My Story

[WS1234]

Yes, I have tried Prelief but it didn't have any noticeable impact.

[webslave]

Might be worth getting an HLA-B27 genetic test. Your joint pains may suggest an immune system problem. Any back pain?

If it comes back positive, suspicion index rises on the immune system as a cause. Won't necessarily help you to get better, but will give you some peace of mind and may suggest other treatments.

[WS1234]

I did have that test done during year 1 and 2 but it came up negative. All my blood work is normal. I saw two Rhemos in Toronto and both felt it wasn't Reiters or an immune system condition or arthritis. I do have some minor back pain, and I'm sore all over basically, but it's more muscle soreness and tenderness than joint pain.

[webslave]

Probably fibromyalgia then, which BTW is often comorbid with CPPS. In fact, having fibro is reassuring in a way, because it allows you to finally forget about an infection.

[WS1234]

Hi All,

Checking in with a bit of an update - not much new to report unfortunately. I have seen 4 of the most experienced pelvic PTs in my area over the last couple of years for regular treatments, but unfortunately none have been able to help with my symptoms. I've also been working on mental health (various relaxation techniques, CBT, EMDR, hypnosis, other forms of psychotherapy). I have tried modifying my diet, eliminating cannabis, DCT, but I can't seem to make any progress. Any other ideas?

[webslave]

As I said above, it's very likely that you have a systemic condition like fibromyalgia.

[WS1234]

How would you advise I proceed webslave? Who should I see, and what do you think I can try to at least dampen my symptoms? I do have widespread pain, but my pelvic pain (particularly my urethral pain) really sticks out compared to the rest of my body. I know this isn't a FM board, but I have also observed that FM runs co-morbid with CPPS for many people.

[webslave]

You need to research FM. There's a lot of stuff online. This forum is much more CPPS-specific, and yes, because it's sometimes co-morbid many of the things we do to lessen CPPS symptoms will help FM, specifically on the psychological side, such as deep relaxation.