Levator Ani Syndrome is my #1 problem and have had it for 10+ years. PT only seemed to make things worse. I've had injections, and all that as well.
I was just curious if any of you have tried Interstim for this? Any luck?
I need something to break that pain cycle. It is so wound up, that it just can't seem to be broken. It is a constant knot and spasm, and when it flairs up...it is brutal.
Interstim for rectal spasm/tightness?
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SteveMalk
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Interstim for rectal spasm/tightness?
Age: 33 | Onset Age: 23 | Symptoms: Rectal spasm, tightness. Levator Ani Syndrome. | Helped By: TMS Approach, Exercise, warm baths, less stress, not thinking about it...and most of all, not fearing it! | Worsened By: Lots of sitting, lots of stress, lots of worrying.
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webslave
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Re: Interstim for rectal spasm/tightness?
Here's one negative report:SteveMalk wrote:I was just curious if any of you have tried Interstim for this? Any luck?
viewtopic.php?f=37&t=2318&p=11266&hilit ... tim#p11266
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kevin
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Re: Interstim for rectal spasm/tightness?
I haven't heard of Interstim being used for levator ani syndrome. Interstim is generally not used for pain, but rather for (a) urinary frequency, (b) incontinence, or (c) urinary retention. I tried it; it didn't work for me.SteveMalk wrote:Levator Ani Syndrome is my #1 problem and have had it for 10+ years. PT only seemed to make things worse. I've had injections, and all that as well.
I was just curious if any of you have tried Interstim for this? Any luck?
I need something to break that pain cycle. It is so wound up, that it just can't seem to be broken. It is a constant knot and spasm, and when it flairs up...it is brutal.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.
Not medical advice. Consult your doctor.
Not medical advice. Consult your doctor.
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SteveMalk
- Intermediate Member
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Re: Interstim for rectal spasm/tightness?
Did you have the trial or the full blown implant put in?
I've actually read online that people have done this for levator ani syndrome. It makes sense because the nerves that supply the rectum are from the same S3 root.
I've actually read online that people have done this for levator ani syndrome. It makes sense because the nerves that supply the rectum are from the same S3 root.
Age: 33 | Onset Age: 23 | Symptoms: Rectal spasm, tightness. Levator Ani Syndrome. | Helped By: TMS Approach, Exercise, warm baths, less stress, not thinking about it...and most of all, not fearing it! | Worsened By: Lots of sitting, lots of stress, lots of worrying.
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ramana
- Old Hand
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Re: Interstim for rectal spasm/tightness?
Hi Steve
Can you please post the link where you learnt about Interstim being used for levator ani syndrome? My doc wanted to try that but then there was not enough evidence (he claims having relieved one patient but he had pelvic pain because of an accident)
Can you please post the link where you learnt about Interstim being used for levator ani syndrome? My doc wanted to try that but then there was not enough evidence (he claims having relieved one patient but he had pelvic pain because of an accident)
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;