post-urinating illness syndrome??

[Ginty]

Hi,
Was just reading this guys post and webslaves comment about "post-orgasmic illness syndrome" which basically seems to mean an onset of various "flu-like" symptoms after doing the deed.

viewtopic.php?t=689

I see mr bloato didn't get many replies at the time but I must say I identify with his symptoms but more so after urinating.
I think I've maybe always felt a bit worse after going for a pee but more recently the symptoms have become more noticeable.
Specifically I can get stomach pain/mild nausea about 5-10 minutes after and also pain in my sides/back and more recently my chest. This can last for a few hours.
My armpits are also sore these days and my eyes are generally stingy a lot of the time, and certainly when these symtoms are bad I feel exhausted.

I've mentioned in another post that I've recently started physio therapy sessions which have identified tight pelvic muscles and various trigger points but I'm just wondering if I could have some allergic stuff going on as well?
I have quite a few known allergies - eggs, nuts, dogs, penicillin - but none that exactly correlate to an onset of my "prostatitis" symptoms.

You can probably guess I'm having a bit of a bad few days in terms of symptoms and my mind's beginning to wander.

I'm not sure who to raise these concerns with though, hopefully one of you could help? I'm not really seeing any GPs/uros any more because I'm fed up being given antibiotics and I'm reluctant to raise it with the physio because I'm scared he might think my problem is something he can't help with (irrational I know).

I've been taking Quercetin for a month now and could be seeing some improvement (although nothing earth shattering) should this help if these symptoms were caused by allergens or mast cell degradation?

Do you think I should try an exclusion diet or try anti-hystamines or something, or will these symtoms abate when my pelvis gets sorted out?

Thanks for listening guys, and apologies for using this forum as a bit of a personal ease my mind/diagnose me service at present.

I sincerely appreciate any advice.

Hope you are doing well.

[webslave]

You have the variety of pelvic myoneuropathy that geos along with a form of CFS, and includes sore lymph glands, fatigue, sore eyes, gastric symptoms etc.

I had exactly this, so badly that I was bed-ridden for many months. Today I am completely over those symptoms.

Key to my recovery was working out exactly what was causing my immune system to labor (in my case: wheat, oats, milk etc) and adopting a much more relaxed lifestyle that does not rev up my brain, anxiety levels and immune system.

[Ginty]

Hi Webslave,

Thanks for the words.
I've ordered a book about food allergies and exclusion diets that I saw you recommend on another post so I'll be giving this a go.

One question, I'm a bit confused when you say the immune system is laboring and revved up - surely it should be one or the other?

In my case (more details in the "How my world crashed 2 years ago" post) I could believe that my immune system is revved up and is overactive. I'm a type O blood group and I've read this type have the strongest immune systems which is good on one hand but the downside is that it can work against it's own body.

However I don't understand why eating intolerant foods wouldn't divert the immune system, weaken it, and actually help symptoms such as the sore lymph glands. Am I not getting this right?

Thanks a lot for your help man; you're definitely making a big difference to a lot of peoples lives.

Cheers,
Stephen

[webslave]

I'm a bit confused when you say the immune system is laboring and revved up - surely it should be one or the other?

Take a car engine. Put it in neutral and then rev it up. Is it laboring more than normal now? Of course it is. Getting hotter? Yep. Using more fuel? Yep. Wearing out faster? Yep.

However I don't understand why eating intolerant foods wouldn't divert the immune system, weaken it, and actually help symptoms such as the sore lymph glands. Am I not getting this right?

No, not right. When the immune system sees some foods as invaders, it goes into attack mode, not laid back mode. When it's in attack mode, pro-inflammatory chemicals flood the body. And by the way, when you suffer from a lot of stress and anxiety, the immune system reacts in a similar way.

[Rhemium]

At one time, I had CP, fatigue, back problems, stomach issues...the whole nine.

I was told I had mono, sciatica, prostatitis...the whole nine.

These days I still have a bad back and mild/moderate prostatitis (I have gotten used to it so that it doesn't bother me too much anymore), but the fatigue totally abated after a year or so.

I don't know that I did anything to effectuate my feeling better. Time was probably on my side, but more than anything I simply the conditions relented at the same time I was learning to deal with them better.

Keep in mind for many, many months life was not worth living for me. I'm so glad I stuck it out. I never seriously considered suicide, but...you know. What can you do when you're in such agony? Wait, I guess.

From everything I read back in the day, 90% of us typically get better over time to the point that life is enjoyable again. Granted, people who don't get better may be more prone to post on a CP website...so newcomers and people who have only been sich a year or two should take heed that some of the worst stories are heard here and may not be representative of the typical CP sufferer.

Then again, who knows?

[latte]

Rhemium, nice to hear from you. My story is similar, was in bed for months in 2002, hopeless, wondering what to do next. No hope from doctors, wive thought I was crazy. Today I am leaving work early to meet my pals at the casino to watch the Dodger game and drink a few cold ones. Ah, I remember dreaming of drinking a cold brew. Over time life has gotten almost back to normal, some pain but no fatigue and can now live almost like I did before CPPS. Glad to hear you are back on track.