Given the number of suffers around the world, why doesnt the Stanford Team (if they read this) consider going on tour so that they can help more people? Many people cannot afford and may not be physically able to fly over to the states to see them, so why not consider flying to the Uk for example for a few weeks so they can see people, then on to other European countries.
Just a thought....
Stanford Team on Tour?
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garyholc
- Old Hand
- Posts: 408
- Joined: Sun Jun 24, 2007 12:11 am
- Location: Cardiff, South Wales UK
Stanford Team on Tour?
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
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mach5
- Intermediate Member
- Posts: 85
- Joined: Fri Oct 27, 2006 12:48 am
- Location: Canada / China
Expensive
I think that would be a pretty expensive proposition for them.
For the size of facilities they would need, the amount of people going, the things they would need to bring/ transport. Then the things they would need to rent.
IMHO they would have to charge a whole lot more to make that possible. Plus, as it is, it seems like they are always booked to capacity already. They are already helping as many people as they can.
Running a week long training "camp" as it is, is very very tiring. Esp for the physio people who do an amazing job. They call it the marathon week because it takes so much out of them. For them to do it more than once a month, I'm not sure that is possible.
Also, going to california in the little town that it is in, really I think has become part of the treatment. You become fairly cut off from the outside world, as it should be. Your cell phones dont work, there is less computer access, you are away from friends, family and work. This I found was a very important part of what we were doing. Getting yourself out of your normal enviroment.
What would be best would be to train other people to do what they do. But again, this is a huge under taking. It is not easy to do. And no one would be able to be as good as them. They just have so much darn experience doing it. I know they have talked of trying to train others, but it is difficult and often doesnt work out.
Lastly, they are not getting rich doing this. I think they are doing this because they are helping people, not making money. When we were there, we all debated the costs etc. But when you really calculate it all out, and the amount of work that goes into doing this. And the amount of years it took them to get where they are....... its pretty crazy.
Just my thoughts.
If you have this, and you are bad. Just go. Take the drugs you need to to get onto the plane. And go.
As I mentioned before, on my first day, some people almost had to be carried in the door because they were in so much pain. But when they left, they walked out under their own power, and had a big smile on their face. The Stanford team are not perfect, but they are damn good at what they do. And very honest about what they can and cannot do.
For the size of facilities they would need, the amount of people going, the things they would need to bring/ transport. Then the things they would need to rent.
IMHO they would have to charge a whole lot more to make that possible. Plus, as it is, it seems like they are always booked to capacity already. They are already helping as many people as they can.
Running a week long training "camp" as it is, is very very tiring. Esp for the physio people who do an amazing job. They call it the marathon week because it takes so much out of them. For them to do it more than once a month, I'm not sure that is possible.
Also, going to california in the little town that it is in, really I think has become part of the treatment. You become fairly cut off from the outside world, as it should be. Your cell phones dont work, there is less computer access, you are away from friends, family and work. This I found was a very important part of what we were doing. Getting yourself out of your normal enviroment.
What would be best would be to train other people to do what they do. But again, this is a huge under taking. It is not easy to do. And no one would be able to be as good as them. They just have so much darn experience doing it. I know they have talked of trying to train others, but it is difficult and often doesnt work out.
Lastly, they are not getting rich doing this. I think they are doing this because they are helping people, not making money. When we were there, we all debated the costs etc. But when you really calculate it all out, and the amount of work that goes into doing this. And the amount of years it took them to get where they are....... its pretty crazy.
Just my thoughts.
If you have this, and you are bad. Just go. Take the drugs you need to to get onto the plane. And go.
As I mentioned before, on my first day, some people almost had to be carried in the door because they were in so much pain. But when they left, they walked out under their own power, and had a big smile on their face. The Stanford team are not perfect, but they are damn good at what they do. And very honest about what they can and cannot do.
Age: 30 | Onset Age:19 | Symptoms: Urethral burning pain (tip of penis), some reddening (inflammation) of the urethral opening intermittently, rectal pain off and on. | Helped By: Avoiding aggravating factors, Wise-Tapes, Mild PT stretches, Benzos, acupuncture and Chinese Herbal medicine | Worsened By: Urination, Excessive Sex, Not enough exercise, Stress, Alcohol, Caffeine, Cold Weather.
Typical Disclaimer: My above post is not medical advice.
Typical Disclaimer: My above post is not medical advice.
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scoobysnacks
- Retired Mod
- Posts: 696
- Joined: Tue Jan 20, 2004 4:51 am
- Location: USA
really, when you went, you saw people carried in...I didn't read that in your posts anywhere..did you document your stay on this forum.
Ss
Ss
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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benzo
- Senior Veteran
- Posts: 221
- Joined: Thu Jan 20, 2005 10:04 pm
Almost seems like he went to Lourdes and not Sebastopol.scoobysnacks wrote:really, when you went, you saw people carried in...I didn't read that in your posts anywhere..did you document your stay on this forum.
Ss
Age: 38 | Onset Age: 27 | Symptoms: scrotal pain, perineal pain, pubic pain, lower abdominal pain, sometimes urgency, | Helped By: sometimes excercising | Worsened By: found no real triggers
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mach5
- Intermediate Member
- Posts: 85
- Joined: Fri Oct 27, 2006 12:48 am
- Location: Canada / China
Almost
Almost had to be carried in.
I really dont feel comfortable giving too many details of my trip other than about myself. I meant to post about my trip more and said I would, but somehow I never got around to it. I will really try soon though. I started the first few days keeping a blog I havent posted yet, but then for the days after that, pretty much the same things happened everyday. There is a nice routine that goes on.
However, this individual was in very very rough shape. When everyone else was laying down to do relaxation, he was just curled up into a ball for the first few days. When the week was over. He looked so much better. His color was good. Mood was improved. Said he felt much better and seemed to even have a better outlook on life. It was amazing.
This was the Stanford Clinic in Sebastapol.
I really dont feel comfortable giving too many details of my trip other than about myself. I meant to post about my trip more and said I would, but somehow I never got around to it. I will really try soon though. I started the first few days keeping a blog I havent posted yet, but then for the days after that, pretty much the same things happened everyday. There is a nice routine that goes on.
However, this individual was in very very rough shape. When everyone else was laying down to do relaxation, he was just curled up into a ball for the first few days. When the week was over. He looked so much better. His color was good. Mood was improved. Said he felt much better and seemed to even have a better outlook on life. It was amazing.
This was the Stanford Clinic in Sebastapol.
Age: 30 | Onset Age:19 | Symptoms: Urethral burning pain (tip of penis), some reddening (inflammation) of the urethral opening intermittently, rectal pain off and on. | Helped By: Avoiding aggravating factors, Wise-Tapes, Mild PT stretches, Benzos, acupuncture and Chinese Herbal medicine | Worsened By: Urination, Excessive Sex, Not enough exercise, Stress, Alcohol, Caffeine, Cold Weather.
Typical Disclaimer: My above post is not medical advice.
Typical Disclaimer: My above post is not medical advice.