Hi. Here's my story.
Last year, during a routine STD test, I was administered an outdated test for syphillis (swab up the urethra). Understandably, my penis was in pain for a few days, but it didn't stop there. A couple weeks and some urinary symptoms later, I was diagnosed with PPS.
I then went about treating the condition myself using a combination of research and common sense, making changes to my diet and lifestyle.
8 months later I feel I was given the correct diagnosis, but I haven't seeked much care up until recently. For the past few months my urinary symptoms have almost completely dissapeared, as well as any pain related to ejaculation. I seem to be improving.
However, I had a nasty flare up last weekend so I went back to the urologist who diagnosed me. He wrote me a script for Celebrex and told me that he would like to run a test where he would put potassium in my bladder to determine whether I have Prostatitis or IC. Then, depending on the results, he would stretch my bladder (?)
He says he has a lot of PPS patients, but I dunno. Does any of this treatment sound familiar to anyone?
Intro and a Question
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Psychic Garbage
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- Location: Detroit
Intro and a Question
Age: 28 | Onset Age: 26 Symptoms: Started out with moderate pain on left side and tip of penis, plus urgency/frequency issues. These symptoms went away by 75% with time and PT. Current symptoms are pain in glutes, abdomen, and the area where the thigh meets the buttocks (?) Also, fatigue. Helped By: Lots of water, Prelief with acidic foods, hot baths, Naproxen or Ibuprofen, Elavil 25mg daily, Diazepam 2mg as needed, PT (weekly), Crystal Wand use on external TP's, stretching, walking backwards on treadmill. Worsened By: Pressure on abdomen - I unbuckle my belt a lot, which helps when sitting and driving. Sitting and driving, physical labor, caffiene.
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webslave
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Hydrodistention
viewtopic.php?f=37&t=249&p=1228
viewtopic.php?f=37&t=249&p=1228
Good News! The great ProstaQ is BACK at last! You must try it.
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Psychic Garbage
- New Member
- Posts: 7
- Joined: Tue Apr 10, 2007 5:46 pm
- Location: Detroit
Thank you. It sounds awful. Anyone had it done?
Age: 28 | Onset Age: 26 Symptoms: Started out with moderate pain on left side and tip of penis, plus urgency/frequency issues. These symptoms went away by 75% with time and PT. Current symptoms are pain in glutes, abdomen, and the area where the thigh meets the buttocks (?) Also, fatigue. Helped By: Lots of water, Prelief with acidic foods, hot baths, Naproxen or Ibuprofen, Elavil 25mg daily, Diazepam 2mg as needed, PT (weekly), Crystal Wand use on external TP's, stretching, walking backwards on treadmill. Worsened By: Pressure on abdomen - I unbuckle my belt a lot, which helps when sitting and driving. Sitting and driving, physical labor, caffiene.
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kevin
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- Location: USA
Are you seeing Ken Peters?
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.
Not medical advice. Consult your doctor.
Not medical advice. Consult your doctor.
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Psychic Garbage
- New Member
- Posts: 7
- Joined: Tue Apr 10, 2007 5:46 pm
- Location: Detroit
...no. Should I?
Age: 28 | Onset Age: 26 Symptoms: Started out with moderate pain on left side and tip of penis, plus urgency/frequency issues. These symptoms went away by 75% with time and PT. Current symptoms are pain in glutes, abdomen, and the area where the thigh meets the buttocks (?) Also, fatigue. Helped By: Lots of water, Prelief with acidic foods, hot baths, Naproxen or Ibuprofen, Elavil 25mg daily, Diazepam 2mg as needed, PT (weekly), Crystal Wand use on external TP's, stretching, walking backwards on treadmill. Worsened By: Pressure on abdomen - I unbuckle my belt a lot, which helps when sitting and driving. Sitting and driving, physical labor, caffiene.
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kevin
- Retired Mod
- Posts: 458
- Joined: Tue Aug 03, 2004 2:23 am
- Location: USA
Not necessarily. That was just a guess, since you live in Detroit and it sounds like this guy does a lot of CPPS/IC stuff.
The guy is talking about doing a potassium sensitivity test:
http://www.ichelp.org/TreatmentAndSelfH ... yTest.html
And then a hydrodistension.
This test (potassium) has its proponents (most notably Lowell Parsons), but the consensus is that it really isn't that useful. Hydrodistension isn't all that useful either. Although there's a distant chance it'll find something, most likely you won't get any new information. People on an IC forum (http://ucpps.men/1/) will be able to tell you a lot more about both of these tests.
Have you read A Headache in the Pelvis, as well as the literature on this website? Have you gotten your pelvic floor checked for trigger points? That is far more likely to yield results.
The guy is talking about doing a potassium sensitivity test:
http://www.ichelp.org/TreatmentAndSelfH ... yTest.html
And then a hydrodistension.
This test (potassium) has its proponents (most notably Lowell Parsons), but the consensus is that it really isn't that useful. Hydrodistension isn't all that useful either. Although there's a distant chance it'll find something, most likely you won't get any new information. People on an IC forum (http://ucpps.men/1/) will be able to tell you a lot more about both of these tests.
Have you read A Headache in the Pelvis, as well as the literature on this website? Have you gotten your pelvic floor checked for trigger points? That is far more likely to yield results.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.
Not medical advice. Consult your doctor.
Not medical advice. Consult your doctor.