New Guy here, My STRUGGLE (long story)

Male pelvic pain, prostatitis, IC
gesundheit84
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New Guy here, My STRUGGLE (long story)

Post by gesundheit84 »

Hi all, I am new and just joined the forum. I do have to admit that I have known about this site for almost a year, but never joined until now. To start things off, I am 24 and believe that I have been suffering from chronic prostatitis / chronic pelvic pain syndrome for 15 months. I have not been diagnosed by a physician, but I did see a doctor at a walk in clinic, told him my symptoms, and was prescribed Elavil a few weeks ago. I researched to the best of my ability all the info about chronic prostatitis / chronic pelvic pain syndrome online, and am 95% certain I DO HAVE IT! But I never seem to read about a case like mine. It seems that many people suffer from the IC/bladder form or prostatitis form. Though my symptoms started over 15 months ago like I said above, I have theories that it was the climax of many other factors in my life. I can think back to even my childhood days on this one. :shock:

I recall when I was 8-11 (approx) that I would sometimes randomly experience a sudden painful spasm in my perineum area. It would only last a few seconds go away, and not return for many months or even years. So I never was that concerned about it and plus I was a freak'n kid! It is interesting to note that I suffered from childhood asthma and bad allergies (peanuts, milk, grass, hay, dust). Plus when I started masturbating at 12, I never had problems again. When I was a freshman in high school I seemed to develop out of the blue, pain after passing stools. I thought I had hemorrhoids but the preparation H didn't seem to help, plus the pain was internal. I saw a doctor and they thought I might have a fissure and told me to drink more water, eat fiber. Nothing seemed to help, and the pain after passing stools was brutal. The post-defecation pain in the anal muscles was horrible. I saw a specialist and they performed a colonoscopy, in which they found nothing out of the ordinary besides a few internal hemorrhoids. They advised me to take mineral oil, which I took for about 2 years. It seemed that as long as the stool was not a complete solid form, I could pass a stool without pain afterwards. I did see one more specialist, and he seemed to think that my anal muscle was very tight, and advised me to eat plenty of fiber. I ended up buying high fiber content cereal and ate prunes. From there making sure I got enough fiber just became a part of my life, and that prevented pain while passing stools and the post-pain. But of course I always had the constant worry in my head that what I was experiencing was not normal, and feared that I might develop colon cancer from all the pain, and few instances of bloody stools I experienced. Onto the next chapter..

Sexually I seemed to not have any problems. I did take Lexapro my senior year in high school due to depression. I developed a liking towards strip clubs when I was 18-19. :laugh: I went and got lap dances and was actually quite confident with my sexuality. Back then I would have had the confidence to have sex if the chance were there. I was kind of a loner, typical introvert so I didn't have any game with the ladies or have many friends, but if a cute girl came around I would have had the confidence to have sex with them. Things started to go downhill when I was 20, when out of the blue I seemed to lose control over my ejaculations. Strip clubs which was my place of complete zen, suddenly became a place of anxiety. I couldn't even hold back from ejaculating during the first song! I used to be able to go forever then all of a sudden just the idea of having a girl sit on my lap made me feel like I was going to ejaculate. This really hurt my self-esteem and I became afraid of ever having sex. I do remember practising kegels periodically before this happened and I think this may have contributed to it. I have a complete sexual anxiety now, and am embarrassed at even having the problem. During some brief sexual encounters, I immediately feel like I am going to ejaculate without the girl barely having to touch me and it is super embarrassing.

At age 22 also out of the blue, I experienced my first panic attack. I had one prior case of anxiety at 21 but it was subtle and I couldn't go to sleep because my heart rate was fast. The panic attack was bad! I really thought I was going to die. After that the panic attacks became less severe, but normal social situations seemed to make me worry of experiencing another one, so my heart rate would go up and I would feel a cold sweat type feeling. I was prescribed back on Lexapro to help with them, and the anxiety went away. I started to smoke marijuana for the first time at 21 and continued to do so even during my SSRI therapy. The marijuana actually seemed to help shake me out of my negative thinking styles and helped me out socially. Very rarely did it contribute to a panic attack.

Now for the CPPS. About 15 months ago, I consumed a high dose of a marijuana tea I used to make, and during my high I somehow noticed that my right side of my penis seemed to have a blood flow constriction. I really analyzed why I was having problems with ejaculation, and I theorized it was due to lack of blood flow to the right side of my penis. This realization actually induced a minor anxiety attack :lol: From then on, I concentrated on trying to push flow to the right side of my penis but it always felt strangulated. A few weeks later I started to have the sensation of pressure on my perineum area. I would have to constantly adjust myself (ahem) but there was always this feeling there, that I didn't know why it was there. Stupid me, I thought it would be smart to clench the muscle and do kegels. It seemed to initially help, but I slowly noticed post-ejaculatory pain and inflammation developing. Also I did not have much control over my urine flow, and I would occasionally squirt out more when I thought I was done. I remember vividly last March, I was trying to hold back an ejaculation and squeezed super hard on my pc muscle and when I ejaculated I experienced a lot of pain, and inflammation the rest of the day. This led me to believe that I must have an enlarged prostate or prostatitis. After researching more and more I began to believe I must be suffering from CPPS. I immediately went and bought a Quercetin supplement and a Cernilton + Saw Polmetto Mix. This did seem to have a positive effect in bringing down inflammation after a few days. The strange thing is that after about a week I noticed that the muscle tension seemed to concentrate its energy to my out anus muscles. I felt as if they were trying to relax but couldn't.

Then I started to experience the typical chronic prostatitis / chronic pelvic pain syndrome symptoms. When I sat down it felt like I was sitting on a golf ball. I began to realize that my pelvic muscles were completely wound up and could not relax no matter how hard I tried. The feeling of the recovery process seems just as bad or worse as the initial pathology, because I have become accustomed to subconsciously clenching my pelvic muscles all these years. It has been a very difficult process throughout the last 12 months, and has contributed to generalized anxiety symptoms, and feeling of hopelessness. I never have panic attacks anymore, but for awhile even smoking marijuana made me have anxiety because I super analyzed the muscle tension, and thought "what if I die from this?", and the feeling of the muscles unwinding and spasming made me frightened. I have been taking quercetin, and did the Broccoli treatment a few times that is talked about on this site. Over the year's time my muscles have been unwinding and seem to be progressively relaxing. Currently my perineum is still in a spasm but seems to be slowly unwinding. The feeling of them unwinding is very bizarre though. Seems like the muscle tension in my anal and pelvic muscles is connected with the sense of strangulation to the right side of my penis . I have been doing some yoga pelvic stretches and that has progressed things even further, as well as taking the tricyclic anti-depressant Elavil. I would say that I have seen the best improvements during the first quarter of 2009. The combination of yoga stretches, running (seems to help unwind), Elavil, Cannabis, and quercetin have been very positive. I have noticed my whole outlook on life is even changing. I am becoming more positive, confident, and in touch with my body/mind. But I am still scared of having sex, because I still don't have complete control over ejaculations. Improvement compared to how I was since 2005-2008, but not as I was at 18/19. I feel like there is hope.

I just wonder if there are any other chronic prostatitis / chronic pelvic pain syndrome sufferers that have the pathology affecting them more in a sexual way, than a bladder/urine form. Seems like the only way I can have sex is when the muscles finally relax, but as of now it is hindering me from seeking sexual relationships.
Age: 29 | Onset Age: 23 | Symptoms: inflammation of perineum, outer/inner anal trigger points, right side of penis feels strangulated, constant spasm in perineum, tightness in lower abdominal area and pelvis mound. Update: tightness on ankle on right foot, tight hamstrings, tightness in lower back, tingling in hands, trigger points near ribs, chest, and back. Tightness in jaw, sinuses, throat. | Helped By: Quercetin, Elavil, Running, Yoga, Sitz Baths, Cannabis (unpredictable: sometimes helps sometimes worsens) | Worsened By: Sitting, Kegels, Anxiety, Rushed masturbation, straining on toilet, biking, alcohol.
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carld
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Re: New Guy here, My STRUGGLE (long story)

Post by carld »

Welcome... read my starter signature bellow...

Your symptoms do not seem unusual... :smile:
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
ryguyy26
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Re: New Guy here, My STRUGGLE (long story)

Post by ryguyy26 »

I feel you man, I'm also having a lot of sexual issues not bladder issues. I've lost my libido and ejaculation does not feel very good for me anymore. I almost don't feel like a man anymore. I'm 23 and I can't use my penis the way I want to. It's awful and very depressing.
Age: 23 | Onset Age: 22 | Symptoms: pain after ejaculating, pain/tightness in rectum and pelvic area, throbbing/tingling sensation in prostate | Helped By: broccoli juice, walking, stretching | Worsened By: weightlifting, extreme exercise, frequent ejaculation
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Re: New Guy here, My STRUGGLE (long story)

Post by webslave »

Be careful of cannabis / marijuana. Many men have reported that it started their chronic prostatitis / chronic pelvic pain syndrome and/or made it worse. YMMV.
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aeocaravaggio
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Re: New Guy here, My STRUGGLE (long story)

Post by aeocaravaggio »

Hi all I'm new here too, its my first day. Gesundheit84 I am a young guy like you (22) and many of the symptoms you are having are EXACTLY the same as mine.
I do remember practising kegels periodically before this happened and I think this may have contributed to it. I have a complete sexual anxiety now, and am embarrassed at even having the problem. During some brief sexual encounters, I immediately feel like I am going to ejaculate without the girl barely having to touch me and it is super embarrassing.
PC muscle exercises as well as stopping and starting the flow of urination many many many times almost EVERY time I went to take a piss were the reasons I got my prostate issues.

PC exercises are crap as far as I am concerned, there is a lot of evidence that flexing them often and hard can actually cause premature ejaculation and so forth. PC muscle exercises did not get me male multiple orgasms as I was looking for, but instead I wound up with random pc muscle spasms at times.

Now whenever I have any sexual activity my pc muscles will involuntarily contract. My orgasms feel like nothing most of the time, and I come prematurely.

Every time I get a girlfriend I am almost always aroused around her and usually if I touch her for over and hour or so (even if its just holding hands) I will leak semen in my urine. As far as relationships go its been real tough for me as well. I got my disease when I was 19 and because of this all the relationships I have had could not involve any sexual activity. Right now my relationship does not even involve ANY physical touching whatsoever.

I remember vividly last March, I was trying to hold back an ejaculation and squeezed super hard on my pc muscle and when I ejaculated I experienced a lot of pain, and inflammation the rest of the day. This led me to believe that I must have an enlarged prostate or prostatitis. After researching more and more I began to believe I must be suffering from CPPS.
ya I got most of my prostate problems IN ONE DAY after over 2 hours of masturbating without ejaculation using EXTREMELY HARD PC muscle exercises... ... ... . . Hmm I think were on to something here

another symptom I have is white cloudy urine in the colder months of the year I think I somehow screwed up my sphincters with pc muscle exercises, now semen or prostate fluid can leak in my urine and urine could also possibly leak into my prostate and such? I don't know
Age: 25 | Onset Age: 19 | Symptoms: cloudy white urine (most frequently in the colder months of the year), pain in testicles (very infrequent and mild nowdays, used to be 24/7 and bad for like at least 1 1/2 years), pain in lower back (now virtually nonexistant, used to be 24/7), muscle spasm in perineum area (during sexual activity, extreme stress/injury, sneezing, and when changing position when lying down), dribbling after urination, weak urine stream, a feeling of not emptying completely after urination, sometimes hesitancy starting, golfball feeling in rectum at times (usually relieved/lessened by defecation), premature ejaculation, little pleasure when ejaculating too quickly from masturbating, weak erections most of the time (and even if they have some strength sometimes, usually it goes limp after a few minutes), white particulate matter in semen most of time, | Helped By: Relaxation | Worsened By: ejaculation, or any kind of sexual activity, especially prolonged arousal without touching my genitals, spicy foods, hard excercises, prolonged sitting
gesundheit84
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Re: New Guy here, My STRUGGLE (long story)

Post by gesundheit84 »

PC muscle exercises as well as stopping and starting the flow of urination many many many times almost EVERY time I went to take a piss were the reasons I got my prostate issues.

PC exercises are crap as far as I am concerned, there is a lot of evidence that flexing them often and hard can actually cause premature ejaculation and so forth. PC muscle exercises did not get me male multiple orgasms as I was looking for, but instead I wound up with random pc muscle spasms at times.

Now whenever I have any sexual activity my pc muscles will involuntarily contract. My orgasms feel like nothing most of the time, and I come prematurely.

Every time I get a girlfriend I am almost always aroused around her and usually if I touch her for over and hour or so (even if its just holding hands) I will leak semen in my urine. As far as relationships go its been real tough for me as well. I got my disease when I was 19 and because of this all the relationships I have had could not involve any sexual activity. Right now my relationship does not even involve ANY physical touching whatsoever.
Wow your story seems very like mine. I was 19 at the time I started doing PC muscle exercises. Before that I was fine sexually (high libido, no premature ejaculation, and had strong erections). I did have a leaky penis already but it didn't seem to affect me in a negative way. At 20 I started to experience unexplainable premature ejaculation. Just out of the blue the feeling of having a lady's soft body against my own seems to make me tense up and have a premature ejaculation. No build up of pleasure or anything, just a quick orgasm. That feeling really sucked. I still did not have the classic chronic prostatitis / chronic pelvic pain syndrome symptoms until nearly 3 years later. So from 20-23, I probably was making things much worse by unknowingly tensing my pelvic areas more and more until they couldn't take it anymore and the initially pathology started.

Yes when it comes to my relationships with women, I also become extremely aroused JUST by being around them. Things such as holding hands, touching her legs, etc, will make me produce a lot of precum. If she is in my lap I can easily have that feeling of no return, just from having the feeling of her soft tush on me. I also seem to even "think" in my head in an over analytical way, i.e. "wow i can't believe her ass, legs, feel so soft, how am I going to control from busting?"


Yes I agree that it is interesting that it really only took 1 DAY to start my whole chronic prostatitis / chronic pelvic pain syndrome experience. But like I said there was much foreshadowing in my previous years of an upcoming pathology. But just that one day was the trigger that threw everything into chaos.
Age: 29 | Onset Age: 23 | Symptoms: inflammation of perineum, outer/inner anal trigger points, right side of penis feels strangulated, constant spasm in perineum, tightness in lower abdominal area and pelvis mound. Update: tightness on ankle on right foot, tight hamstrings, tightness in lower back, tingling in hands, trigger points near ribs, chest, and back. Tightness in jaw, sinuses, throat. | Helped By: Quercetin, Elavil, Running, Yoga, Sitz Baths, Cannabis (unpredictable: sometimes helps sometimes worsens) | Worsened By: Sitting, Kegels, Anxiety, Rushed masturbation, straining on toilet, biking, alcohol.
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Re: New Guy here, My STRUGGLE (long story)

Post by rysocal »

I have pretty similar symptoms to what you have. Here is what I have done to prevent premature ejaculation.

1) Wear a condom, it helps lessen the sensation some.
2) When you first get inside her, don't thrust like a porn star. Take some deep breaths in and out of your nose and go SLOW. Stop moving if you have to and breathe. You may even want to pull out right away, breathe deep for a minute and let the orgasmic sensation pass. (I also put Lavender oil on my pillow to help me relax)
3) Get in the missionary position on top of her. If you feel like your going to ejaculate, pull out, breath and rest. This position is easiest to pull out in. Just make sure you are not clenching your pelvic muscles when you are in this position. I think of it as a rolling motion, not like a porn style pounding.
4) Relax and enjoy it. I find long passionate kisses help me not focus on precumming too but that could be just me.

It may take a while but your stamina will improve. I still have premature ejaculations occasionally, but they are a lot less frequent. The strange thing is when I have sex the next morning, I have the opposite problem. I have a lack of sensation and even sometimes lose my erection... strange.

Regarding the tight pelvic muscles and erection quality. There is definitely a relation. I find that when my pelvic muscles are tight, my morning erections are weak. So you may want to loosen yourself up with some internal work and stretches the day before or the day of. It could help with that strangulation sensation you have and get the blood flow back in that area. I kind of feel like a sexual athlete sometimes with all this prep work.

Hope this Helps
Ry
Age:30 | Onset Age:27 Symptoms: Golfball sensation, cramping in the rectum, inflamed/tight levator ani, occasional frequent urination, mild constipation, occasional burning testicular pain, IBS. Helped By: Exercise, Stretching (Yoga) specifically a deep lunge or pidgeon, running, beer, alcohol, relaxing,deep breathing Worsened By: Sitting for long periods (even w/ doughnut cushion), Stress, tight pants, caffeine, coffee in particular Tests: Pelvic MRI, Colonoscopy, Anal Monometry, STD, Pudendal Nerve Block. Botox into obturator internis, levator ani, and piriformis. Meds Xanax, Phenibut (The phenibut works awesome, better than the Xanax in my opinion)
gesundheit84
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Re: New Guy here, My STRUGGLE (long story)

Post by gesundheit84 »

Cool, thanks for the tips rysocal. I live in socal too. For starters I took your advice about breathing through my nose. Not really regarding sex, but just in general. Throughout my life I have been a chronic mouth breather due to allergies and having nasal polyps which prevent normal nose breathing. I have been getting allergy shots and my nose symptoms seem to be improving. So I can breathe through my nose now. I think my chronic mouth breathing my have caused my lower abdominal muscles to be tight. Now when I do yoga and breathe through my nose I feel like I am penetrating more trigger points.
Age: 29 | Onset Age: 23 | Symptoms: inflammation of perineum, outer/inner anal trigger points, right side of penis feels strangulated, constant spasm in perineum, tightness in lower abdominal area and pelvis mound. Update: tightness on ankle on right foot, tight hamstrings, tightness in lower back, tingling in hands, trigger points near ribs, chest, and back. Tightness in jaw, sinuses, throat. | Helped By: Quercetin, Elavil, Running, Yoga, Sitz Baths, Cannabis (unpredictable: sometimes helps sometimes worsens) | Worsened By: Sitting, Kegels, Anxiety, Rushed masturbation, straining on toilet, biking, alcohol.
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Re: New Guy here, My STRUGGLE (long story)

Post by Hacksquat »

another symptom I have is white cloudy urine in the colder months of the year I think I somehow screwed up my sphincters with pc muscle exercises, now semen or prostate fluid can leak in my urine and urine could also possibly leak into my prostate and such? I don't know
I have prostatic fluid in my urine as well. I think it has more to do with the prostate being inflamed and want to get rid of irritatives, making it squirt them out. Can also be like Graeme said in my thread, that the tightened muscle puts pressure on the prostate and forces fluid out.
Age: 41 Onset Age: 27 (dec 2006)Symptoms: Urethral burning, muscular pain and soreness around the base of my penis, perineum and muscles around my sitbones. Frequency, urgency, dribbling, general discomfort in the pelvis, decreased libido, tight levator ani (according to PT) and occasional levator- and sphincter spasms. Sometimes ache in penis, especially when erected. Latest addition is testicular pain (and epididymis). Also excretions of clear (prostatic?) fluid throughout the day as well as secretion in my urine. Varying power of urine stream. Redness on tip of penis and ballsack.Helped By: Positive thinking and controlling anxiety Worsened By: Stress, lack of sleep, heavy training (especially abs and legs), catastrophizing over this condition
gesundheit84
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Pain outside of pelvis, i.e. hands, feet

Post by gesundheit84 »

I don't know if anyone else has experienced this but here goes. My onset of chronic prostatitis / chronic pelvic pain syndrome occurred about 2 years ago, but I was having many problems earlier than that foreshadowing it. I have had bowel movement problems as far back to when I was 15, nearly 10 years ago, I am 25 now. Lots of constipation, fissures, hemorrhoids, and post BM pain. The doctors did not know what was wrong with me and just told me to add fiber and water to my diet, and that my rectal area was just tight. With the fiber I was fine as long as I took it, but I would literally only need 1 or 2 days of a slip up, and my bowel movement would then cause a fissure and a lot of pain afterwards.

Fast forward 5 years and all of a sudden I started to seemingly out of the blue having severe premature ejaculation problems. It got so bad that just having a girl sit on my lap made me feel like I was going to blow. I felt like I had no control over my ejaculations anymore and I had that feeling of no return before anything even happened!

Around the same time I started to have a lot of pain in my hands, wrists, and tendons in my forearm. Mainly computer use triggered it, but it got so bad that I couldn't play video games anymore, and it was hard to even write or take notes. It was in itself my first experience with chronic pain, comparable to my chronic prostatitis / chronic pelvic pain syndrome now. I felt the pain everyday from just doing things like driving, writing a short note, etc. Again the doctors did not know what was wrong with me. One just described me pills for arthritis, but I had a bad reaction with it and vomited my 2nd day on it. I took things into my own hands :laugh: and went to herbal stores to try arnica cream, glucosamine, and anything else that would help. I got some relief but I think some of it was just a placebo effect.

And how is this related to CPPS? Well after my onset of chronic prostatitis / chronic pelvic pain syndrome (perineum congestion, rectal spasms, poor urinary flow control, & continued premature ejaculation) and during my journey towards healing, I have noticed that my hand pain has been going away. Initially the spasms happening in my pelvic area seemed to radiate (and still does) to my hands, especially fingers. I also have some pain radiating to my right foot currently. I haven't heard anyone else talk about this, but I really believe there is a direct correlation. I'm just happy that after nearly 5 years, I can use my hands comfortably again, though the pain is still there a little bit.
Age: 29 | Onset Age: 23 | Symptoms: inflammation of perineum, outer/inner anal trigger points, right side of penis feels strangulated, constant spasm in perineum, tightness in lower abdominal area and pelvis mound. Update: tightness on ankle on right foot, tight hamstrings, tightness in lower back, tingling in hands, trigger points near ribs, chest, and back. Tightness in jaw, sinuses, throat. | Helped By: Quercetin, Elavil, Running, Yoga, Sitz Baths, Cannabis (unpredictable: sometimes helps sometimes worsens) | Worsened By: Sitting, Kegels, Anxiety, Rushed masturbation, straining on toilet, biking, alcohol.
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Re: Pain outside of pelvis, i.e. hands, feet

Post by gmccormack »

gsund,

CPPS is a central nervous system disorder, so in theory neuropathy in hands in feet is definitely possible. When pain was bad I had tingling in my feet and hands, I thought classic signs of neuropathy. Saw a neurologist who dismissed it because the feet/hand pain only flared up when the pain was the worst.

Regardless, even if the neuro did agree with me on everything, there was nothing she could do. There are a few meds out there for diabetic neuropathy, Cymbalta (SNRI)has shown promise, I was on it and it didn't do anythign for me just kept me up late. Once you have this neuronal windup it is difficult to treat, many other syndromes have this feature and scientists are recently looking further into this phenomenon, so hopefully in the future there will be a well working med for it someday....
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we.the.hulk
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Re: Pain outside of pelvis, i.e. hands, feet

Post by we.the.hulk »

I've been getting this strange fire - like pain in my right foot. Comes and goes. Not sure its synched up with my other symptoms or not.

Gmcc -- how are you so well versed in all of this? Appears that you've had this condition for just more than a year. Although, I guess, if you're like me you are seeking all avenues of relief. You seem pretty into the science side of this. Is that your field? Apologies if you've mentioned this in another post.
Age: 40 | Onset Age: 40 | Symptoms: burning urethra at first / now just urgency/frequency. tingle at penis tip inside urethra. | Helped By: running / stretching / good nutrition / vitamins /urelle /Xanax | Worsened By: stress/anxiety
extreme3
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Re: Pain outside of pelvis, i.e. hands, feet

Post by extreme3 »

I also experience the same symptoms. After 2 years with CPPS, I've developed neuropathic type pain in both feet. Sometimes it starts in the right foot, sometimes random but generally gets worse throughout the day (much like the pelvic pain). Honestly, it feels like the pain has moved more to my feet now while my pelvic pain is abating (or maybe I just pay more attention to my feet these days).

I haven't bothered seeing a neurologist yet, and as the previous poster said, there's not much they can do about it. I plan to see a PT next month so I'm hoping I can get some relief from this. I WILL get better!
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
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Re: Pain outside of pelvis, i.e. hands, feet

Post by d_man »

I believe I read somewhere that it could be associated with a trigger points in the rib cage, around the abs (burning feet). Don't quote me ( could be wrong, I've read tons of stuff now so I could be mixed up) but I believe it was in the success folder. Might want to try to look it up.
33 M. Healthy Diagnosed Jan 11, 2010. 28 Days Cipro. Main prob was 24/4 Penis burn on right side of shaft and some pain between scrotum and anus. Peeing like an old man. Did a week of Broccoli treatment, and Aleve (naproxen) and now started as of Feb 18, 2010 Prosta-Q, D-Mannose and waiting for my Swedish flower pollen.
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Re: Pain outside of pelvis, i.e. hands, feet

Post by Jay »

Hi,

For what it's worth, pain in the feet is certainly not unheard of here on the boards. This is sometimes due to the cross-talk phenomenon. The pelvis is a very crowded place, and the nerves which travel down your legs (and elsewhere) sometimes pass near other nerves which are irritated. When this happens, the pain signal can "cross over" to a neighboring nerve and continue along that course. Thus, pain in a distant place.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
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