Injections

[james-d]

Well - all is still well with me.

I met with my Uro last week - and it went well.
We are going to continue the current protocol for another 6 months and then re-address the situation.

I feel the best I have felt in over a year now - this is really fantastic.

I do however have a "killer cold" and would like some advice on the best prostate friendly decongestants our there.

Thanks
-Jim

[james-d]

Status Report: Still 100% symptom free.

Its a good day!

[webslave]

A word of caution: not all people have good results from this, as can be seen here.

[james-d]

Agreed - and I hope that I didn't imply it is a cure all or a panacea (spelling?).

It is - in many ways - a treatment of last resort and desperation.

All I can say is it works for me...

[james-d]

I guess I will post my update here since the other section is locked.

I have'nt posted in a while relating to this and thought I should give a full and honest update. I started to get the begining syptoms of a relapse/flare up over 6 months after my injections. I consulted with my Uro and we promptly scheduled a second round of injections - this time we did four sessions (at two week intervels) - they were completed about 7(+/-) weeks ago.

Results are exactly as before - completly symptom free.

As I stated before - I do not think this is a cure - but another avenue for treatment available to peole who are at their wits end.

(For details see my posts under success stories.)

I thought it was important to post this follow up because I do not want people thinking I am some shill selling some miraculous cure all - obvoisly there are limitations to this approach.

But for me the relief is last and excellent - and I never really relapsed into the hell I was in before - I have no way to know how bad I would have gotten if I did not get right in and do another round of injections.

So - for me this is a treatment that requires periodic maintenance - and that is ok by me - and better then the alternative I was in before.

[webslave]

I have'nt posted in a while relating to this and thought I should give a full and honest update. I started to get the begining syptoms of a relapse/flare up over 6 months after my injections. I consulted with my Uro and we promptly scheduled a second round of injections - this time we did four sessions (at two week intervels) - they were completed about 7(+/-) weeks ago.

Results are exactly as before - completly symptom free.

As I stated before - I do not think this is a cure - but another avenue for treatment available to peole who are at their wits end.

(For details see my posts under success stories.)

I thought it was important to post this follow up because I do not want people thinking I am some shill selling some miraculous cure all - obvoisly there are limitations to this approach.

But for me the relief is last and excellent - and I never really relapsed into the hell I was in before - I have no way to know how bad I would have gotten if I did not get right in and do another round of injections.

So - for me this is a treatment that requires periodic maintenance - and that is ok by me - and better then the alternative I was in before.

As I said, James, in my opinion intraprostatic cortisone injections are at best a maintenance procedure that do not get at the root cause of pelvic pain. In time you may tire of the constant need for more injections and seek more permanent therapies.

[Guest]

Glad to hear you are still doing well - thanks for keeping us posted.

[james-d]

Webslave - I noticed that you moved/copied my post along with your reply and I wanted to respond (I would appreciate it if you would move this as well to keep the thread cohesive).

I do not know (nor does anyone unfortunatly) wether the steroids, anti-biotics, anti-fungals or xilocaine has the predominant effect at symptom suppresions for me. My best guess is that it is a synergistic effect of the cocktail.

In response to you urging to try more - I have tried everything posted here (except a visit to Stanford which is not practical or possible for me).

I have purchased Wise's book and while I find it interesting - I did not find it helpful symptomaticly.


My (rather odd and unique) protocol of innjections combined with low dose anti-biotics, Quercitan, Grape seed extract, and Avodart works for me. It may just be that my biology is different - I don't know.

I feel you are minimizing my research and efforts at exploring different protocols to say that when I "tire of them" I will go a different route. I have been down most all routes at this point (sans stanford and surgery - and I would definatly try stanford before surgery - since we all know that surgery is a poor option with almost no chance of success).

I just wanted to respond - and I hope you tag this onto the thread you moved - I would appreicate it.

I respect you and this board and I know my approach has been different - and I want to be honest about the limitations of it - but in the end - it is about improvement and overall health - and mine feels great.

Thanks for all the help over the course of this illness - I will repost on this topic as the situation warrants it or in response to questions.

[webslave]

I don't think that your latest response adds much, James. The facts are that you have had numerous injections over many months, yet your reports now talk of relapses, just as I expected they would.

Your treatment with injections is only affecting the limited areas of the prostate. It has no effect on pelvic muscles and pelvic nerves. It is threfore an incomplete treatment protocol.

You will be forced to have these injections indefinitely to maintain a semblance of cure.

Stanford (and other centers like it, eg. Jerome Weiss in SF) hold out hope for a more comprehensive treatment paradigm.

Your input has been useful in showing both the effectiveness as well as the limitations of intraprostatic injections.

[james-d]

Every now and again I like to post my progress - and it has been a while now.

Summary: Treatment protocol of periodic injections (antibiotics + cortisone) and low dose antibiotics, quercetin, grapeseed extract and avodart.


Current status is 100% symptom free for many months now.

I suppose some day it will come back (maybe soon) and I will do another round of injections - but for now I am still doing very well.

For anyone interested - read posts under success stories - injections under my name.

Remember - I do not think this is a cure - just a valid form of treatment - and for me it works wonders!

Keep fighting -

As an aside - I just have had a new addition to my family - little girl - and she is well - so - for anyone that thinks you can't have a family due to this dread disease - there you go.

I would have thought the stress of another child to be enough to bring on a flare - but not yet!

-Jim

[scotsman]

Hi Jim

Thanks for the update and congrats on the baby girl

My wife is 6 months pregnant so I'm not far behind you!

Richard.

[MastCells]

Just another follow up on the injections. So far -I still feel great.

Please read the following thread before drawing any conclusions from James' "success story:"
viewtopic.php?t=2660

[james-d]

Hello all -

I am still doing very well - lets say 99.95%

Only pain comes after long periods of sitting on hard surfaces (wooden chairs, etc) - and that fades overnight.

I notice however - that when I induldge a particular food vice (Indian - Lamb Vindaloo - soo spicey it burns my hair off!) that I have some discomfort and tempoorary inflamation that NSAIDS can keep in check - but takes a day or two to go away..... (I tried Prelief - but no help there)

any thoughts.......


other then that - I am doing great....

[webslave]

Pain from spicy food suggest the urethra is still inflamed. So the injections are merely masking the symptoms, unfortunately. No cure there.

[james-d]

Thanks for the thought.

I haven't had any injections in well over 18 months (or so )...

Pain is only when I eat these foods and quite transatory - so - I guess avoidance is in order....

In terms of a cure - I never thought the injections were a cure - just a good modality of treatment - and for me - that has proved to be very helpful.