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Male pelvic pain, prostatitis, IC
scoobysnacks
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Post by scoobysnacks »

Okay fellas,

I recently posted I was diagnosed with levator ani, after battling prostatitis for months and months. basically I had no resting rate of my pelvic floor. After two month of therapy, massage, working with an EMG home unit and a care tens unit (elec stim) my levators have finally relaxed. No more tailbone pain. Great.

However, I still have a lock up when I begin to urinate. But once I begin my stream is fine. Usually after this happens I then seem to have urethral irritation. I've found taking Prelief throughout the day helps a ton, and I can drink alcohol again. I did have prostatitis for sure when all this started. I had perenial pain and soreness, but I dont seem to have that anymore. Just slight irritation with urinating and this lock up thing. So either my prostatitis is gone and its all muscle or I have mild mild prostatitis right now.

I figured Id try Flomax again for the lockup. It didn't help a whole lot. But I realized that if I orgasm in the morning and take my Flomax, I dont have these lockups. Youd think orgasm would make it worse, but it seems to make it better. Can anyone explain this.

My two theories are. 1) the orgasm temporarily tires the muscles in conjunction with the Flomax is enough to get them relax so they dont contract when I begin urinating. Or 2) the masturbation clears the prostate taking any possible swelling down to normal, and thus when I urinate there is absolutely no obstruction causing the muscle to contract. I just wish I could find a way to get this muscle of my urethra to relax. I dont know if they will in time now that the levators have relaxed or if there is something else I can do to bring this along.

I'm way better than I was. But I'm still not 100%, and thats where I want to be.

Your responses and thoughts on this would be great.

SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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Post by webslave »

Urethral irritation after urination: with pelvic myoneuropathy, the nerves that maintain the spasmed muscles have also caused an inflamation in the genito-urinary tract. You now have tissues in your urethra that are somewhat damaged from years of inflammation, and full of a proliferation of mast cells. In this state urine may irritate the tissues, especially after dietary indiscretion.

Lock up: as David Wise PhD states, this is not something that can be ovecome in a few months. Successful treatment of pelvic floor nerve and muscle dysfunction is a long term thing. After a mere few months, you have only just begun. You seem to have made good progress. :smile:
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thanks

Post by scoobysnacks »

Do you know of anything I can read about these lockups that Dr Wise may have put out? Thanks,

SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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Post by webslave »

Do you have his book?
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Post by scoobysnacks »

if you mean AHIP yes I have it. Does it specifically deal with these lock ups upon urinating?

SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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Post by webslave »

Well, the lock up you describe is a spasm. The book deals with that at great length. I suggest you read it.

Having a spasm directly at the point of urination may mean you have another condition called shy bladder that can lead to pelvic myoneuropathy:
http://www.paruresis.org/
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Post by scoobysnacks »

thanks for the tip.

But I never had this problem until after I had prostatitis. And actually I can remember the day in the gym when I felt a twinge in my pelvic floor. the day after had testicle pain and this lock up problem. I'm pretty sure its muscular left over from prostatitis.

Although I've experienced shy bladder at some point in my life, that is just feeling of not being able to go, no matter what. What I suffer from is being able to get the flow going, but when it hits the sphincter it contracts for a second before letting it out. I think everything is just to damn tight down in that area. How to get it out I dont know.

SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
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Post by webslave »

Have you been evaluated for urethral stenosis and/or stricture?
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Post by MastCells »

scoobysnacks wrote:I figured Id try Flomax again for the lockup
When you talk about "lockup," it sounds like you're describing contraction of the external urethral sphincter during micturition. Normally, the urethral sphincter relaxes, and the bladder muscle (detrusor) contracts when you urinate. Flomax and other alpha-1 adrenergic antagonists relax smooth muscle, not skeletal muscle, so I doubt they would help with your lockup problem if it is caused by spasm of the external urethral sphincter.
This is not medical advice. Please consult your physician.
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Post by GARYS »

webslave wrote:Urethral irritation after urination: with pelvic myoneuropathy, the nerves that maintain the spasmed muscles have also caused an inflamation in the genito-urinary tract. You now have tissues in your urethra that are somewhat damaged from years of inflammation, and full of a proliferation of mast cells. In this state urine may irritate the tissues, especially after dietary indiscretion.
What you explain sounds like what I must have. I have suffered with burning in my urethra after urinating and after bowel movements for over 10 years now. I also know that I have a pretty bad case of Levator Ani Syndrome (I guess thats the same category as pelvic myoneuropathy), after a bowel movement I feel like someone shoved a broom stick up my ass. It usually lasts about a half hour. But the burning kills me. When you say tissues in the urethra could be somewhat damaged is there any repair? What would you do?
Thanks
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
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Post by webslave »

Quercetin, ProstaProtek, Prelief, treatment for pelvic spasm, and this protocol:
https://ucpps.men/prostatitis-tips-things-that-help-and-hurt
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Post by scoobysnacks »

Mast Cells,

I think you are right about it being the external sphincter and I think that would make more since too, since I suffered from levator ani.

So what drug do you think would work to end the pain cycle and relax this muscle. I know while I drink alcohol and even the next day until about 6-7PM I urinate without lockups suggesting to me I need to depress the CNS for a bit and stop the pain so this cycle can be ended. It sure feels circular right now. I was thinking Elavil (says its a mast cell protectant and muscle relaxant (but how well does it relax muscles?)) along with Ultram at a pretty low dose. I'm trying not to go teh valium route if I dont have to. What do you think?

Your thoughts, ASAP, I see the uro tomorrow and want to be armed with what to ask for. THanks so much.

SS
Age:29 | Onset Age: 25.5 | Symptoms: Initially burning in prostate/perineum, burning in urethra, uncontrollable muscle contraction before urinating, dual ache in groin, left testicle pain, feeling of golf ball in rectum, soarness in rectum, and muscle spasms, now mainly very mild urinary tract inflammation, burning mildly after ejaculation, some days after physical activity involuntary mild muscle contraction before urinating | Helped By: .5 mg of Ativan, Aleve (naproxen), quercetin, alcohol in large quantities (vodka and soda), stretching, walking, internal massage the perineum area and levators. | Worsened By: sitting, weightraining, jogging, coffee, caffeine in general, alcohol bothered me at first, overdoing sex
MS

Post by MS »

Have you tried Flexeril?

viewtopic.php?t=1505
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Post by GS »

I would try valium if I were you. A low dose can provide good results without side effects or addiction. I have been taking valium for 9 months and it definitely helps with the burning sensation in the urethra which is likely a result of muscle spasm in the levator ani. Physical therapy is also very important. Follow the Stanford/Wise-Anderson Protocol.
Age: 39 | Onset Age: 32 | Symptoms: urethral burning, increased urge to urinate, pain after sex, rectal fullness, now much better 6 years into Stanford/Wise-Anderson Protocol | Helped By: PT(trigger point therapy), paradoxical relaxation, valium, hot bath, stretching, Theracane | Worsened By:too vigorous sex, skipping stretches and daily relaxation
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Post by MastCells »

scoobysnacks wrote:So what drug do you think would work to end the pain cycle and relax this muscle. I know while I drink alcohol and even the next day until about 6-7PM I urinate without lockups suggesting to me I need to depress the CNS for a bit and stop the pain so this cycle can be ended...I'm trying not to go teh valium route if I dont have to. What do you think?
Both Flexeril and Valium cause relaxation of the skeletal (voluntary) muscles. Either one might help you if your symptoms are caused or aggravated by pelvic muscle tension.
This is not medical advice. Please consult your physician.