Some advice please

Male pelvic pain, prostatitis, IC
GP2
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Some advice please

Post by GP2 »

Ok I'm stretching twice a day & at small breaks I've been allotted at work. I'm doing psychotherapy as some will know too and planning a trip to Bill Taylor in September I guess I'm concerned about sitting for long periods even though work is generally fine.

How many people manage to continue sitting at work? How many use a stand / adapted cushion?

I want to tackle chronic prostatitis / chronic pelvic pain syndrome on all fronts obviously & I know many of you don't sit down for long. Should I just swallow my pride and look for a stand for work although I really will struggle doing this in an open plan office (i know - dealing with pain should come before pride!)

Plus I walk 30 mins to work back & every lunch break!

Thanks a lot

Greg
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by scotsman »

I've not tried a cushion at work but I've done the standing at a high workstation thing (I'm lucky in that the office has those in-place already).

For me though the biggest help was the way I was sitting. Previously I'd cross and un-cross my legs all the time, shifting my weight from butt-cheek to butt-cheek but whilst that feels like it's helping at the time I found my pelvis really flared because of it.

I've found a much better technique is to sit with both feet flat on the ground and avoid the moving about. I also get up for a walk around often (usually to the bathroom given the amount of water I drink during the day!).

I've not really found cushions to help (had one at home) but that's probably just me and it might be worth trying something.

Rather than say that you've got a chronic prostatitis / chronic pelvic pain syndrome issue to others, I find it much easier (i.e. doesn't require further explanation!), to just say I've got a lower back/pelvis muscular problem - which would explain any standing/cushion requirement.

Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit

Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Post by GP2 »

Thanks Richard,

I will try this position but interestingly that's an approach I've worked to through trial & error myself.
Is there any evidence that this sitting technique is helpful in CPPS? Have others reported good results?

BTW - I thought you wrote a good post in response to moonrock I believe. I too consider that this condition should be fought on a multi-dimensional approach (to a greater or lesser degree depending on the individual case). We have too many "factional" divides here at times - suffice to say I will write a post soon.

One more thing - how much is a session with Bill? If I go once & see what state my pelvis is in how much will that be?

thanks Richard
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by scotsman »

GP2 wrote:I will try this position but interestingly that's an approach I've worked to through trial & error myself.
Is there any evidence that this sitting technique is helpful in CPPS? Have others reported good results?
I think I've read one other person post about it but it doesn't seem to be something we've covered much here - most of the responses and questions revolve around cushions.
GP2 wrote:BTW - I thought you wrote a good post in response to moonrock I believe. I too consider that this condition should be fought on a multi-dimensional approach (to a greater or lesser degree depending on the individual case). We have too many "factional" divides here at times - suffice to say I will write a post soon.
Thanks - and I agree that we do see a lot of posters trying one approach and if it doesn't work for them then it must be a waste of time. I've never been as blinkered to assume that what doesn't work for me won't work for others - especially if lots of poeple have already said that they've had success with a particular approach.
GP2 wrote:One more thing - how much is a session with Bill? If I go once & see what state my pelvis is in how much will that be?
I'm not sure what his pricing is these days (been around 18 months since I last had a chronic prostatitis / chronic pelvic pain syndrome session with him) - but his chronic prostatitis / chronic pelvic pain syndrome session do cost more that his standard ones (probably down to his usual ones last 30 mins and the chronic prostatitis / chronic pelvic pain syndrome ones last a couple hours!). The chronic prostatitis / chronic pelvic pain syndrome used to be around £60 a session.

Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit

Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Post by GP2 »

Thanks Richard
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by Sleeper Service »

The initial consultation with Bill is £75 and then £65 per session after that.

Bearing in mind that each session is 1.5 to 2 hours it's not bad.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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Post by GP2 »

Thanks

Is it helping you so far?
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by Sleeper Service »

Only had two sessions and they were three weeks apart. Unfortunately I'm in the middle of a four week gap until my next session, thereafter they're fortnightly. Bill's very busy so you need to book well in advance as I found out to my cost.

I did notice a slight lessening in the urinary symptoms after the first couple of sessions. I guess the most positive thing for me was Bill's confirmation that I have about two dozen trigger points in the pelvis, contracted muscles and external TPs too. In other words, he was the first person to say "This isn't normal and I can demonstrate why".

The first session was an exploratory one, the second was full on but some areas of my internal pelvis were just too sore to work on. I suspect that we will continue to work on those muscles and TPs in the forthcoming sessions.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
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Post by GP2 »

Much appreciated mate

Will you try & treat yourself also now that you are more aware of what to look for etc?
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by GP2 »

And Sleeper service have you the number for Bill Aylor - I had it as 01133328698 but this number is invalid

Thank you
Age: 29 | Onset Age: 26 | Symptoms: initially severe burning throughout pelvis - much better; muscles spasms all over region, back pain, chronic IBS (much better) | Helped By: Psychotherapy, SP stretches, swimming, accepting the condition (understanding there is treatment); stress/anxiety management; possibly basic quercetin; valerian root, vit B & calc & magn supplements; gluten avoidance & especially dealing with chronic constipation. | Worsened By: stress / anxiety, too much sex; repressed emotions; personality goodist traits. 80% better
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Post by scotsman »

GP2 wrote:And Sleeper service have you the number for Bill Aylor - I had it as 01133328698 but this number is invalid

Thank you
It's 0131 332 8698 for Bill Taylor.

Richard.
Not medical advice: Read my progress to date : Read about my W-A clinic visit

Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Post by Sleeper Service »

GP2 wrote: Will you try & treat yourself also now that you are more aware of what to look for etc?
I'm not at that stage yet. Once I'm seeing Bill regularly I'll look to do this, however I'm wary of firing ahead with too much at the moment.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.