeling happier will help to reduce my symptoms. I've been pretty good lately symptom wise, just burning in the rear lately, and still the low tummy ache, but I'm off up to see Bill next month so that should be interesting. But anyway, a good start to 2008 for me :)
However, hovering over all this joy at the moment is my worry in the back of my head, that this condition will take the shine off it, and dare I say flare up and make me miserable in my new job - I know, I know, I shouldnt think it, but one can't help it
However, hovering over all this joy at the moment is my worry in the back of my head, that this condition will take the shine off it, and dare I say flare up and make me miserable in my new job - I know, I know, I shouldnt think it, but one can't help it
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
-
elitynski
- Old Hand
- Posts: 322
- Joined: Sun Jul 15, 2007 8:59 pm
- Location: Minnesota
Re: New job
Congratulations Mate on a new job. I know the apprehension in the back of your mind, but try to enjoy the opportunity with the new company. Hopefully this will be a catalyst for more healing!!
Cheers!
Cheers!
Age: 49 | Onset Age: 43 | Symptoms: Some overactive bladder symptoms | Helped By: Hot Baths, relaxation, a little valium, exercise / weight loss | Worsened By: stress, possibly diet, possibly...(fill in the blank)
-
carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
Re: New job
Very good news indeed...One day at a time... 
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
-
graeme
- Old Hand
- Posts: 452
- Joined: Fri Jun 17, 2005 3:42 pm
- Location: Birmingham uk
Re: New job
great news ! 
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me
-
garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Weird new symptom
Ok, not sure if this is related to chronic prostatitis / chronic pelvic pain syndrome or not, and sorry to go on about this in detail, but its bugging me, and its something I haven't experienced before. The past week, when I go for a number 2, afterwards, I find the erm, exit hole, I get a really weird sensation from it, it feels like air bubbles to some extent, also feels like something is leaking out but it isn't. I haven't felt this before, and its quite unnerving at times because it does feel like you are going to have an accident. Getting to sleep with this feeling is also quite difficult. I find that if I pull the cheeks apart and hold them for a few seconds the feeling goes for a little while, but considering all the muscles in this region are linked, I wondered if this may be a new symptom I am experiencing or if it is something else not linked to CPPS? Either way, its annoying the heck out of me and not very comfortable, if a little ticklish at times.....
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)