Well I am having better and better days. I go to the bathroom only 5 to 8 times a day now once at night and haven't had any burning for a few weeks. I feel I am getting better and better and it is all since last Decembers attendance at the Wise seminar in Santa Rosa. But you have to stick at it. I do yoga everyday with a routine that incorporates the stretches on the CPP website by one of the guys here. I have found over time the best one is laying on your back with your butt up against the wall with the legs spread wide and then consciously let the bottom and pelvis drop. The anal sphincter relaxes and that has made a huge difference. I still meditate..at work I go to the park for 30mins in my lunch hour and listen to a tape.
My life is nearly back to normal. If you had told me this would be the case 2 years ago when I was contemplating swallowing a whole packet of Elavil so I wouldn't wake up to face another day of agony I would never have guessed things could be so good again.
One more year to keep up the protocol and I may be truly free of CPP. And its not even a year since I went to the US so its all good.
Best three weeks in years
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Sherradin
- Veteran
- Posts: 173
- Joined: Thu Nov 12, 2009 11:27 am
- Location: Sydney, Australia
Best three weeks in years
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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Burner2k
- Experienced
- Posts: 124
- Joined: Sat Apr 10, 2010 7:37 pm
- Location: Bangalore, India
Re: Best three weeks in years
Good to hear you are doing great Sherradin. Hopefully this normalcy phase of yours is more like for ever!
Age: 33 | Onset Age: 28 | Symptoms: Initially Tingling/urge to urinate feeling in tip of penis urgency mainly. Currently: Symptoms have flared up since early 2015... Only change has been discovery of a TrP right inside navel which is confounds doctors & PTs alike :) Multiple Ultrasound of Bladder, Abdomen & TRUS normal. Urine culture reported normal. | Helped By: Internal Trigger Point work, hot baths, Baclofen, light exercise regimen. | Worsened By: Stress/anxiety, constantly thinking about it, ejaculation, bowel movement, improper sitting posture
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Sherradin
- Veteran
- Posts: 173
- Joined: Thu Nov 12, 2009 11:27 am
- Location: Sydney, Australia
Re: Best three weeks in years
Thanks Burner, mustn't celebrate too much, remember..what's it called, anastrophic? But such a good long patch is so welcome. Feels good to be alive again and think of other things
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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extreme3
- Intermediate Member
- Posts: 79
- Joined: Fri Mar 21, 2008 6:09 pm
Re: Best three weeks in years
Great news - consistency is the key. Too many folks want things to work right away but it takes time an dedication to see results.
Best of luck with the continued recovery.
Best of luck with the continued recovery.
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
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carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
Re: Best three weeks in years
Good news keep at it...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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chillysun
- New Member
- Posts: 14
- Joined: Wed May 26, 2010 12:46 am
Re: Best three weeks in years
You know that thread like this gives lots lots lots of courage to people suffering from this disease.
I hope you keep getting better.
I've been pretty low myself...but I keep going on...and my symptoms seem better lately...
Grats Sherradin!
I hope you keep getting better.
I've been pretty low myself...but I keep going on...and my symptoms seem better lately...
Grats Sherradin!
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robertpagen
- Old Hand
- Posts: 316
- Joined: Thu Mar 18, 2004 4:51 pm
- Location: Beijing, China
Re: Best three weeks in years
That V stretch is my favourite. It may sound weird but I some times tie a foot to each bedpost so that the legs will stay apart while I sleep. Only occasionally as I don't want to seem kinky. One time my parents in law saw the ties on the bedposts and asked questions! 
Age: 43 | Onset Age: 17 | Symptoms: previously: constant urgency, premature ejaculation, burning at tip of penis, pelvic ache current: semi annual flares. | Helped By: PT, yoga, stretch, keeping warm(long johns) boxer briefs, regular sleep routine | Worsened By: cystoscopy, antibiotics (fluoroquinolones) alcohol, coffee, stress, masturbation, cold
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Sherradin
- Veteran
- Posts: 173
- Joined: Thu Nov 12, 2009 11:27 am
- Location: Sydney, Australia
Re: Best three weeks in years
You really are a nut..that made me laugh ..one of 10 year olds is rolling her eyes at that. Mummy and her crazy friends. When work is too serious this week I will think of you tied to your bed posts! 
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
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DMcU
- Veteran
- Posts: 165
- Joined: Thu Feb 04, 2010 11:59 am
- Location: Ireland
Re: Best three weeks in years
That's fantastic Sherradin,
I hope that you are continuing to enjoy an improvement!
I hope that you are continuing to enjoy an improvement!
Age: 25 Onset: 23. | Symptoms: Burning in urethra, urinary frequency/urgency, 'golf ball' in butt syndrome, muscle tension form pelvis to calves, constipation, IBS, testicular pain/inflam, bladder pain when nearly full, difficulty relaxing muscles (coccygeal, levator ani etc.), pain and muscles tension in anus/perineum. Helped by: quercetin, relaxation, baths, heat packs applied to perineum. Worsened by: Stress, driving, sitting, jogging, caffeine etc.
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mach5
- Intermediate Member
- Posts: 85
- Joined: Fri Oct 27, 2006 12:48 am
- Location: Canada / China
Re: Best three weeks in years
Yes, I agree with Wise when he said, dont celebrate. But I never took that as dont be happy about it. Just take it all in perspective. You are going to backslide. It happens. But keep things up, and you will continue to move forward more than back. Plus, it helps you remember that things CAN be better, and that is important for recovery in the long run, in order to keep hope and keep working at it. That this is not a degenerative condition that cannot be reversed. That permanent damage is not being done.
"I cried because I had no shoes until I met a man who had no feet". In my self-loathing and pity partys (which happen often), we should remember this. I am happy I have a chance at recovery, vs conditions like MS or Alzheimer, which are much more permanent and always worse with no real way back.
I am much more worse off now than I was a year ago. For me that sucks a lot. But I need to look into a 10 year perspective of my condition. And now is some backslide. But I remember last year, know I can get there, and be even better than that!
"I cried because I had no shoes until I met a man who had no feet". In my self-loathing and pity partys (which happen often), we should remember this. I am happy I have a chance at recovery, vs conditions like MS or Alzheimer, which are much more permanent and always worse with no real way back.
I am much more worse off now than I was a year ago. For me that sucks a lot. But I need to look into a 10 year perspective of my condition. And now is some backslide. But I remember last year, know I can get there, and be even better than that!
Age: 30 | Onset Age:19 | Symptoms: Urethral burning pain (tip of penis), some reddening (inflammation) of the urethral opening intermittently, rectal pain off and on. | Helped By: Avoiding aggravating factors, Wise-Tapes, Mild PT stretches, Benzos, acupuncture and Chinese Herbal medicine | Worsened By: Urination, Excessive Sex, Not enough exercise, Stress, Alcohol, Caffeine, Cold Weather.
Typical Disclaimer: My above post is not medical advice.
Typical Disclaimer: My above post is not medical advice.
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Sherradin
- Veteran
- Posts: 173
- Joined: Thu Nov 12, 2009 11:27 am
- Location: Sydney, Australia
Re: Best three weeks in years
Mach5 you will get there I know it stick with the things that work for you. I found low dose drugs like Lyrica and at the moment Redneck Cocain (Endone, amitriptyline) for my awful sciatica from over doing yoga forward bends this is irritating my pudendal nerve now through cross talk and the anal and pelvic stretching and meditation and re and re reading Full Catastrophe Living help me. And this week I saw the pain management psychologist just for a top up to check in. She reminded me how far I have come. I am back at work. I was out of pain but its a bumpy road and the difference is I feel happy now before I was depressed about my future having no future it seemed despite my current back issues. Hang in there I am off to do the protocol again and have a nap all my kids are doing stuff and so I have that window to grab.
Best wishes
Best wishes
CPP since 2005. Prior to CPP always overly fit and active. I am female. Had two natural births: singleton 1998 and twins 2000. 2002 emergency back surgery - L5S1 herniation. Then recurring UTIs. Usual antibiotic overload. Then constant debilitating burning bladder and reaction to many foods. Australian Pain Clinic 2007. Turning point was Dec 2009 Attended Wise Clinic in Santa Rosa USA.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.
Was helped by strict diet but now eating normally after years of restricted diet - wonderful. Helped by: stretching,relaxation, yoga, trigger point, warm baths. Worsened by: stress, sitting, abdominal or glute exercises and salicylates
Medication: Now off all pain clinic meds no more Endone or Elavil only Lyrica 50 mg as Dec 2010 just reherniated L5S1disc and had discectomy. Its taken years but I feel I am over it.