Thank you webslave for creating and maintaining this website. I've been perusing and trying to match my symptoms with those of others. Been dealing with some form of CPPS for ~8 months, which I believe was initially triggered by genital warts (diagnosed via biopsy) that appeared a few weeks before my symptoms began starting with strong burning sensations in the glans/penis skin and travelling to the scrotum (epididymis/testicles bilaterally) - since resolved. It's been helpful to know that I'm not alone, although my case seems unique and is quite perplexing.
Is there a way to get in contact with webslave himself? Does he offer consultations or anything of that nature or am I better off just posting in this open forum? (I'm unable to register to access other forums on this site).
Current worst symptoms:
1. Dysuria and weak stream
2. Discoloration, altered skin texture, dryness, and redness on glans (only red 20-30 minutes after friction)
3. Yellow semen, altered semen consistency, and weaker ejac force
5. Flares of pain in prostate, often seeming to shoot pain into sciatic nerves/lower back
6. Persistent stiffness and pain in arches of my feet (especially bad when I get out of bed in the morning)
7. Pain in hands
8. Tenderness/sore spots in groin lymph nodes and in my armpits/forearms (maybe lymph nodes?)
Symptoms that seem to be improving very gradually:
9. Flares of generalized skin sensitivity/heat sensation, burning sensation in the eyes (occasional accompanying redness), high pitch tinnitus
10. Brain fog and overall feeling spaced out
11. Flares of generalized temperature dysregulation, despite never having a fever
12. Occasional fatigue
13. Occasional tenderness in testicles
Forever grateful for these communities and thank you in advance for any replies.
CPPS ~8 months - Seeking Help/Advice
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Mati
Re: CPPS ~8 months - Seeking Help/Advice
It's best to consult the AUA guidelines.
The problem of CPPS is always multifaceted.
It's definitely necessary to see the following specialists:
1. Urologist – for problems such as CPPS/CPPS, poor urine stream, semen, and testicles – for detailed testing.
Previous inflammation may have caused functional changes. Inflammation of the nervous system caused by a virus/viruses may also be a factor.
Then:
2. Neurologist and rheumatologist – for problems with
feet (in the morning), hands, eyes, and back, as well as urogenital symptoms.
3. Allergist/immunologist
for redness/burning of the skin and eyes, thermoregulation, mast cell assessment.
4. Dermatologist/venereologist – for a history of condyloma acuminata (warts).
5. Urological physiotherapist – for pelvic floor problems, tension, and trigger points.
However, diet, fluid intake, sleep habits, and other medications—along with their side effects—also play a role.
Response to medications for prostate enlargement, antihistamines (for MCAS), and medications targeting NGF (nerve growth factor)-related neural hyperreactivity are also important.
Every doctor should specialize in pelvic pain and order additional tests to confirm or rule out specific types of this condition.
Unfortunately, there is no single effective medication for this condition.
The problem of CPPS is always multifaceted.
It's definitely necessary to see the following specialists:
1. Urologist – for problems such as CPPS/CPPS, poor urine stream, semen, and testicles – for detailed testing.
Previous inflammation may have caused functional changes. Inflammation of the nervous system caused by a virus/viruses may also be a factor.
Then:
2. Neurologist and rheumatologist – for problems with
feet (in the morning), hands, eyes, and back, as well as urogenital symptoms.
3. Allergist/immunologist
for redness/burning of the skin and eyes, thermoregulation, mast cell assessment.
4. Dermatologist/venereologist – for a history of condyloma acuminata (warts).
5. Urological physiotherapist – for pelvic floor problems, tension, and trigger points.
However, diet, fluid intake, sleep habits, and other medications—along with their side effects—also play a role.
Response to medications for prostate enlargement, antihistamines (for MCAS), and medications targeting NGF (nerve growth factor)-related neural hyperreactivity are also important.
Every doctor should specialize in pelvic pain and order additional tests to confirm or rule out specific types of this condition.
Unfortunately, there is no single effective medication for this condition.