Am I goin Crazy

[bergie]

It started with a feeling of having to go the bathroon often, uncomfortable urethra, Discomfort in perineum area...then pain in the ingeniual area.
10 days of Doxcyclins, 3 weeks of Cipro...pain in groin increased...3 more weeks of doxcycline..finally went to urologist...he gave me Flomax and said prostate felt fine. Said he found a small inguenal hernia.

Last few days up at night with throbbing pain in right groin, burning perineum. Uncomfortable testicles.Take lots ibuprofun, No help. Have a return visit to urologist in 2 weeks. Called today to get in sooner and they ask me if I called a general surgeon. I said no, I was supposed to go back and see them. So they gave me a appt for wed. Asked for something for pain told me to go to emergency room. Could not prescribe without seeing physician.

I'm venting and pissed. 3 months of this crap. I'm at my wits end. They made me feel like a drug addict when askin for something for pain. I'm a 41 year old male.

Any opinions. Just found this site. I feel like I've never been diagnosed. Had STD tests and urine sample. All came clean.

what do you do. I hate doctors

[TK]

Bergie,

First, take a deep breath: you have finally arrived at a place where you will find credible, trustworthy information.

Before going forward here, I want to flag this:

...said he found a small inguenal hernia.

I don't know enough about the inguenal hernia to offer an opinion about how if might cause or influence the Pelvic Pain Syndrome that you are experiencing. But there are others here who are more knowledgeable than myself, and I am fairly confident that someone will answer you with better information than I can provide.

Update:I checked with our very best guy, who has an astonishing range of knowledge about these things. He is in the midst of moving his household. Of course nobody here can diagnose your condition, but the preliminary word is that the Hernia may have little or nothing to do with your condition. So for now, we can proceed to...

That said, the good news is that the condition you generally describe is now being successfully treated in large numbers of men by a addressing 1) problems of the pelvic floor musculature and 2) Inflammation.

See: viewtopic.php?p=3045

This does not describe everyone's condition. But it does cover a pretty large proporition of the cases that -- one year ago -- would have been considered mysterious. To put it another way, the "missing link" has been identified. Many people have contributed to the solution over time, but right now the focus of progress is a protocol pioneered at Stanford University.

Here is a summary about the book that describes the Stanford Approach
https://ucpps.men/the-wise-anderson-protocol

I understand that the book is sold out. I would advise you to get it and read it, but you can find out what you need to know without it.

And, while it takes a little resourcefulness to find the treatment in your region, you can probably find a way to do this. This isn't one of those things that you necessarily must travel to get.

Most urologists are not yet aware of this; for complicated reasons, this condition became one that most urologists treated dismissively or in a half-way manner. It's a shame that, even now, many urologists are not aware of actual causes of the condition and new treatments that work. But this is changing quickly now. Understand that your frustrating experience with doctors is pretty much par for the course.

This is important basic information:
viewtopic.php?p=5242#5242

There is a wealth of information on this forum

Start browsing the "Success Stories" sections as well "Muscle Spasm" and "Supplements". Many, but not all of the supplements deal with some aspect of inflammation. Your current pain may require the more powerful prescription anti-inflammatories, but you will want to understand the general principles of inflammation and how you can safely and steadily reduce it over a period of months.

Also see the associated Website. Much detailed information here
https://ucpps.men/


The main thing is you can immediately stop "going crazy". The pain is still with you, but you have now entered the land of good information where many people find answers and progressively get better.[/b]

[danno]

hi bergie,
i thought my pain was related to a small inguinal hernia and wound up having an open mesh repair two months ago. it was a bad idea - that wasn't the cause of my pain (very similar you yours) and it was very disheartening.
it may well be the problem in your case but please be sure, I made the mistake of taking a stab in the dark (my groin) and it was quite stressful and unnecessary.
the problem really lies with f'ing doctors who don't give us the proper support and guidance we need.
good luck.

[bergie]

For the response.

Battle still going on. The latest on my condition is I'm on Flomax. Felt better for a while. Had sex a couple times with wife and boom....its back. I thought after it went away for a few weeks I was over the hump. But this last flare up was the worst. Pain above penis(would that be bladder pain?) at end of urination...burning urethra at end of urination, perineum pain. Wonder if wife and I could be passing something back and forth. Of course urine samples always come back clean.

I wonder about my uro.....just shakes his head and says that it is encouraging that I had a few weeks of relief and that it is common to have flareups after sex. He did say that some men sex bothers the syndrom and others it helps. anyway...thanks to all and thanks for this site. Just knowing your not alone is important

[scotsman]

Wonder if wife and I could be passing something back and forth. Of course urine samples always come back clean.

Flare up after sex or orgasm is very common - I think almost everyone on here suffers from it to one degree of another. Nothing is being passed back and forth though - so don't worry about that.