pelvic pain and IBS

Male pelvic pain, prostatitis, IC
danno
Beginner
Beginner
Posts: 32
Joined: Fri Sep 26, 2003 5:49 am

pelvic pain and IBS

Post by danno »

can anybody explain the connection b/n pelvic pain and IBS? is it the same tension that causes irritation? often I just feel like everything below my navel is going wrong.
I still get sucked up into the 'candida' paranoia occasionally, until I talk myself out of it.
I haven't been diagnosed with IBS, but something is definately irritating my bowel along with my chronic pelvic pain. not very pleasant.
User avatar
hodologica
Experienced
Experienced
Posts: 109
Joined: Sat Jan 17, 2004 8:16 pm

Post by hodologica »

I can't comment on the connection, but I had regular-but-formless bowels (or occasionally worse) for many months. Recently I've treated that very successfully with soluble fiber (psyllium hull powder). According to the IBS websites I read:

1. supplementary soluble fiber is good for you anyway
2. it can treat both constipation and diarrhea
3. you need to start with a ~1/3 dose the first day, go up to 2/3 the second day, then settle into the full, regular dose (1 tbsp in my case) on the third day. If youve been having gas, bloating, something like that, go up over ~5 days rather than three and watch your reaction
4. it may or may not start working before you reach the full dose
5. it doesnt work for everyone, but probably does work for most people
6. there are some different fibers out there used in different brands (many brands have multiple types) so you may need to try different ones

I dont know what effect this may have on other symptoms; in my case I had a major breakthru not long after treating IB, but I am almost certain it was because of something else.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
kpbos
Experienced
Experienced
Posts: 105
Joined: Thu Apr 24, 2003 2:15 am
Location: New Jersey

Post by kpbos »

In a Headache in the Pelvis they mention that IBS can be a co-existing condition with CPPS. I believe I've had it longer than I've had the pelvic pain.
Age:33 | Onset Age: 21 | Symptoms: Penile/rectal/testicular pain, urgency/frequency, constipation | Helped By: Relaxation, PT, eating healthy, just started some acupuncture-seems to be helping | Worsened By: stress/anxiety, poor diet
User avatar
hodologica
Experienced
Experienced
Posts: 109
Joined: Sat Jan 17, 2004 8:16 pm

Post by hodologica »

It's definitely quite common w/ chronic prostatitis / chronic pelvic pain syndrome - almost a part of it. As Stanford (AHIP) and also other authorities (Mark) have asserted.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
ZR
Intermediate Member
Intermediate Member
Posts: 87
Joined: Tue Mar 16, 2004 7:03 pm

Post by ZR »

I agree that that IBS can be closely related to chronic prostatitis / chronic pelvic pain syndrome just like the muscal spasms part and the nerve problems that go with this problem. I seen a gastro about six months into this problem and he believed I had some IBS nothing real serious he said to take some fiber supplements to see if this helps with the tightness in rectum and with bowel problems and I have been taken metamucil for this and it does seem to help do not get me wrong I still have bowel problems and a tightness in my rectum probably do to spasms in my muscles and nerve problems as well.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
darwin

IBS

Post by darwin »

Let me introduce myself.
I'm 30 and recently have been diagnosed with prostatitis. I've always felt I had IBS and as of this week, I now wonder if I have CPPS, IBS, both, or neither.

"can't comment on the connection, but I had regular-but-formless bowels (or occasionally worse) for many months."
I've had this all my adult life, "loose stool", I've heard it called.
I prefer the loose stools as it is very uncomfortable for me to have large bowel movements. To keep regular, but not contipated I eat eggs. They've always seemed to help keep my system regular and comfortable.

As a newbie here, I am learning a great deal and am glad this forum exists. I feel like I hit 30 and my warranty expired.

Let me sum up my experience in the hope that some of you can help steer me in the right direction.

I've had this general discomfort or dull ache, specifically in my perineal (sp?), rectum, and left testical for over a month. I had it 6 months ago, but it went away in a week. I went to urgent care 2 weeks ago and was given Cipro, even though no bacteria was found. Cipro made me sick. I then went to a gastro clinic for a colonoscopy, which I do every 3 years since my brother died of colon cancer. Found nothing.
Now I've seen a general doctor, since I had no primary physician and everyone kept asking me for one. He put me on Levequin.
I'm already thinking ahead that I need a specialist, not a general doctor, but I should at least try the Levequin first. Hopefully it won't make me sick like the Cipro and hopefully it can alleviate the symptoms. But I have many doubts.
My current hypothesis is that I have a chronic prostatitis / chronic pelvic pain syndrome and probably have for 10 years, but only noticed it before in what I assumed was IBS. When I started feeling dull aches in my testicle this year, it freaked me out. Watching my brother get cancer at 28 and die last year at 34 was hard enough. Now I get this, and under the Cipro I started to belive I had cancer, and felt extreme anxiety. An upcoming colonoscopy can really add to this anxiety.
Anyways, I feel about 50% better than I did leading upto all this, but the sensation is still there on and off. I know I probably have a mild case compared to everyone else here since I only have intermittant mild aches, but I'm only 30 and I've just disovered this problem, and I'm a little worried about dealing with this for the rest of my life.

How much might this progress?
What can I do to minimize or control this?
What do I tell my doctor?
What should I watch out for?
I don't want to spin my wheels for months with general doctors and antibiotics that make me sick. The first took a urine sample and found nothing. The second took a blood sample. Should they be checking my semen? Should I demand an MRI to look for causes or other problems?

Any help would be appreciated.
Thanks again for having this forum, I have a feeling I may become a regular visitor. It's nice to hear from others with similar complaints. Its hard to tell people, "my testicle is uncomfortable" without a long unwanted discussion.
User avatar
hodologica
Experienced
Experienced
Posts: 109
Joined: Sat Jan 17, 2004 8:16 pm

Post by hodologica »

https://ucpps.men/ and
viewtopic.php?t=1653

will answer many of your questions. Start there.

Assuming you do have CPPS, which seems very possible, you've come to the right place - hopefully your problem can be resolved quickly, but it's likely treatment could take a few months or more and in that case you will want to learn quite a lot about this on your own... and this forum and the above website are by far the best places for that. Be careful, there is a lot of misinformation elsewhere online.

CPPS can be hard, but I and possibly you have developed it at the right time. Very exciting new treatments are available that can render asymptomatic what seems to be the large majority of chronic prostatitis / chronic pelvic pain syndrome sufferers. These treatments are slow, but relatively quite safe and effective.

Whether you have CPPS, and how to obtain an accurate diagnosis from professionals, is not something I'm able to cover confidently, and hopefully someone knowledgeble will comment. However, it is my understanding that unless you have a positive bacteria culture, there is no reason to assume you are infected - and antibiotics (abx) are a bad move in that case.

Some abx including quinolones like Levaquin can have very serious consequences; observe:

viewtopic.php?t=1693

You want to think long and hard, and do some reading, before just trying a potentially dangerous treatment like Levaquin, which many people believe some doctors do not take seriously enough. Especially since - altho bacterial prostatitis does exist - there is a very strong possibility that bacteria are not the cause of your condition. Many well-informed people here believe that the rote treatment of pelvic pain with potentially-dangerous abx is a tragedy.

Relax, read, and don't rush into any treatments. If you have chronic prostatitis / chronic pelvic pain syndrome the first thing you can do for yourself is to make an effort to relax and avoid stress. There is still controversy, but most of the most-informed believe that anxiety is the biggest fundemental cause of the pelvic muscle dysfunction that appears to be the key to most cases of CPPS.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
darwin

Thanks

Post by darwin »

Thanks for the reply.
I started taking the levaquin yesterday and will be watching very closely for any reactions. The Cipro they prescribed 2 weeks ago lasted 4 days, at which point I started vomiting. I also noticed a lack of mental clarity leading up to that. I got confused and depressed. At this point it's early in my diagnosis so I still have hope that an antibiotic may clear things up.

I heartily concur with the anxiety aspect. I have noticed in the preceeding years that anxiety caused me digestinal difficulties that I thought were IBS, but could have been chronic prostatitis / chronic pelvic pain syndrome the whole time. So I've always tried to stay rather mello.
I think this "initial flare up of CPPS?" could have been brought on by a stressful 8 months in which I had my first baby (in which my wife needed an emergency C-section), followed 3 months later by the death of my brother. I am still adjusting to the responsibility of parenting and I get stressed out when I don't have the freedom to just lie down or go do things I need to get done.

If it is CPPS, which I am 90% sure it is, I feel lucky that I don't have any pain during urination or ejaculation. I can live with an ocassional dull ache in my testicle just like I've lived with rectal discomfort for years.
However, I just learned yesterday that what I have is prostatitis and that most prostatitis is not a temporary condition, so I'm trying to learn as much as I can without stressing myself out.