So a guy made it to the Reddit.com front page by doing an "Ask Me Anything" thread about his (particularly severe) form of CPPS.
You can read it here:
http://www.reddit.com/r/IAmA/comments/1 ... ousal_ama/
I've been a redditor for a long time but I never thought to talk about my CPPS on that site. Well it garnered enormous interest and a ton of people came to the thread to claim they were either 1) also CPPS sufferers, 2) give advice, 3) sympathize with the guy.
Anyway it's a good read...with people offering a lot of legit advice (Go see Dr. Wise) to some really bad advice (you name it...too many to list here). The original poster did say that he went to the Santa Rosa clinic but that it "didn't help him, but helped people he knew."
Anyway, I'm going to try and touch base with a few people in that thread...there were several massage therapists that said they specialize in helping people with myofacial pain, and were aware of CPPS and things that can be done to heal that area. I'll see if any of them are in my area.
Front page Reddit.com submission about CPPS
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yoink15
- Experienced
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- Joined: Thu Jul 21, 2011 8:19 am
- Location: Los Angeles
Front page Reddit.com submission about CPPS
Age: 35 Onset Age: 31
Symptoms: An almost constant feeling of the need to urinate all the time. Pain in the penis, at the tip, and "behind" the penis inside the pelvis. Also urethral pain after ejaculation. No rectal pain or symptoms at all.
Helped By: Hot baths, Dr. Wise's relaxation tapes. Internal trigger point work every two days with the Wise-Anderson Protocol wand.
Worsened By: Ejaculation (changes the pain to a burning sensation most times) Alcohol increases urinary frequency greatly. Falling "off the wagon" and not following the Wise-Anderson Protocol protocol.
Symptoms: An almost constant feeling of the need to urinate all the time. Pain in the penis, at the tip, and "behind" the penis inside the pelvis. Also urethral pain after ejaculation. No rectal pain or symptoms at all.
Helped By: Hot baths, Dr. Wise's relaxation tapes. Internal trigger point work every two days with the Wise-Anderson Protocol wand.
Worsened By: Ejaculation (changes the pain to a burning sensation most times) Alcohol increases urinary frequency greatly. Falling "off the wagon" and not following the Wise-Anderson Protocol protocol.
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webslave
- Maintenance
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- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
Re: Front page Reddit.com submission about CPPS
Be sure to mention this site 
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davyboy
- Veteran
- Posts: 172
- Joined: Tue Apr 17, 2012 6:39 pm
- Location: Vancouver, BC, Canada
Re: Front page Reddit.com submission about CPPS
Wow. I feel terrible for this guy.
Age: 27 | Onset Age: 26| Symptoms: Occasional penis discomfort (mild), primary pain is perineum - feels like I'm sitting on a golf ball, pressure in penis, almost like a stick is in my urethra, difficulty sitting for long periods of time, urinary frequency (some), incontinence (dribbling), right testicle pain (almost gone!), hip pain, stiff hips, lower back pain. Some abdomen pain. Just general discomfort in the area, post sex discomfort. | Helped By: External and Internal PT. Hot bathes. Supplements (mag, omega 3, vitamin b and D, prosta Q). Relaxing. Breathing exercises. Anti inflammatory diet. Stretches. Yoga | Worsened By: Stress. Core exercises, too much exercise, too little exercise, strenuous exercise. Sitting. Too much Sex | Other comments: Feeling better, but still not 100% I'd say I'm 75%
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davyboy
- Veteran
- Posts: 172
- Joined: Tue Apr 17, 2012 6:39 pm
- Location: Vancouver, BC, Canada
Re: Front page Reddit.com submission about CPPS
Did someone point him in the direction of this forum?
Age: 27 | Onset Age: 26| Symptoms: Occasional penis discomfort (mild), primary pain is perineum - feels like I'm sitting on a golf ball, pressure in penis, almost like a stick is in my urethra, difficulty sitting for long periods of time, urinary frequency (some), incontinence (dribbling), right testicle pain (almost gone!), hip pain, stiff hips, lower back pain. Some abdomen pain. Just general discomfort in the area, post sex discomfort. | Helped By: External and Internal PT. Hot bathes. Supplements (mag, omega 3, vitamin b and D, prosta Q). Relaxing. Breathing exercises. Anti inflammatory diet. Stretches. Yoga | Worsened By: Stress. Core exercises, too much exercise, too little exercise, strenuous exercise. Sitting. Too much Sex | Other comments: Feeling better, but still not 100% I'd say I'm 75%
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sufferinginpain
- Intermediate Member
- Posts: 90
- Joined: Thu Oct 11, 2012 11:36 pm
- Location: Los Angeles
Re: Front page Reddit.com submission about CPPS
Wow look at the amount of replies and posts... crazy.
Age:29 | Onset Age: 27 | Symptoms: Rectal burning after bowel movement, rectal tightness, stinging and shocking near thighs sometimes. | Helped By: Hot bath, Muscle relaxers such as Flexeril, not sitting an entire day | Worsened By: Stress, sitting a lot, anxiety, problems with relationship (emotional issues)| Other comments: I recommend A Headache in the Pelvis, and reading my story fully.