Running... thanks 'concerned'

[bti20]

I've been dreaming about posting a success for the last two and a half years, but every time I have come close to posting anything about the (slow) progress I have made, I have held back: I'm well accustomed to the usual process of experiencing an isolated day of optimism, believing that I am on the verge of recovery, and then having it all evaporate the very next day.

Well, this time I think it's safe to say that I have at last had a 'success'. I'm not cured, still got pain, and (above all else?) a feeling like something is relentlessly, yet indescribably, wrong in my pelvic muscles; a feeling which takes the form of an endless pinching/burning/scraping sensation somehow simultaneously 'in' the muscles and yet 'on' the surface. However, inspired by "concerned"'s email about playing basketball

viewtopic.php?t=1841

(to which I replied fairly pessimistically), I decided to go for a another run to see what would happen. To my amazement, I felt fine afterwards - if anything a little better. That was in massive contrast to the times in the past when I had a rush of adrenaline and decided I could 'power' my way through the pain (an expression someone once used on this forum); only to find that the pain got much worse for days/weeks afterwards. Since that first run, I have been for two more runs and the result has been the same every time: NO exacerbation of the pain afterwards and maybe a little improvement.

The slight improvement is probably due to the release of endorphins - but I'll take it! Getting back to my running this last week or so has given me the most sustained period of optimism I have had since getting CPPS. I think it is crucial for sufferers to be aided back into some form of physical exercise, and it would be valuable if there was more literature on the effects of dynamic erxercise and CPPS. There is still a serious doubt in my mind that too much running could suddenly tip me over another dreaded myoneuropathy threshold and send the chronic prostatitis / chronic pelvic pain syndrome pain out of control again; so I'm taking it easy for now.

Still, thanks to "concerned" for being concerned enough to post about his basketball successes: I would not have dared go for a run again if I hadn't read that email. I'm slightly worried about encouraging everyone on this forum to go galloping around because I have had some REAALY serious flare-ups following exercise in the past. What I would recommend (not medical advice) is trying some very moderate exercise at regular intervals (once a month?), steadily increasing in intensity, in order to hopefully get to the stage where exercise no longer causes a f'are-up.

[scotsman]

What I would recommend (not medical advice) is trying some very moderate exercise at regular intervals (once a month?), steadily increasing in intensity, in order to hopefully get to the stage where exercise no longer causes a f'are-up.

Delighted to read you've found something which helps

I also believe that moderate exercise is important and exercise is a component that my physio has been putting into the treatment approach for chronic prostatitis / chronic pelvic pain syndrome sufferers he is seeing.

Richard.