Be aware when seeing a Doctor/Urologist!!

Male pelvic pain, prostatitis, IC
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MajorSky1
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Be aware when seeing a Doctor/Urologist!!

Post by MajorSky1 »

Just a heads up for those of us who have discovered the neuroplastics/psychosomatic aspect of this condition to be the truth of it's perpetuation:

Yesterday I saw a very good, and respected urologist/surgeon. He's great in his field, and a former Mayo doctor/surgeon. I was seeing him simply for peace of mind on the color of my slightly off-white semen and to have my prostate routinely checked out. I saw him two years ago in the early, horrible stages of CPPS. Yesterday, I checked out perfectly fine as I suspected.

However, as he was asking me questions, he told me bluntly that I should keep doing my PT exercises and stretches because he finds that a lot of guys who have CPPS, it comes back sometimes worse than it was. Then he continued to say (after I had just told him I'm 99% recovered and feel great) that I should keep in mind a lot of guys never get back to perfect.

WTF?!!! :sad2: Why would you even plant that seed in someone's mind??? I pushed back and said "Well, that's not going to happen with me." I could tell he didn't believe me.

I took a deep breath and told him flatly that it won't come back because I've figured out that it is mostly psychosomatic and I've cracked the code on it. He pushed back and said, "Oh, no. It's not mostly psychosomatic."

I wasn't going to argue with him because indeed, I'm sure most guys do come back to him over and over because they think he's going to fix them. I was just amazed he didn't get it.

Needless to say, I just let him have his say but shook my head to myself.

Guys - DON'T listen to the naysayer doctors. They are human beings, they don't know everything (though some think they do). They see people with problems all day so even when you say you're fine, they're mind is focused on treating a problem. Some will try to find one if there isn't one. If he would have said those words to me 9 months ago, I would have walked out of there flaring like a mofo. It has become increasingly apparent to me that you CAN NOT fathom the complexities of this condition until you've either been through it yourself, or have been consistently working with people who have it and you have an open mind to the facets of it's complexity (such as my PT does).

You will recover from this. The only reason you wouldn't recover 100% is if there is still some sort of stressor factor you're not dealing with.

There are probably exceptions for a few people who have had serious traumatic injury to the pelvis, such as a car accident, or a serious fall, etc. But if all tissue heals within 6 months, and there is not mechanical or kinesiologostic aggravator, it's all just malfunctioning neuropathways after that.
Age: 49| Onset Age: 47| Symptoms: Pain locations: Intermittent left and right front pelvic floor lateral to urethra; occasionally left side tailbone pain (rarer); left spermatic chord pain (become rare); Post BM-Pain helped by distraction during Bowel Movement.| Current meds: None. Helped by: deep breathing, mediation, hiking, distractions, exercise. Approximately 98% improved, varying depending on stress levels.
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webslave
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Re: Be aware when seeing a Doctor/Urologist!!

Post by webslave »

Uros are basically just surgeons; nuff said.
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carbonevo
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Re: Be aware when seeing a Doctor/Urologist!!

Post by carbonevo »

I always said it.. Docs and surgeons can be perfect specialists when there is obvious structural abnormality, and can truly save lives.. However, when it comes to chronic pain they are a bad joke.
Thank you MS for this post!
Onset Age: 23 , Current Age: 24 Symptoms: Pain in butt/ prostate area, buttocks when sitting for long, pain during sex - especially erections were very painful... pain moved slowly to the left side after reading about the PNE bullcrap. Helped By: Relaxation, massage (temporary relief), the real difference made for me understanding that this is induced by the Brain/Central nervous system as tension, therefore addressing the tension psychologically, not physically. During flare ups I use a strong dose of tramadol - 100mg extended release, works magic for me. If your symptoms improve when distracted or during vacations and stress worsens your symptoms I urge you to:
* Read John Sarno's books
* Read Ezer's story on this site.
* Explore the TMSwiki site and read every single success story there. (even the non CPPS)
* Pay a special attention to Alan Gordon's posts.
* Read Clair Weeks book Hope and help for your nerves (apply the concepts to CPPS).
Current status: more or less cured if stressful events and emotional conflicts did not flare up my symptoms. This does not affect my life in any aspect anymore, because I dont allow it to.
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Cree
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Re: Be aware when seeing a Doctor/Urologist!!

Post by Cree »

Clearly he has no economic incentive to believe that you healed yourself without the archaic methods still employed in Urology. I've seen many Urologists in my day and they were all close-minded egomaniacs. As Webslave said they are basically surgeons and want nothing more than to perform surgery since that generates the most income for their practice. Medicine is a for-profit business.
Age: 42. Onset Age: 21-22, then a break, then 27-29, then a break, then 40-present. Symptoms: waxing and waning testicular pain (right only), painful sex and ejaculation. Helped by: physical therapy. Worsened by: sexual activity, ejaculation, prolonged sitting, cold weather. Tests/Prior Treatments: urinalysis, pelvic CAT scan with contrast dye, cystoscopy, urine cytology study, nerve blocks, radio-frequency ablation of the inguinal nerve, testicular ultrasound, antibiotic courses including Levaquin and Cipro. All tests were normal with the exception of urinalysis which revealed microscopic traces of blood. Medications: Klonopin 0.5mg.
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MajorSky1
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Re: Be aware when seeing a Doctor/Urologist!!

Post by MajorSky1 »

Yes, yes, and yes. Good surgeon, knows his stuff there. He really helped my dad. But clueless on the nervous system, and chronic pain - as are so many. I wonder if that's because is so incredibly complicated and time consuming to learn about. *shrug*
Age: 49| Onset Age: 47| Symptoms: Pain locations: Intermittent left and right front pelvic floor lateral to urethra; occasionally left side tailbone pain (rarer); left spermatic chord pain (become rare); Post BM-Pain helped by distraction during Bowel Movement.| Current meds: None. Helped by: deep breathing, mediation, hiking, distractions, exercise. Approximately 98% improved, varying depending on stress levels.