Imaging for nerves at www.neurography.com
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ramana
- Old Hand
- Posts: 343
- Joined: Thu Jul 05, 2007 2:48 am
Imaging for nerves at www.neurography.com
Anyone having done this or any feedback on this. Seems like a good idea.
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
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Rufus
- Senior Veteran
- Posts: 259
- Joined: Tue Oct 24, 2006 9:14 pm
There are only two centers in the USA that conduct this test.
One in California, the other in Pennsylvania.
I had the test done today and look forward to the results this week.
Will keep you posted.
One in California, the other in Pennsylvania.
I had the test done today and look forward to the results this week.
Will keep you posted.
Age:37 | Onset Age: 35 | Symptoms: pain in testicles that comes and goes that also switches sides-trying to find a pattern as to "why" this happens/Rectal Burn at the 6 O'clock position at my anus which tends to flare around the periphery of my anus typically after defication but no perineum pain-no "golf ball" pain. Pain in testicles worsens as I sit but not always...Pain is not always present but depresses me. Pain used to be at a very high level but has subsided in time to a low level but has not gone away. Pain used to flare after sex but not as much as before although it still like playing russian roulette./
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
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rysocal
- Intermediate Member
- Posts: 60
- Joined: Sun Jul 22, 2007 7:41 pm
http://www.youtube.com/watch?v=Y6kAZr6BUc0 , a video on Nuerography. I am going to look into this .....thanks!
Ryan
Ryan
Age:30 | Onset Age:27 Symptoms: Golfball sensation, cramping in the rectum, inflamed/tight levator ani, occasional frequent urination, mild constipation, occasional burning testicular pain, IBS. Helped By: Exercise, Stretching (Yoga) specifically a deep lunge or pidgeon, running, beer, alcohol, relaxing,deep breathing Worsened By: Sitting for long periods (even w/ doughnut cushion), Stress, tight pants, caffeine, coffee in particular Tests: Pelvic MRI, Colonoscopy, Anal Monometry, STD, Pudendal Nerve Block. Botox into obturator internis, levator ani, and piriformis. Meds Xanax, Phenibut (The phenibut works awesome, better than the Xanax in my opinion)
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Rufus
- Senior Veteran
- Posts: 259
- Joined: Tue Oct 24, 2006 9:14 pm
This is the report I got back from my test results.
I received the report from your MR neurography. It
shown some minor irritative changes in a branch of the
left pudendal nerve. This is of unclear clinical
significance. Perhaps pudendal nerve injections could
help.
I received the report from your MR neurography. It
shown some minor irritative changes in a branch of the
left pudendal nerve. This is of unclear clinical
significance. Perhaps pudendal nerve injections could
help.
Age:37 | Onset Age: 35 | Symptoms: pain in testicles that comes and goes that also switches sides-trying to find a pattern as to "why" this happens/Rectal Burn at the 6 O'clock position at my anus which tends to flare around the periphery of my anus typically after defication but no perineum pain-no "golf ball" pain. Pain in testicles worsens as I sit but not always...Pain is not always present but depresses me. Pain used to be at a very high level but has subsided in time to a low level but has not gone away. Pain used to flare after sex but not as much as before although it still like playing russian roulette./
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
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boulder
- Experienced
- Posts: 122
- Joined: Wed Nov 29, 2006 8:52 am
Rufus, huge thanks to you for sharing your test results report with us. I'm interested in this technique. Did they also supply you with the images they took, with the irritated areas highlighted, so that you can show them to other practitioners, who could possibly perform injections? And did they suggest what sort of injections those might be?
1) coincidence (the nerve abnormality is unrelated to CPPS)
2) correlation (nerve abnormalities and chronic prostatitis / chronic pelvic pain syndrome may have something in common, but do not directly affect one another)
3) nerve-to-muscle causation (nerve abnormalities are contributing to musclar dysfunction)
4) muscle-to-nerve causation (muscular dysfunction is contributing to nerve abnormalities)
5) a combination of the two kinds of causation above (I guess this is the assumption the Stanford/Wise-Anderson Protocol is operating on: chronic prostatitis / chronic pelvic pain syndrome as a self-perpetuating condition, a vicious circle or feedback loop or whathaveyou)
One thing to note: it would seem that there are more than two places in the US to get pelvic MR neurography done. Based on a Google search, UCSF and UCLA appear to perform them, and possibly the University of Washington (Seattle), University of Utah (Salt Lake City), and Johns Hopkins (Baltimore) as well.
Lastly, I also see that the NHS in the UK is studying MR neurography, which they say "is being used as a method for non-invasively delineating the precise nature and relevance of any damage that occurs to the pudendal nerves in controlling anal sphincter functionality." (italics mine)
Thanks again, Rufus, and best of luck to you. Keep us posted on your progress!
That's the kicker, I guess. I'm sorry to hear that. I suppose the problem is that even if some kind of nerve abnormality is found, there are still at least five possibilities:This is of unclear clinical significance
1) coincidence (the nerve abnormality is unrelated to CPPS)
2) correlation (nerve abnormalities and chronic prostatitis / chronic pelvic pain syndrome may have something in common, but do not directly affect one another)
3) nerve-to-muscle causation (nerve abnormalities are contributing to musclar dysfunction)
4) muscle-to-nerve causation (muscular dysfunction is contributing to nerve abnormalities)
5) a combination of the two kinds of causation above (I guess this is the assumption the Stanford/Wise-Anderson Protocol is operating on: chronic prostatitis / chronic pelvic pain syndrome as a self-perpetuating condition, a vicious circle or feedback loop or whathaveyou)
One thing to note: it would seem that there are more than two places in the US to get pelvic MR neurography done. Based on a Google search, UCSF and UCLA appear to perform them, and possibly the University of Washington (Seattle), University of Utah (Salt Lake City), and Johns Hopkins (Baltimore) as well.
Lastly, I also see that the NHS in the UK is studying MR neurography, which they say "is being used as a method for non-invasively delineating the precise nature and relevance of any damage that occurs to the pudendal nerves in controlling anal sphincter functionality." (italics mine)
Thanks again, Rufus, and best of luck to you. Keep us posted on your progress!
Age: 36 | Onset Age: 29 (Summer 2005) Main Symptoms (all intermittent): penile/anal/rectal/perineum pain/numbness/tingling/coldness, LUTS, ED | Helped By: duloxetine (Cymbalta), topical benzocaine, occasional benzodiazepines, hot weather, hot baths, understanding friends & family, pushing myself to be more sociable and active, psychotherapy (mostly CBT), diaphragmatic breathing, relaxation, meditation (concentration and mindfulness), adequate sleep | Worsened By: cold weather, stress, inadequate sleep, prolonged sitting or standing in place, walking uphill, heavy exercise, erection/ejaculation (sometimes)
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.
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Rufus
- Senior Veteran
- Posts: 259
- Joined: Tue Oct 24, 2006 9:14 pm
Hey Boulder,
As stated in the text I copied from my doctor, he thinks Pudendal Nerve Blocks might help.
I willing to try them just to see how it goes but I'm not familiar with the risk vs benefits of these injections. However I have read medical journals regarding people with chronic pelvic pain who received pudendal nerve blocks that are symptom free.
Anyway, if I decide to get them, I will of course post the results.
Pain level is very minor but I've stayed away from the wife for two weeks which should account for it...
As stated in the text I copied from my doctor, he thinks Pudendal Nerve Blocks might help.
I willing to try them just to see how it goes but I'm not familiar with the risk vs benefits of these injections. However I have read medical journals regarding people with chronic pelvic pain who received pudendal nerve blocks that are symptom free.
Anyway, if I decide to get them, I will of course post the results.
Pain level is very minor but I've stayed away from the wife for two weeks which should account for it...
Age:37 | Onset Age: 35 | Symptoms: pain in testicles that comes and goes that also switches sides-trying to find a pattern as to "why" this happens/Rectal Burn at the 6 O'clock position at my anus which tends to flare around the periphery of my anus typically after defication but no perineum pain-no "golf ball" pain. Pain in testicles worsens as I sit but not always...Pain is not always present but depresses me. Pain used to be at a very high level but has subsided in time to a low level but has not gone away. Pain used to flare after sex but not as much as before although it still like playing russian roulette./
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
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boulder
- Experienced
- Posts: 122
- Joined: Wed Nov 29, 2006 8:52 am
Ah, OK- I misunderstood you before, Rufus. Now I see that what you quoted is your doctor's commentary on the results of your test, not the the results themselves. Got it.
Glad your pain level is minor. I can't speak to the issue of pudendal nerve blocks, but a search on this forum reveals a lot of discussion of the procedure, and many people seem to take a negative view of it:
viewtopic.php?t=3623
I am definitely NOT a doctor, but if your level of pain is low, it might be better to stay with less invasive or risky treatments. Your signature says you've recently started PT, perhaps it's better to give this time to work? Take care...
Glad your pain level is minor. I can't speak to the issue of pudendal nerve blocks, but a search on this forum reveals a lot of discussion of the procedure, and many people seem to take a negative view of it:
viewtopic.php?t=3623
I am definitely NOT a doctor, but if your level of pain is low, it might be better to stay with less invasive or risky treatments. Your signature says you've recently started PT, perhaps it's better to give this time to work? Take care...
Age: 36 | Onset Age: 29 (Summer 2005) Main Symptoms (all intermittent): penile/anal/rectal/perineum pain/numbness/tingling/coldness, LUTS, ED | Helped By: duloxetine (Cymbalta), topical benzocaine, occasional benzodiazepines, hot weather, hot baths, understanding friends & family, pushing myself to be more sociable and active, psychotherapy (mostly CBT), diaphragmatic breathing, relaxation, meditation (concentration and mindfulness), adequate sleep | Worsened By: cold weather, stress, inadequate sleep, prolonged sitting or standing in place, walking uphill, heavy exercise, erection/ejaculation (sometimes)
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.
Last But Not Least: I am not a medical/health professional of any kind. This is not medical advice.