Hi, I've posted a couple of times and want to make some observations. After having been diagnosed with non-bacterial prostatitis last November and subjected to 5 different antibiotics, I am now fully off the drugs. I saw a 2nd urologist last week who now contends that I likely have IC, but I'm confident that I'm not having any bladder pain.
At the same time last week, I thought that I would try something different and avoid sitting at work because I noticed that I tended to feel fine the majority of the time when I wake up in the morning (laying). Surprisingly since I have avoided sitting at work and have rigged up my computer for me to stand, I have had little or no urinary urge/pain during the day that I used to have. I also notice that within about 30 minutes after I sit down in the car or at home, the pain and urinary urgence returns and I feel the flare up starting. Yet when I lay down or stand up, it whithers away.
This simple observation leads me to believe that the act of sitting is causing pressure or entrapping the pudendal nerve on my left side (where the pain mostly lies). I'd be interested in knowing how many other people on here may be experiencing the same type of problem. I have discussed with my specialists that this may be a neuromuscular problem from the start, as the whole condition started after doing heavy lifting in my yard the day before all the symptoms began. I think for many who have not found answers, pudendal nerve entrapment needs to be looked at more seriously. This is a relatively new syndrome that most doctors seem to know nothing about.
Nick
Pudendal Nerve Entrapment
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nick9c
- New Member

- Posts: 3
- Joined: Mon Feb 16, 2004 4:26 pm
- Location: Atlanta
Pudendal Nerve Entrapment
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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scoobysnacks
- Retired Mod

- Posts: 696
- Joined: Tue Jan 20, 2004 4:51 am
- Location: USA
Yes, but it may be that you caught it in time and you dont have entrapment, but rather inflammation from a muscular problem. Id think if it were entrapped fully merely standing would do little to help the problem. Do some more research, there is a board very similar to this one on pudendal nerver entrapment.
SS
SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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Paso
- Old Hand

- Posts: 325
- Joined: Fri May 23, 2003 11:34 am
- Location: Sweden
I would really go for relaxation and PT work. That could very well help you.
/Paso
/Paso
Age:34 | Onset Age:29 | Symptoms: Suprapubic burning on and off, frequency on and off, Dribbling, | Helped By: PT for sure has helped me, stretching, Baking Soda, drinking lots of water, Omega 3 | Worsened By: Concentrated urine, Coffee, Stress...
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alprost
- Retired Mod

- Posts: 557
- Joined: Thu Oct 31, 2002 2:15 pm
- Location: Scotland, UK
I'd agree 100%. If you have pelvic floor muscle spasm (particulary if your obturator internus is involved), this could compress your pudendal nerve, and the increased pressure from sitting could exaccerbate this further.Paso wrote:I would really go for relaxation and PT work. That could very well help you.
/Paso
The bottom line is that you need to be evaluated and treated (if required) for pelvic floor spasm. If you still have symptoms after this, then you should look into other factors such as PNE.
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
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prostateman
Be careful about doing physical exercises (like piriformis stretches) IF you turn out to have pudendal nerve entrapment and not just a muscular problem. This could cause aggravation or damage to your pudendal nerve. If I were you I would first see a doctor who is able to rule in or out pudendal nerve entrapment/neuropathy as a cause before you do exercises that might harm you.Paso wrote:I would really go for relaxation and PT work. That could very well help you.
/Paso
BTW, judging from what you are describing your symptoms COULD very well be related to the pudendal nerve.
Prostateman
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rr
My symptoms and solution are exactly the same. Unfortunately, I have been unable to build a lecturn in my office. Note to all, whom can I see about nerve entrapment, the first neurologist I saw snickered when I mentioned nerve entrapment and followed by asking me if I was single. I first noticed the relationship between not sitting and reduction of pain over the holidays. By the fourth day into my vacation, the pain was gone and stayed until my third day back to work. Anectodal, yes, but worthy of mentioning. Addendum, I don't believe it was stress related, like most, I was _glad_ the holidays ended.
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prostateman
See these links for some experts on the pudendal nerve: http://pudendal.info/info/doctors/index.htm and http://pudendal.de/
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alprost
- Retired Mod

- Posts: 557
- Joined: Thu Oct 31, 2002 2:15 pm
- Location: Scotland, UK
I agree that you should avoid exercises such as the one you describe if PNE is suspected. However, a manual pelvic floor exam and EMG assessment would be perfectly safe and, given that research shows that this is the key problem in the majority of cases, it should certainly be one of the first diagnostic procedures carried out.prostateman wrote: Be careful about doing physical exercises (like piriformis stretches) IF you turn out to have pudendal nerve entrapment and not just a muscular problem. This could cause aggravation or damage to your pudendal nerve.
Yes, but they are all common symptoms associated with CPPS/pelvic floor muscle spasm also. I suppose the key question is this: Is the pudendal nerve compressed due to the presence of pelvic floor/obturator internus muscle spasm, or is it entrapped due to some anatomical factor, such as an unusually shaped ischial spine?prostateman wrote: BTW, judging from what you are describing your symptoms COULD very well be related to the pudendal nerve.
Prostateman
My own opinion is that pelvic floor muscle spasm is the cheif suspect in the majority of cases, but that when people still exhibit these symptoms after having pelvic floor muscle spasm either treated or ruled out, then PNE should certainly be fully investigated.
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
