Hey all. Its been quite a while.
Just wanted to update on my status. I was one of the ones who had serious wheat food intolerances like Webslave.
Anyways, staying on a cocktail of cystoprotec (quercetin), Singulair and Vitamin B, and avoiding wheat, I have been pretty much symptom free for sometime. Although it took me four years to get here.
I can always tell if I accidentally have wheat because I simply crap like wet mud. Sorry for the visual.
Singulair was the final straw. For some reason other antihistamines helped but this one REALLY helped. I know it uses a different mechanism. Problem is it is VERY expensive, like $125 for 30 pills.
I still try to do nightly stretches and have therapy once a month but more as a preventative measure than anything else.
Many thanks to all for the help which got me here today.
Cured? Damn near close.
There is hope for the hopeless.
Much better, so long time no see
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Richie
- Senior Veteran
- Posts: 298
- Joined: Wed Sep 29, 2004 1:27 am
- Location: SW Florida
Much better, so long time no see
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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Jay
- Retired Mod
- Posts: 745
- Joined: Wed Mar 05, 2008 4:28 pm
- Location: Florida
Re: Much better, so long time no see
Hi Richie,
Great news! Thanks for posting an update on your case.
As well, thanks for recommending your physical therapist to me. While I didn't end up seeing him (going to someone just a smidge closer), that guidance was appreciated back when I was in the dark about treatment options in our state
Great news! Thanks for posting an update on your case.
As well, thanks for recommending your physical therapist to me. While I didn't end up seeing him (going to someone just a smidge closer), that guidance was appreciated back when I was in the dark about treatment options in our state
I am not a physician. This is not medical advice. Consult your doctor!
Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
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webslave
- Maintenance
- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
Re: Much better, so long time no see
Richie, congratulations on your recovery and thanks for once again confirming my hypothesis. It is crystal clear that I and a few other men have severe problems with gluten, especially wheat gluten, and that this problem is a major contributor to our condition.
It is frustrating to note that there are NO STUDIES that have looked at this relationship, ever.
It is frustrating to note that there are NO STUDIES that have looked at this relationship, ever.
Good News! The great ProstaQ is BACK at last! You must try it.
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carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
Re: Much better, so long time no see
Good news Richie...Glad to read this success.. 
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.