"Almost" success story: I need advice!

Male pelvic pain, prostatitis, IC
rcalab

"Almost" success story: I need advice!

Post by rcalab »

Happy New Year Everyone.

I have had chronic prostatitis / chronic pelvic pain syndrome for approximately 6 months. The condition started off with severe frequent urination (every half-hour), pain in the penis (exclusively, and not in the perineum or pelvic area), and the normal sensitivity to spicy foods, caffeine, alcohol, etc. I went through the fairly normal protocal of antibiotics, alpha blockers (Flomax), vioxx, and the befuddlement of several urologists who had no effective treatments. What has helped me significantly has been acupuncture. My acupuncturist, who also is a medical doctor (he's in New Rochelle, NY and I can give a number for anyone who might be interested) has treated me for the past 5 months, and has (at times) brought me to the point of being asymptomatic. I highly recommend him. I have been on herbal supplements, Quercetin, flower pollen, an organic diet, and avoided the problematic foods. I have suffered set-backs when I've eaten something I was unaware would hurt me (my food allergy test came up negative). I also have taken a few months off work as well to help facilitate my recovery. This has afforded me the opportunity to take yoga more consitently (great benefit here as well), and to stretch on a daily basis.

Here is my quandry. For the past two months, I have not been in the kind of pain that many on this site suffer. Yet I still urinate more frequently than what is normal (especially when stress or cold weather hits), and feel discomfort in my pelvic area (right above the genitals) as well. More pain is manifest when, again, I either eat the wrong food, work-out too strenuously (either with weights, or anything that might compress my pelvic/adominal area), or even ejaculate. After everything I'm doing (and avoiding), I am still far from 100%. Yet I've improved so much as well these past 6 months. But the question is, should I seek another treatment, either in the form of some other drug or therapy (myofascial release, etc.)? When I've ventured out to try something different (like myofascial release), I experienced too much pain and discomfort to continue the treatment. Do you guys think that my situation warrents more time with my existing treatment, and if not, what else would any of you advise?? This is still a quality of life issue for me, and I don't want to go on like this for several months or years (goes without saying). This is a particulary hard issue as there is a dearth of studies (I've found none), that are double-bind, scientific studies with patients, that evidence a treatment that not just alleviates symptoms, but actually eliminates them, or cures the condition. As so many of you are aware, it's so hard to separate an effective treatment from the normal healing processes going on in your body.

Thanks so much for your advice.

My best.
rob
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Post by webslave »

Add Prelief after anything acidic, and Zantac 150mg at night. Get into myofascial release, if available and affordable in your area. Experiment with one month only of small dose benzodiazapine (eg lorazepam) via your doctor. Ramp up quercetin dose. Give Dr Time a chance too (6 months is nothing). There are many other things to try as well:
https://ucpps.men/prostatitis-tips-things-that-help-and-hurt
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rcalab

Post by rcalab »

Dear Webmaster,

Thanks for your reply, and the many others as well. You seem very knowledgeable. Are you a doctor, or have you just acquired this info. from research?

Anyway, why should I take Zantac? Isn't it for acidic reflux or stomach problems?

I am wrestling with the idea of myofascial release, but I am not sure whether a tight pelvic floor is the cause of my condition, and I don't want to have a major setback; the area down there is definitely sensitve. That's what happened last time. I guess I'm asking why do you think it's worth the risk given that I'm not in excruciating pain at this point. That's my quandry. I just don't know how long to wait, but you're right, 6months is not a long time. What would you do in my place????

Are there any studies out there on myofascial release that are convincing from a scientific perspective?

I do have valium, and will consider using it if the pain starts to worsen. I guess the logic there is that it's suppose to loosen the pelvic floor??

Thanks so much again for you time.

rob
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Post by webslave »

Zantac is also an antihistamine that many people diagnosed with pelvic pain, often "IC", report as useful.

No, I am not a doctor, but I play one on the internet :wink:
Seriously though, I know a lot about this just through exhaustive reading.

The fact that you had a "setback" with myofascial release is indicative, in a way, that this may indeed be your problem. Dr Wise says that an increase in discomfort as the muscles are manipulated and stretched is to be expected.

Yes, benzos do help to relax muscle tissue, especially in anxious people.
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