In need of Good News

Male pelvic pain, prostatitis, IC
save_me
Beginner
Beginner
Posts: 36
Joined: Sat Jul 29, 2006 8:04 pm

In need of Good News

Post by save_me »

I caught a cold, and to my horror, discovered that I can no longer take sudafed or nyquil. I had a terrible chronic prostatitis / chronic pelvic pain syndrome flare up that continues even as the cold subsides. Crap.

Anyway, can someone please tell me when the next chronic prostatitis / chronic pelvic pain syndrome conference is? I am looking forward to reading new research results and what the experts are thinking now. I'm only 26 and have my fingers crossed that the miracle breakthrough will come before I turn 40.

In the meantime, I continue trying to relax, goto PT and just hope for the best.

Save_me!
Age: 26 | Onset Age: 25 | Symptoms: Current--Perenial Tightness and dull pains, occasional nerve sensitivities, minor frequency, and some stress. Initial--Urinary Frequency (~12 times per day), Urgency, Nocturia, Back Pain, Penis Tip Pain, Stress Overload | Helped By: Mild Exercise, Yoga, Physical Therapy, A glass or two of alcohol | Worsened By: Ativan (just don't take it), Binge Drinking, Stress, Sitting, Cold Medicine
kevin
Retired Mod
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Joined: Tue Aug 03, 2004 2:23 am
Location: USA

Post by kevin »

There's an NIDDK summit on IC/PBS this October. The big names should be there.

http://www.niddk.nih.gov/fund/other/niddkfrontiers/

The best way to keep abreast of what's going on, though, is to go to PubMed and do a search for relevant keywords (e.g. "chronic prostatitis"). You'll see the abstracts of the most recent studies there. There's some encouraging work on biomarkers and genetics being done now.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.