When should a CPPS sufferer get a cystoscopy?

[Wolf]

I have had the classic symptoms of chronic prostatitis / chronic pelvic pain syndrome for 8 months including mainly burning after urination, lower back pain and pain in the perineum. The symptom that has been driving me crazy is the stinging pain at the tip of my penis after urinating. My urologist believes that it is refered pain and that a cystoscopy wouldn't reveal anything new. My question is: at what point should someone who has chronic prostatitis / chronic pelvic pain syndrome demand to be scoped? For example, could the post-urination pain be coming from something IN my penis as opposed to my pelvic area? My urologist believes strongly that if I had something other than chronic prostatitis / chronic pelvic pain syndrome causing my post urination burning, my urine or prostate fluid would show it. He just doesn't think putting a scope up me is going to reveal anything. Does this sound right?

[hgtdazza]

i had one a few months back wolf and I was a little worried after reading posts. I've got to say very uncomfortable afterwards. thing is I believe they rule out a lot by doing this so I'm gald a had it donei benefited from a prostate massage which was done at the same time though

[Gegatso]

I have had the classic symptoms of chronic prostatitis / chronic pelvic pain syndrome for 8 months including mainly burning after urination, lower back pain and pain in the perineum. The symptom that has been driving me crazy is the stinging pain at the tip of my penis after urinating. My urologist believes that it is refered pain and that a cystoscopy wouldn't reveal anything new. My question is: at what point should someone who has chronic prostatitis / chronic pelvic pain syndrome demand to be scoped? For example, could the post-urination pain be coming from something IN my penis as opposed to my pelvic area? My urologist believes strongly that if I had something other than chronic prostatitis / chronic pelvic pain syndrome causing my post urination burning, my urine or prostate fluid would show it. He just doesn't think putting a scope up me is going to reveal anything. Does this sound right?

I had a cysto done to see if I had interstitial cystitis. They're no big deal...the stuff the squirt in you seemed far worse than the procedure itself. The uro was able to make sure that I had no stones, check the wall of the bladder, make sure I didn't have bladder cancer, and did see that my prostate was inflamed. Now in my case the doc still diagnosed me as having IC (which turned out to be wrong) but the procedure is worth it to rule out a bunch of things. And as far as pain at the tip..my Uro did mention that tip pain is always referred from the prostate. Of course I have to state that -

This is not medical advice and always speak to your doctor regarding any medical issues and questions. These are just my experiences.

[ddt1974]

I'm having my cysto in *gulp* a day (tues). He gave me the option of bypassing it and going to the chronic prostatitis / chronic pelvic pain syndrome med doctor, but I wanted him to check and make sure there was no stricture or other problem. He said the dilation may help my symptoms, but I find that doubtful. If you feel you want to be examined then push for the exam. If you want to have the cystoscopy because you think it will fix your symptoms, chances are it will not ( as many others have said on the board). It's just for diagnosis. I'm gonna have to take like two Xanax before going, cuz I'll freak out if I don't! I'm sorry you guys are in pain, Life is already painful enough without all this bullshit. It reallly sucks to have chronic pain. Luckily mine is calming down on a daily basis, except the pain comes back with a vengence after ejaculation, which I try not to do more than once per week.

[blacklaw]

I have had the classic symptoms of chronic prostatitis / chronic pelvic pain syndrome for 8 months including mainly burning after urination, lower back pain and pain in the perineum. The symptom that has been driving me crazy is the stinging pain at the tip of my penis after urinating. My urologist believes that it is refered pain and that a cystoscopy wouldn't reveal anything new. My question is: at what point should someone who has chronic prostatitis / chronic pelvic pain syndrome demand to be scoped? For example, could the post-urination pain be coming from something IN my penis as opposed to my pelvic area? My urologist believes strongly that if I had something other than chronic prostatitis / chronic pelvic pain syndrome causing my post urination burning, my urine or prostate fluid would show it. He just doesn't think putting a scope up me is going to reveal anything. Does this sound right?

Actually it does. It does depend upon the urologist. In my case, he did do an ultrasound and a CT ( and the CT was done because I did complain a bit loudly about the pain) of the area. That more or less told the tale, but he told me from day one that my symptoms and the prior testing (especially the urine) showed, at that point, chronic prostatitis. Of course he has now changed the diagnosis to pelvic floor dysfunction.