Disability
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conradin
- Experienced
- Posts: 147
- Joined: Mon Nov 24, 2003 10:19 pm
- Location: Oakland, CA
Disability
How many of you are on social security disability (SSDI) or in the process of applying? My chronic prostatitis / chronic pelvic pain syndrome is serious enough to prevent me from working, so I have to apply for SSDI. What is your experience applying for SSDI? Any good stories? Any good endings?
Age:37 | Onset Age: 34 | Symptoms: Pain on Right Leg, Fireball, Urethral and Testicular Pain, Urgency, Bladder lost control, Lower and Upper abdominal Pain, Perineum Pain, Nausea, ED, Pain during arousal, Ejaculation Pain, Lower Back Pain , Fatigue, Short term memory loss, anxiety, bowel pseudo-obstruction/IBS, bloating, unable to pass gas, intestinal burning sensations. | Helped By: Stanford/Wise-Anderson Protocol, Elavil, Valium, Stretching, Skin Rolls, Donut Cushion, External Trigger point | Worsened By: Sit for more than an hour, Caffiene, Sex, Bowel movement, Symptoms come without warning.
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robertpagen
- Old Hand
- Posts: 316
- Joined: Thu Mar 18, 2004 4:51 pm
- Location: Beijing, China
Disability
From 1999 to 2002 I should have qualified on any reasonable system for disability benefits. For the most part I woke up in pain and it got worse through the work day. I got only 2 to 3 hours of sleep a night so I almost always showed up to work late each morning. I would regularly close myself up in my workspace to lie on the floor and cry.
But I never took disability. Part of the problem was that I had no good idea how to articulate what was wrong with me. I would have needed a doctor to ok the disability and in those days they called male pelvic pain patients malingerers. When I asked one of the seven urologists I saw in those four years alone if I would qualify for disability he told me I could only qualify for psychological disability. I resisted that stigma as I knew deep down something was physically wrong.
God bless my ex manager as I often came in late and when I DID CALL IN SICK I would do it at the last moment. The system is not fair when you have a hidden ailment like this. I'd have colleagues taking off six weeks for broken bones and dislocated shoulders while I was in debilitating pain as I worked.
On the other hand I feel there was an upside to this. Work served as a distraction from the worst pain. I often had suicidal ideation and I think if I had been at home with nothing to do I would have killed myself.
I don't know the current view of the system (doctors and insurance companies ) as far as male pelvic pain. My occasional symptoms (I had only one major flare in 2005) no longer warrant a disability claim. Still I can fully sympathise with a workers discomfort to sit behind a desk or a vehicle with this condition.
2006 will be the best year yet for all of us.
Be well,
Robert Pagen
But I never took disability. Part of the problem was that I had no good idea how to articulate what was wrong with me. I would have needed a doctor to ok the disability and in those days they called male pelvic pain patients malingerers. When I asked one of the seven urologists I saw in those four years alone if I would qualify for disability he told me I could only qualify for psychological disability. I resisted that stigma as I knew deep down something was physically wrong.
God bless my ex manager as I often came in late and when I DID CALL IN SICK I would do it at the last moment. The system is not fair when you have a hidden ailment like this. I'd have colleagues taking off six weeks for broken bones and dislocated shoulders while I was in debilitating pain as I worked.
On the other hand I feel there was an upside to this. Work served as a distraction from the worst pain. I often had suicidal ideation and I think if I had been at home with nothing to do I would have killed myself.
I don't know the current view of the system (doctors and insurance companies ) as far as male pelvic pain. My occasional symptoms (I had only one major flare in 2005) no longer warrant a disability claim. Still I can fully sympathise with a workers discomfort to sit behind a desk or a vehicle with this condition.
2006 will be the best year yet for all of us.
Be well,
Robert Pagen
Age: 43 | Onset Age: 17 | Symptoms: previously: constant urgency, premature ejaculation, burning at tip of penis, pelvic ache current: semi annual flares. | Helped By: PT, yoga, stretch, keeping warm(long johns) boxer briefs, regular sleep routine | Worsened By: cystoscopy, antibiotics (fluoroquinolones) alcohol, coffee, stress, masturbation, cold
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CppsDad
- Retired Mod
- Posts: 956
- Joined: Sat Nov 20, 2004 7:24 am
- Location: N. America
This was true for me too. As hard as it was to get out of bed and into the office, once I got fully into my work, I often times had periods of 20 minutes or longer when I experienced no pain at all as I was so focussed on something else.On the other hand I feel there was an upside to this. Work served as a distraction from the worst pain.
Mike
This is NOT medical advice. I am NOT a doctor.
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
Age: 43 CPPS: 10+ Yrs Recovery Status: 80-85% Symptoms: Pain in testicles, scrotum, rectum, prostate, perineum Makes Worse: Anxiety, Tension, too much Nookie Makes Better: Stretching, Abdominal Massage (Go Theracane!), Relaxation
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treynor33
- Senior Veteran
- Posts: 281
- Joined: Wed Jun 02, 2004 3:37 pm
Someone on here received it, I remember reading it a while back in an older thread. But their doctor diagnosed him with IC, even though I doubt that was really what he had. The Social Security Administration and most disability boards know what that is, but is like the rest of the world (clueless) when it comes to just the diagnosis of male pelvic pain or chronic prostatitis.
You should be able to find some threads about it by searching the forum.
You should be able to find some threads about it by searching the forum.
Age: 45 Onset: 43. | Symptoms: Tightness, spasms, burning and pain in the perineum. Occassional mild pain after urination in the perineum. Helped by: Cardura, quitting caffiene, relaxation, fiber, stand up workstation and some PT a year ago. Makes Worse: ANXIETY, ULTRAM, going to work, sitting or squatting too long, constipation (big problems), stress, and sometimes unexplainable.
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kenn101
- Intermediate Member
- Posts: 88
- Joined: Fri Jan 28, 2005 6:31 pm
- Location: Canada
Here in Canada it just about impossible to get Canada Pention Plan Disabilitiy and the provincal plan want you to be on skidrow before you get any help. I have been draining my RRSP ( the equal to you 401K's ).
I HAVE NO MEDICAL TRAINING JUST CPPS
Age:48 | Onset Age: 39 | Symptoms:mod to extreme Pain in testicle (both), right epididymis, lower back lower right and centre abdomen. Urination frequency and urgence, decreased or no urine stream, ED, night time incontinence after riding in a vehicles or too much movement. | Helped By: eating ice frequency by Elavil, urine stream by Hytrin or Flomax. Pain control Methadone and Hydromorphone but more so by Triamcinolone epidurals. | Worsened By: Too much movement, SSRI's, Hot baths or showers. eating warm or too much food,DMSO treatments. Frequency by caffeine, stress or SSRI's.
Age:48 | Onset Age: 39 | Symptoms:mod to extreme Pain in testicle (both), right epididymis, lower back lower right and centre abdomen. Urination frequency and urgence, decreased or no urine stream, ED, night time incontinence after riding in a vehicles or too much movement. | Helped By: eating ice frequency by Elavil, urine stream by Hytrin or Flomax. Pain control Methadone and Hydromorphone but more so by Triamcinolone epidurals. | Worsened By: Too much movement, SSRI's, Hot baths or showers. eating warm or too much food,DMSO treatments. Frequency by caffeine, stress or SSRI's.
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conradin
- Experienced
- Posts: 147
- Joined: Mon Nov 24, 2003 10:19 pm
- Location: Oakland, CA
How many of you are unable to work?
I have not been unable to work since October of 2003. (My onset was late September that year). I drained my savings by early 2005, and I am now pretty much rely on the help of my Gf's family.
I have not been unable to work since October of 2003. (My onset was late September that year). I drained my savings by early 2005, and I am now pretty much rely on the help of my Gf's family.
Age:37 | Onset Age: 34 | Symptoms: Pain on Right Leg, Fireball, Urethral and Testicular Pain, Urgency, Bladder lost control, Lower and Upper abdominal Pain, Perineum Pain, Nausea, ED, Pain during arousal, Ejaculation Pain, Lower Back Pain , Fatigue, Short term memory loss, anxiety, bowel pseudo-obstruction/IBS, bloating, unable to pass gas, intestinal burning sensations. | Helped By: Stanford/Wise-Anderson Protocol, Elavil, Valium, Stretching, Skin Rolls, Donut Cushion, External Trigger point | Worsened By: Sit for more than an hour, Caffiene, Sex, Bowel movement, Symptoms come without warning.