anyone tried neurobiofeedback

Male pelvic pain, prostatitis, IC
ramana
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anyone tried neurobiofeedback

Post by ramana »

I have been doing paradoxical relaxation since July (except 1 month when I got multiple infections and frustrated with life). It does help in reducing low levels of pain but at higher levels, nothing helps. I was told that neurobiofeedback may help in coping with the pain if not to remove it. Wondering if anyone tried it. Have made an appointment but the psychologist told me at the end of the conversation that she has had not much experience with pain patients.She is advising me to go for quantitative eeg first before doing neurobiofeedback. New stuff to me. Any inputs will be useful
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
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webslave
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Re: anyone tried neurobiofeedback

Post by webslave »

Search the forum for "neurofeedback".

Also read http://en.wikipedia.org/wiki/Neurofeedback
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carld
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Re: anyone tried neurobiofeedback

Post by carld »

I have been doing neurofeedback for 2 years to work on anxiety and ADHD and I have found it very helpful in that way by training me to be relaxed. I have not found it directly helpful in reducing my symptoms of CP/CPPS. But I think it has helped me indirectly by helping control my anxiety and adhd which as we know can cause stress and muscle tension, which can cause TP's to flair and feed my pelvic myoneuropathy. So for me, it has been part of my total protocol.


Regards, Carl...
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I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.