Greetings everyone. I'm a new member of the forum and this is my first post.
I am 49 years old and was first diagnosed with chronic prostatitis / chronic pelvic pain syndrome at the age of 19. That makes me a 30 year veteran. Nothing to be happy about ! I was wondering if I am the exception. Are there any other long term sufferers out there?
I've tried just about everything but surgery (more antibiotics and antifungals than I can remember, drainage, hytrin , proscar, vioxx, quercetin ). I've finally found a uro. (Dr. Curtis Nickel) who understands this disease and I'm hopeful that sooner or later we will find something that works for me. I have never had a positive culture (urine,EPS,semen).
I get flare ups about twice a month. They last 4 or 5 days during which time my symptons are: low grade fever, sinus headache, general weakness, frequent and weak urination, pain in testicles & groin, occasional extremely painful spasms in perineum
New member-Long term sufferer
[I am 49 years old and was first diagnosed with chronic prostatitis / chronic pelvic pain syndrome at the age of 19. That makes me a 30 year veteran. Nothing to be happy about ! I was wondering if I am the exception.]
Boy, I hope so!!
Sorry, but if you haven't figured out what causes your problem, I can't. Evertime I think I've narrowed down my problem, it recurs. Not as bad as before and not for as long, but still there. I've had this for three years and it is better now then ever. I am hoping it will just run it's coarse and disappear someday.
Boy, I hope so!!
Sorry, but if you haven't figured out what causes your problem, I can't. Evertime I think I've narrowed down my problem, it recurs. Not as bad as before and not for as long, but still there. I've had this for three years and it is better now then ever. I am hoping it will just run it's coarse and disappear someday.
Ralph Caccese, MD (Radiologist)
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J Dimitrakov
- Urologist
- Posts: 326
- Joined: Wed Oct 30, 2002 4:59 pm
- Location: Boston, MA
Re: New member-Long term sufferer
Well, you've found the absolutely best person in the field!Dan in T.O. wrote: I've finally found a uro. (Dr. Curtis Nickel) who understands this disease and I'm hopeful that sooner or later we will find something that works for me.
This communication provides general information, and is not a substitute for face-to-face medical care. A doctor-patient relationship should not be assumed by the reader.
Jordan Dimitrakov, M.D., Ph.D.
Jordan Dimitrakov, M.D., Ph.D.
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J Dimitrakov
- Urologist
- Posts: 326
- Joined: Wed Oct 30, 2002 4:59 pm
- Location: Boston, MA
No, I really mean it. I don't know if anyone with chronic prostatitis / chronic pelvic pain syndrome can wish for something more than seeing Dr. Nickel!Desperato wrote:JD, do not be so humble :)
This communication provides general information, and is not a substitute for face-to-face medical care. A doctor-patient relationship should not be assumed by the reader.
Jordan Dimitrakov, M.D., Ph.D.
Jordan Dimitrakov, M.D., Ph.D.
-
J Dimitrakov
- Urologist
- Posts: 326
- Joined: Wed Oct 30, 2002 4:59 pm
- Location: Boston, MA
Thanks. I appreciate it.Desperato wrote:Yes, I know you mean it. I just wanted to say that you are pretty good, too. Best regards!
This communication provides general information, and is not a substitute for face-to-face medical care. A doctor-patient relationship should not be assumed by the reader.
Jordan Dimitrakov, M.D., Ph.D.
Jordan Dimitrakov, M.D., Ph.D.