CPPS or IC

Includes bladder pain syndrome
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spencerryan1
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CPPS or IC

Post by spencerryan1 »

How do doctors tell if you have IC or CPPS? I have been treated for CPPS for the last 15 years without much help. I asked my Dr. whether it could be IC and he said that it's very rare for a guy and is a wastebasket diagnosis which in his experience is usually always something else. Isn't CPPS a waist basket diagnosis too? . Very confusing to me and wondering if IC treatments could help.
Age: 36 | Onset Age: 20 | Symptoms: frequency, perineum pain, pain going from the perineum going up the penis through the uretha and Ibs constipation. Chronic pelvic pain everyday and anxiety| Helped By: heat pads, excersise, but really haven't found anything | Worsened By: ejaculation, stress, constipation, travel
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webslave
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Re: CPPS or IC

Post by webslave »

In 1980 Dr. Thomas Stamey called Chronic Prostatitis a "wastebasket of clinical ignorance," so that's what your doctor was thinking of. Frankly, I'd get another doctor. IC is not that rare. But it does not make a lot of difference to treatments, whether you have IC or CPPS, and recent thinking is that they have the same etiological origins.
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Caedar
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Re: CPPS or IC

Post by Caedar »

The most comprehensive classification scheme for CPPS patients includes IC components, so yes, it's possible that IC treatments could help if you have bladder/urethral issues. You have frequency, according to your signature, so I'd recommend giving them a shot.
Age: 26 | Onset Age: 23 | Symptoms: Neuropathic-like pain and hyperalgesia (lateral/anterior thighs mostly, but distributed throughout body); Pain (penis shaft, right side, when erect for long or excess masturbation) | Previous Symptoms: Pain (testicles; penis underside, mostly near base and running up urethra, sharp/burning; perennial region, dull; ejaculatory; post-ejaculatory); Urinary (moderate incomplete voiding; moderate frequency and pain on bladder filling); Sensations (cold in head of penis) | Helped By: Stretching (especially hip rotators and flexors); Yoga (especially lunges, warrior 2, and pigeon) Trigger point release (abdominals; iliopsoas; gluteus muscles and piriformis; bulbospongiosus & ischiocavernosus; thigh adductors); Meditation (mindfulness); Walking & Aerobic Exercise | Worsened By: Stress, anxiety, too much alcohol, lack of sleep, sitting at length | Current prescriptions: nortriptyline (10 mg, 1x at night; for CNS sensitization and IBS) Previous prescriptions: hydroxyzine (10 mg, 1x at night; for urinary symptoms/mast cell stabilization; useful), clonazepam (0.25-0.5 mg, 1x at night; for anxiety/CNS sensitization; useful for short time)
Izthewiz
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Re: CPPS or IC

Post by Izthewiz »

I asked my urologist about IC. Said to test they put you under and see if bladder contracts to a acidic like solution that's how they can tell as it will dilate.
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webslave
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Re: CPPS or IC

Post by webslave »

The Potassium Sensitivity Test (PST) involves inserting a solution of a known irritant into the bladder, for the ostensible purpose of diagnosing interstitial cystitis. While it is still used by some urologists, the American Urological Association (AUA) has deemed it ineffective and unnecessarily painful to patients.

"In addition, the PST is painful and risks triggering a severe symptom flare. In view of the paucity of benefits, the panel agreed the risk/benefit ratio was too high for routine clinical use." -AUA IC Guidelines, 2014
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