Success Stories
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garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Success Stories
The success stories board is looking a bit depressing with no major updates since March, which is a bit disheartening. Come on, hasnt anyone got any good news to post on there?
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
The problem is that most people don't post success stories. Not because they don't get better - they do - but because when they get better they tend to disappear off back into normality. Faceinthecrowd and DJ Smitty are a couple of examples although there are more.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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carld
- Retired Mod
- Posts: 1554
- Joined: Mon Aug 21, 2006 11:49 pm
- Location: Newbury Park
I have improved up to 95% better from my onset. The reason why I don't post in success is because I feel no need. I'm getting better and I'm here to help other Men going through this. This is a life long commitment to taking better care of my self and that alone is a success.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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HelpADude
- Experienced
- Posts: 111
- Joined: Tue Jun 06, 2006 3:05 am
- Location: Northwestern USA
Hey Sleeper, I remember you joined the board about the same time I did.Sleeper Service wrote:The problem is that most people don't post success stories. Not because they don't get better - they do - but because when they get better they tend to disappear off back into normality. Faceinthecrowd and DJ Smitty are a couple of examples although there are more.
I'm about 98% better about all the time now. When I get a chance I'll post my story but I really don't think about this on a daily basis anymore.
Age: 38 Onset: April 2006 Current | Symptoms: Update, doctor found no hemorroid but pruritus ani. Was doing very good for a while but lately are having more flares. | Symptoms: raw, irrated feeling, spams in balls and bladder area. Drugs: Omega 3 oil only and just started Prosta-Q in Feb 2008, currently not taking Prosta-Q. Treatment: relaxation, AHIP stretches, the book EVERYDAY ZEN, Worsened by: Coffee (not 100% sure)
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elitynski
- Old Hand
- Posts: 322
- Joined: Sun Jul 15, 2007 8:59 pm
- Location: Minnesota
Success Stories
I tried to post under success stories but it was limited to postings by Moderators only.
This could be a reason that no success stories are being posted.
This could be a reason that no success stories are being posted.
Age: 49 | Onset Age: 43 | Symptoms: Some overactive bladder symptoms | Helped By: Hot Baths, relaxation, a little valium, exercise / weight loss | Worsened By: stress, possibly diet, possibly...(fill in the blank)
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webslave
- Maintenance
- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
We move them there if they are thorough and interesting. Someone posting a short note saying that they are cured or 95% better won't get moved there. If you take the time to make a full posting, it'll get moved there. 
Good News! The great ProstaQ is BACK at last! You must try it.
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elitynski
- Old Hand
- Posts: 322
- Joined: Sun Jul 15, 2007 8:59 pm
- Location: Minnesota
Success Stories
That was really good to know - do you think you could put a sticky at the top of the forum that lets people to know to READ FIRST before they attempt to post. This way they would know to post their success story in the general area.
I do agree you really want TRUE success stories and not just the I'm getting better but I'm not there yet stories.
That would be super-helpful. Thanks.
I do agree you really want TRUE success stories and not just the I'm getting better but I'm not there yet stories.
That would be super-helpful. Thanks.
Age: 49 | Onset Age: 43 | Symptoms: Some overactive bladder symptoms | Helped By: Hot Baths, relaxation, a little valium, exercise / weight loss | Worsened By: stress, possibly diet, possibly...(fill in the blank)
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mach5
- Intermediate Member
- Posts: 85
- Joined: Fri Oct 27, 2006 12:48 am
- Location: Canada / China
Yes!
BuYa! Got moved on the success forum. Now that is worth celebrating! 
Many people here would kill for 50% better, and I have only had this for about 6 years or so. I have met people with this for 20 years or more.
My friend. Maybe you dont want to hear this, but for many of us 50% better is success. Its not a pretty thought for some, but sometimes you need to accept where you are. Even if that is 0%. You dont need to like it, you dont need to give in, you just need to accept it. I know it sounds like a load of --word cencored here-- but that his been the advice given to me, and my advice being passed on.
(sound fimilar to anyone?)
PS Also in the same vien. I need to be able to accept 50%.
(and I do!)
Many people here would kill for 50% better, and I have only had this for about 6 years or so. I have met people with this for 20 years or more.
My friend. Maybe you dont want to hear this, but for many of us 50% better is success. Its not a pretty thought for some, but sometimes you need to accept where you are. Even if that is 0%. You dont need to like it, you dont need to give in, you just need to accept it. I know it sounds like a load of --word cencored here-- but that his been the advice given to me, and my advice being passed on.
(sound fimilar to anyone?)
PS Also in the same vien. I need to be able to accept 50%.
(and I do!)Age: 30 | Onset Age:19 | Symptoms: Urethral burning pain (tip of penis), some reddening (inflammation) of the urethral opening intermittently, rectal pain off and on. | Helped By: Avoiding aggravating factors, Wise-Tapes, Mild PT stretches, Benzos, acupuncture and Chinese Herbal medicine | Worsened By: Urination, Excessive Sex, Not enough exercise, Stress, Alcohol, Caffeine, Cold Weather.
Typical Disclaimer: My above post is not medical advice.
Typical Disclaimer: My above post is not medical advice.
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
I think it depends. Why accept something until you can't get any better?
mach5 - you mention that you have about a 50% improvement after recently undergoing SP. Wold you not expect further improvements?
As for me, I'm about 60% better but want more. That's just me.
mach5 - you mention that you have about a 50% improvement after recently undergoing SP. Wold you not expect further improvements?
As for me, I'm about 60% better but want more. That's just me.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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webslave
- Maintenance
- Posts: 11432
- Joined: Wed Oct 30, 2002 3:18 pm
- Location: Please give your location so we can help better
Nobody gets better overnight. You need to look for a steady improvement over time. I continued to improve for ten years! But I never used any trigger point treatments, just the rest and relaxation and anxiety-avoidance approach, with dietary changes. It may have been faster if I'd treated it properly.
Good News! The great ProstaQ is BACK at last! You must try it.
| HAS THIS SITE HELPED YOU? Say Thanks by donating. Keep the Forum alive on the Internet! PayPal link at end of page ↓ Contact me at support at ucpps.men | |
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mach5
- Intermediate Member
- Posts: 85
- Joined: Fri Oct 27, 2006 12:48 am
- Location: Canada / China
Acceptance
I didn't say you had to think things were never going to get betterbut sometimes you need to accept where you are. Even if that is 0%. You don't need to like it, you don't need to give in, you just need to accept it.
Yes, it would be nice to be 55% percent better. But I am glad I am where I am too. And that, in itself, is success.
Age: 30 | Onset Age:19 | Symptoms: Urethral burning pain (tip of penis), some reddening (inflammation) of the urethral opening intermittently, rectal pain off and on. | Helped By: Avoiding aggravating factors, Wise-Tapes, Mild PT stretches, Benzos, acupuncture and Chinese Herbal medicine | Worsened By: Urination, Excessive Sex, Not enough exercise, Stress, Alcohol, Caffeine, Cold Weather.
Typical Disclaimer: My above post is not medical advice.
Typical Disclaimer: My above post is not medical advice.
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland
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GP2
- Old Hand
- Posts: 394
- Joined: Tue May 02, 2006 10:47 am
- Location: England, UK
If it helps I've gone 6 weeks now virtually pain free and thats in a new stressful job. Time and doing the irght things has been the key I believe as has dealing with anxiety and consistent M2M relaxation
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Rufus
- Senior Veteran
- Posts: 259
- Joined: Tue Oct 24, 2006 9:14 pm
In a way I feel as though I'm being a bit unfair to the board in that I've been feeling a lot better lately but feel reporting a concrete success is too premature.
I know, I said concrete since my ultimate goal is not looking at partial recovery but total recovery which may not be realistic but I believe one day I will be totally fine.
I will say that more I practice the SP, the more I'm starting to believe it works.
I know, I said concrete since my ultimate goal is not looking at partial recovery but total recovery which may not be realistic but I believe one day I will be totally fine.
I will say that more I practice the SP, the more I'm starting to believe it works.
Age:37 | Onset Age: 35 | Symptoms: pain in testicles that comes and goes that also switches sides-trying to find a pattern as to "why" this happens/Rectal Burn at the 6 O'clock position at my anus which tends to flare around the periphery of my anus typically after defication but no perineum pain-no "golf ball" pain. Pain in testicles worsens as I sit but not always...Pain is not always present but depresses me. Pain used to be at a very high level but has subsided in time to a low level but has not gone away. Pain used to flare after sex but not as much as before although it still like playing russian roulette./
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
/Lack of SleepHelped By: I haven't found anything that has helped to my knowledge. Tried many many sessions of PT, accupuncture and chiropractic care but still have not found steady relief that takes me back to a pre CPPS state.
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Sleeper Service
- Sage
- Posts: 617
- Joined: Tue May 02, 2006 3:49 pm
- Location: Edinburgh, Scotland