Hi,
I'm new too this forum, but not to chronic prostatitis / chronic pelvic pain syndrome (or whatever you want to call it). I have tried paradoxical relaxation, but not too much triggerpoint treatment since I haven't found anyone to do it in Norway. Just did it a few times when I was at the clinic in CA. After a while of doing the paradoxical relaxation I quit, probably a bad move, but it was too frustrating doing it when I didn't get the triggerpoint treatment"¦ didn't feel I was getting anywhere.
In May and June I saw a urologist here in Norway who claims he has the right treatment for my problems. He was actually the first urologist I ever saw 8 years ago, but his treatment didn't work then, so I was a bit sceptic ( back then he gave me antibiotics for prostatitis). Now however, he had realized a link between my IBS and my "prostatitis"-problems. He soon found that I had tears and fissures inside my rectum, and he thinks the leakage from these fissures is a main problem for people with my symptoms (often diagnoses with prostatitis). The other point he made was that these fissures irritate and intervene with muscles and tissue, causing spasms and swelling in the colon-area. This causes pressure to the bladder and problems getting good bowel movement (you get my drift?). The fissures also make the muscle between the rectum and colon bad causing the pressure inside the colon to be bad, and this causes pressure to the rectum. Of course he means that there actually is some kind of infection also caused by leaking bacteria. This causes prostatitis (even though bacteria is not detected?), and elsewhere. It's a bit hard for me to explain it all, but I guess you understand roughly his theory.
His treatment consists of lubricant suppository pills and Xyloproct (lidocaine + hydrocortisone acetate) suppository pills, one week each. Also he suggests nitro-glycerine cream for the anal area, too help bloodstream. This treatment is to be followed for as long as it takes to get better- cured.
I have followed this treatment for about three months now, and I have realized that if this cure works, it takes time to get better. However, I have felt things starting to change. The change is more a feeling of less pressure to my rectum, than any specific symptoms going away. It's early times, and I don't know what to think of this treatment myself, but I felt I should post this treatment here, so that you guys can comment what you think of it? The urologist says I should stay on this treatment for as long as it takes, so I'm not sure when I will know if this really is the remedy for me, or not. I must stress that I don't know how good this treatment is, and my opinion varies every day, depending on how I feel;-)
I'm really interested in hearing comments from you guys about this treatment?
I'm 25, have had symptoms of chronic prostatitis / chronic pelvic pain syndrome since I was 17, and the IBS about the same. Urge/ frequency, penile pain, pain/pressure to anal area, pain after ejaculation (really bad!), tightness in pelvic area, low urine stream, not fully emptying bladder, diarrhoea etc etc"¦
CPPS-IBS / leakage and fissures
CPPS-IBS / leakage and fissures
Age: 25 Onset: 1997 | Symptoms: pain in pelvic area, urge/frequency, ejaculation pain, irritable bowel
Tears in the rectum
This sounds like an interesting theory. Wouldn't a symptom of this be blood in the stool? I personally have never had this problem but the other symptoms are the same you describe.
Please update as time goes on.
Please update as time goes on.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
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LightningTree
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As someone who has had rectal fissures and small ulcerations long before the beginnings of CPPS, I find this theory interesting. Keep us informed concerning your treatment.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
To Lightning Tree: The urologist's theory is that the rectal fissures are there before the prostatitis- but not everyone is bothered by symptoms until the prostatitis(CPPS) sets in. the prostate is so close to the rectum, and that's why it really seems quite likely to me.. but who knows...
To Richie: I have never had blood in the stool. the amonts are probably to small to see or notice, and I think one of the real problems is that the fissures intervene with tissue and muscles causing spasms and the colon and rectum to loose its natural pressure because the muscles between them isn't working properly... I have had a distingtive feeling of pressure downwards in the colon for years, as if there is no closing-muscle separating it from the rectum, and on good days this is better now.
To Richie: I have never had blood in the stool. the amonts are probably to small to see or notice, and I think one of the real problems is that the fissures intervene with tissue and muscles causing spasms and the colon and rectum to loose its natural pressure because the muscles between them isn't working properly... I have had a distingtive feeling of pressure downwards in the colon for years, as if there is no closing-muscle separating it from the rectum, and on good days this is better now.
Age: 25 Onset: 1997 | Symptoms: pain in pelvic area, urge/frequency, ejaculation pain, irritable bowel
Very interesting. I had IBS problems (and still do) years before CPPS. And about 2 months before my first chronic prostatitis / chronic pelvic pain syndrome symptoms, I had blood spotting on my underpants for about 3 days. The IBS/CPPS connection just seems too common to be just coincidental and must be investigated further.
Age: 39; | Onset Age: 34; | Symptoms: pain in the glans, rectal pain (seldom), intermitent ED; | Helped By: relaxing, rest; | Worsened By: Spicy food, stress, fatigue
I don't have IBS per se, but reading this thread (specially the last post) reminded me of something that I've forgot since I'm used to it : after bowel movement (which is usually not painful or anything), I sometimes have a very irritated anus, which can be bleeding a little bit at times. I know the blood comes from here cause I feel pain, and under the shower, I'm then very sensitive for a few days. It then vanishes as it came, and comes back from time to time. The pain is not too great, and the bleeding is not much : some redness on paper and in worst case a very slight bit of red in underpant.
I had since a very long time (can't really remember when, maybe for my whole life), and it is not really a concern to me.
But this thread makes me wonder : could it be linked to my chronic prostatitis / chronic pelvic pain syndrome ? Could this (i don't have any idea of what it is) cause some hypersensitivy, or some muscular/nervous reaction ? It could be completly normal and unrelated, but maybe someone can enlighten me.
I had since a very long time (can't really remember when, maybe for my whole life), and it is not really a concern to me.
But this thread makes me wonder : could it be linked to my chronic prostatitis / chronic pelvic pain syndrome ? Could this (i don't have any idea of what it is) cause some hypersensitivy, or some muscular/nervous reaction ? It could be completly normal and unrelated, but maybe someone can enlighten me.
Age: 31 Location: France Symptoms: right epididymis pain, testicular soreness and pain, pain after ejaculation, gulf ball in rectum (now gone), pain at tip of penis (now gone), bent penis when in pain (not Peyronie's), burning after ejaculation, weird right testicular positions, big and painful lymph nodes (now gone). Makes worse: sex, tiredness, anxiety, cold Makes better: hot climate, stretches.
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LightningTree
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An alternate theory would be that with a very tight and tense rectum, you tend to get some tearing at the anus.
My doctor has noticed small ulcerations around my anus. They form spontaneously (I'm not up to anything) and where this irritation comes from is beyond me.
But mild ischemia from chronic tension would cause 'bed sore' like ulcerations.
Or they might be a product of an autoimmunity issue.
In any case, I'd like to see how the original poster does after some time with his doctor's therapy.
I gotta be honest, I'm not personally betting on the infection concept, as I always feel no pain at all if I sleep for an hour (even a nap during the day), but I'm not going to rule out people's creativity just because I can't see where it is coming from.
Its very interesting to me, however, that several of us on these forums are complaining of some lower rectal bleeding without definitive cause.
I mean, I'm not shoving spoons up my butt or anything.
My doctor has noticed small ulcerations around my anus. They form spontaneously (I'm not up to anything) and where this irritation comes from is beyond me.
But mild ischemia from chronic tension would cause 'bed sore' like ulcerations.
Or they might be a product of an autoimmunity issue.
In any case, I'd like to see how the original poster does after some time with his doctor's therapy.
I gotta be honest, I'm not personally betting on the infection concept, as I always feel no pain at all if I sleep for an hour (even a nap during the day), but I'm not going to rule out people's creativity just because I can't see where it is coming from.
Its very interesting to me, however, that several of us on these forums are complaining of some lower rectal bleeding without definitive cause.
I mean, I'm not shoving spoons up my butt or anything.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
I know all of us are hoping for a physical answer to our problems and this is interesting...however both IBS and chronic prostatitis / chronic pelvic pain syndrome are almost always brought on or complicated by anxiety. I hope that there is a physical answer to all our problems but I think in the end learning to relax and get stress and anxiety under control is the real answer to these two problems.
However it doesn't explain blood on the TP etc. so to speak. I have had occassional problems on the TP too....but never thought too much about it.
However it doesn't explain blood on the TP etc. so to speak. I have had occassional problems on the TP too....but never thought too much about it.
Age: 45 Onset: 43. | Symptoms: Tightness, spasms, burning and pain in the perineum. Occassional mild pain after urination in the perineum. Helped by: Cardura, quitting caffiene, relaxation, fiber, stand up workstation and some PT a year ago. Makes Worse: ANXIETY, ULTRAM, going to work, sitting or squatting too long, constipation (big problems), stress, and sometimes unexplainable.
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LightningTree
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I agree Treynor.
I was at a party the other night and I talked with a girl with IBS, OCD, Depression issues. The usual signal group of symptoms. She hadn't interacted with many people with these symptoms. I told her that with my particular syndrome, I meet people with this basic symptom set all of the time, and that movig the personality towards calming down might help and definitely can't hurt. I told her that when I sleep, even a daytime nap for an hour, my symptoms vanish, and I told her about my biofeedback results.
For those of you who don't know: I saw a pelvic physical therapist who does anal biofeedback with me. In particular, we found that there was an unusually marked amount of activity in my anal sphincter. I think in addition, I am pulling up on my levitar ani muscle, but we can't measure that. In any case, over time, I have been able to practice reducing my anal sphincter tension levels. It is very very hard to do, and without the biofeedback, I wouldn't really know I was tensing. But I do see positive results in terms of pain management.
So, to the orignal poster, if your current approach doesn't work out for you, see about the rectal biofeedback approach. In any case, I hope your technique helps, and most importantly, that you keep us informed about how you are doing, so that we can all learn from your experiences.
. Its by sharing in this way that we will grow and help ourselves and future generations.
I was at a party the other night and I talked with a girl with IBS, OCD, Depression issues. The usual signal group of symptoms. She hadn't interacted with many people with these symptoms. I told her that with my particular syndrome, I meet people with this basic symptom set all of the time, and that movig the personality towards calming down might help and definitely can't hurt. I told her that when I sleep, even a daytime nap for an hour, my symptoms vanish, and I told her about my biofeedback results.
For those of you who don't know: I saw a pelvic physical therapist who does anal biofeedback with me. In particular, we found that there was an unusually marked amount of activity in my anal sphincter. I think in addition, I am pulling up on my levitar ani muscle, but we can't measure that. In any case, over time, I have been able to practice reducing my anal sphincter tension levels. It is very very hard to do, and without the biofeedback, I wouldn't really know I was tensing. But I do see positive results in terms of pain management.
So, to the orignal poster, if your current approach doesn't work out for you, see about the rectal biofeedback approach. In any case, I hope your technique helps, and most importantly, that you keep us informed about how you are doing, so that we can all learn from your experiences.
. Its by sharing in this way that we will grow and help ourselves and future generations.This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
I've had hemorrhoids since I was about 22. Started mild and in the last 3 years have gotten worse. I see occasional blood on my fecal matter due to the irritated and open skin in that area. I guess this could also cause the nerves in that area to become irritated as well. ?
Age: 31 | Onset Age: 28
Symptoms: Pain in perineum, tight sphincter muscles, referred pain at tip of penis.
Helped By: sleep, hot baths, relaxation, stretching protocol.
Worsened By: Sitting and stress. No connection with food, alcohol or caffeine.
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LightningTree
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I've had hemmoroids since high school.
Personally, I think this is yet another sign of tension down there.
Personally, I think this is yet another sign of tension down there.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.
I agree with Lightning tree. Major flareups for me come in conjunction with hemoroids and blood on the tp. This is a distinct symptom I have noticed. I have attributed it to stress and resulting irritation/inflamation.
Age: 44 | Symptoms: Pain in pelvis, Post urination drip. Helped by: Squat stretching, PT, Prelief before banned foods, Vit B, Cystoprotec AFTER foods, singulair after foods, Exercise. Makes worse: Stress, Alcohol (1-2 days after), coffee, Artificial sweeteners, chocolate, tonic Wheat/gluten. Drink a lot of water!!! 95% better to date!
[quote="LightningTree"]An alternate theory would be that with a very tight and tense rectum, you tend to get some tearing at the anus.
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I agree. Therefore I'm not getting my hopes up too much yet. I've tried a lot of things that haven't worked
. But if your rectum is reacting to fissures by spasming, you can't calm it down that easily either..
I have notice that my rectum is less tense now. The last few days I've used the nitro-glycerine cream (haven't really used it before), and I notice a improvement. the bowel movement is more complete, and there is less strain on the rectum/anus.
I'm not saying that paradoxical relaxation, calming down, PT etc. can't help, maybe it help a whole lot more. I don't know yet. I try to do paradoxical relaxation also. My prostate/urinary symptoms are about the same as before, but my IBS seems better. And that causes less tensing for me.
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I agree. Therefore I'm not getting my hopes up too much yet. I've tried a lot of things that haven't worked
. But if your rectum is reacting to fissures by spasming, you can't calm it down that easily either.. I have notice that my rectum is less tense now. The last few days I've used the nitro-glycerine cream (haven't really used it before), and I notice a improvement. the bowel movement is more complete, and there is less strain on the rectum/anus.
I'm not saying that paradoxical relaxation, calming down, PT etc. can't help, maybe it help a whole lot more. I don't know yet. I try to do paradoxical relaxation also. My prostate/urinary symptoms are about the same as before, but my IBS seems better. And that causes less tensing for me.
Age: 25 Onset: 1997 | Symptoms: pain in pelvic area, urge/frequency, ejaculation pain, irritable bowel
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LightningTree
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keep trying
If the nitroglycerin is improving your bloodflow, it could have a great effect. Don't be too impartial about this treatment. Stay optimistic and keep us informed.moonrock wrote: I have notice that my rectum is less tense now. The last few days I've used the nitro-glycerine cream (haven't really used it before), and I notice a improvement. the bowel movement is more complete, and there is less strain on the rectum/anus.
This is not medical advice, and I am NOT a doctor of medicine or a related field.
* Age:33 Onset: February 2004.
* 99.9% IMPROVEMENT in 2.5 Years with the first year being the really hard part
* Current Symptoms: Mild irritation of perineal muscles on occasion. Relieved for days at a time by a specific stretch (see below).
* Initial Symptoms: Terrible penile, urethral, rectal, and perineal burning/aching with addition afferent sensations.
* Current Treatments: Deep stretching of the legs and pelvis. Most effective: Deep psoas and levitar ani stretch using the first phase of the "pigeon pose" from Yoga. When a deep pulling is felt in the middle of the pelvis next to the upper rectum, symptoms are completely alleviated for several days.
* Past Treatments Hyperprotection of the perineum for 1.7 years, Walking, Rectal biofeedback, Stanford/Wise-Anderson Protocol, Conditioned deep relaxation practice, Men's Multi-Vitamin and an Extra B-complex pill, all seemed to help.