Female pelvic pain - Botox lidocaine PNE (video)

Male pelvic pain, prostatitis, IC
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webslave
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Female pelvic pain - Botox lidocaine PNE (video)

Post by webslave »




http://abclocal.go.com/wabc/story?secti ... id=7071665

This is about Hibner. He's one of the PNE surgery boosters. I note with interest that he now recommends physical therapy and other treatments before surgery. That's a change in tune for the PNE crowd. :smile:

Note: our website is against PNE surgery.
viewtopic.php?f=8&t=5797
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Jay
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Re: Female pelvic pain - Botox lidocaine PNE (video)

Post by Jay »

Good video. Hibner is, from what I have heard (which isn't a lot), one of the more reasonable doctors still performing these procedures. I'm betting his opinion has evolved somewhat since seeing consistent success with a PT approach, or possibly because of what's happened to those patients of his who get worse after surgery! Rather like Weiss, who I believe no longer refers for decompression.

I don't believe in PNE surgery, but I do see some value in lidocaine and nerve blocks. I can tell you that external use of Lidocaine, in gel and via Lidoderm patches, has been very helpful for my allodynia. I've got some nerve blocks planned (not pudendal) once the money's there.
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Re: Female pelvic pain - Botox lidocaine PNE (video)

Post by ramana »

Hello Jay
Not to hijack this thread - Can you please indicate what kind of nerve blocks are planned for you? And what is the justification for going through them. I am really really confused on what to do so that I can get back to work somehow
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
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Jay
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Re: Female pelvic pain - Botox lidocaine PNE (video)

Post by Jay »

Hi Ramana,

If I ever get the money together, the nerve blocks will be caudal epidural and ganglion impar, with steroid. My PM doctor has had some success with these, but he's emphasized that it would be purely for pain relief, rather than any diagnostic value. After all, the caudal epidural will bathe most of the pelvic nerves, making it impossible to pinpoint specific problem areas.

Success with these blocks is far from guaranteed. He has been very forthright with me about that. They could last for six months, six hours, or not at all. However, the hope is that they'll function well enough for me to return to physical therapy. This is the only reason I've agreed to it, as I do feel that professional PT was helping me prior to a bad turn in my condition.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.