This past weekend for Easter...I took my family to Disneyland...We had a wonderful time...watching my young girl's eyes light up is a memory I will always cherish... Here is why I am sharing this with all of you...
Back in June of 2006 a few months after my onset and two months before I found this site...I went to Disneyland with my family...I was in hell back then. The fiery pain and discomfort distracted me from enjoying a single second with my children. Thinking to myself how can I go on any longer like this. Every wonderful moment being robed from from me by the pelvic myoneuropathy and the vicious cycle of anxiety not knowing what was happening to me.
To sit here as I write this. I remember the hell I was in. To now come full circle and have a special moment given back to me with out the distraction that is UCPPS, is proof that you can recover and enjoy the special moments that life can give us. I am truly grateful for that. I'm not cured of UCPPS, but I have managed this condition successfully through the protocols listed here. I wish all of you the same gift...With hard work, time and dedication, you will achieve this.
Best, Carl...
I wanted to share this story with all of you...
-
carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
I wanted to share this story with all of you...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
-
graeme
- Old Hand
- Posts: 452
- Joined: Fri Jun 17, 2005 3:42 pm
- Location: Birmingham uk
Re: I wanted to share this story with all of you...
Top man Carl posts like that can make all the difference to men who are at their lowest point with this, I was actually out myself today walking with wife and kid and actually stopped and smiled (because you can take it for granted) that I'm having a pain free time at the moment, managing it with a few of my own golden rules, eg no more than once every 2 weeks have an orgasm, no beer etc, also think the warm weather helps 
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me
-
webslave
- Maintenance
- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
Re: I wanted to share this story with all of you...
Well said, Carl. Graeme, warm weather does help. Muscles relax in warmer weather and there is s study linking cold weather to worse symptoms.
Good News! The great ProstaQ is BACK at last! You must try it.
| HAS THIS SITE HELPED YOU? Say Thanks by donating. Keep the Forum alive on the Internet! PayPal link at end of page ↓ Contact me at support at ucpps.men |  |