Unfortunately, as a public forum we are at the mercy of the many slightly obsessed and anxiety-prone men who have this condition. Many are absolutely and fixatedly convinced that they are afflicted with an ineradicable infection, and there is little we can say to deter them. Such men typically report symptoms (multiple concurrent bacterial infections, constant purulent discharge etc) that are so unusual as to put them far outside the norm here. To avoid confusing the other 99% of readers, such posters will be vigorously discouraged.
"Infected by many strains & dripping pus"
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webslave
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"Infected by many strains & dripping pus"
"I'm infected by many strains of bacteria & dripping pus all day"
Unfortunately, as a public forum we are at the mercy of the many slightly obsessed and anxiety-prone men who have this condition. Many are absolutely and fixatedly convinced that they are afflicted with an ineradicable infection, and there is little we can say to deter them. Such men typically report symptoms (multiple concurrent bacterial infections, constant purulent discharge etc) that are so unusual as to put them far outside the norm here. To avoid confusing the other 99% of readers, such posters will be vigorously discouraged.

Unfortunately, as a public forum we are at the mercy of the many slightly obsessed and anxiety-prone men who have this condition. Many are absolutely and fixatedly convinced that they are afflicted with an ineradicable infection, and there is little we can say to deter them. Such men typically report symptoms (multiple concurrent bacterial infections, constant purulent discharge etc) that are so unusual as to put them far outside the norm here. To avoid confusing the other 99% of readers, such posters will be vigorously discouraged.
Good News! The great ProstaQ is BACK at last! You must try it.
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james-d
- Veteran

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I agree that some men can become rather compulsive in thier treatment search - bit since we have no true science that any recognized medical authority says is the true cause (short of the 5% of positive cultures for acute bacterial prostatitis) - isn't it best to be more open minded and examine all venues (nuro-muscular, bacterial, viral, etc...) - It seems to me that without furthe guidance from the medical community - we are on our own to experiment with a variety of treatment.
Besides - that quote you refrenced may be true for that guy (unless you just were using a random quote to make a point) - we have no way to know - do we?
Besides - that quote you refrenced may be true for that guy (unless you just were using a random quote to make a point) - we have no way to know - do we?
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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webslave
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Plenty of time (far too much time in fact) has been devoted in the preceding decades to the bacterial etiology concept. So much so that today we see people convinced, STILL, of the erroneous concept of a raging infection in their glands. Recent research absolutely disproves this approach. Why are so many men reluctant to read this research and absorb this fact? (apparently this includes you, james-d)
So, in answer to your question: No, we will not have an open mind any longer to people who obsessively post here about their convictions of an infection, their delusions about "purulent discharges" dripping from their members (despite negative cultures), and the endless exchanges that go something like:
Some of these posters/patients have spent years shopping from uro to uro, lab to lab, until they are able to report that they have identified bacteria, sometimes several strains, that showed up on one or other lab report. Usually these patients demand long broth cultures that magnify any one bacterium into what seems to be a huge infection. We are dealing here with contaminants in the vast majority of cases. Typically, the same bacterium cannot be cultured by another lab or a subsequent test. Another common scenario: a patient takes a particular antibiotic that makes him feel better for a while. He is then totally convinced that he has an infection. He does some research and finds out what bacteria that particular antibiotic combats, then reports to others with complete conviction that these are the bacteria infecting him.
So, in answer to your question: No, we will not have an open mind any longer to people who obsessively post here about their convictions of an infection, their delusions about "purulent discharges" dripping from their members (despite negative cultures), and the endless exchanges that go something like:
[Poster then starts another thread with a similar theme ... ad nauseum]Poster: My cultures are negative but I think it's an infection. What do you guys think?
Us: It's not an infection. Do some reading.
Poster: So is it an infection, or not?
Us: Not
Poster: But are you sure?
Some of these posters/patients have spent years shopping from uro to uro, lab to lab, until they are able to report that they have identified bacteria, sometimes several strains, that showed up on one or other lab report. Usually these patients demand long broth cultures that magnify any one bacterium into what seems to be a huge infection. We are dealing here with contaminants in the vast majority of cases. Typically, the same bacterium cannot be cultured by another lab or a subsequent test. Another common scenario: a patient takes a particular antibiotic that makes him feel better for a while. He is then totally convinced that he has an infection. He does some research and finds out what bacteria that particular antibiotic combats, then reports to others with complete conviction that these are the bacteria infecting him.
Last edited by webslave on Thu Oct 16, 2003 2:01 am, edited 1 time in total.
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webslave
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A couple of posters have complained about my stance on this issue, feeling that we should encourage lots of bacteria-related chit-chat and anal-compulsive discussion on this tired topic, perhaps even creating another forum for those who want to vent on bugs.
I have deleted those complaints and will continue to do so.
If you want to have an uninformed and reactionary discussion about Flat Earth theory or bacterial chronic pelvic pain, please visit Usenet:
http://groups.google.com/groups?as_ugro ... rostatitis
Goodbye!

I have deleted those complaints and will continue to do so.
If you want to have an uninformed and reactionary discussion about Flat Earth theory or bacterial chronic pelvic pain, please visit Usenet:
http://groups.google.com/groups?as_ugro ... rostatitis
Goodbye!
Last edited by webslave on Tue Oct 14, 2003 6:17 pm, edited 1 time in total.
Good News! The great ProstaQ is BACK at last! You must try it.
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ourban
- New Member

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- Location: Germany
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webslave
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Ourban, your posts started this thread. If you feel you have been treated unfairly or want to take up the issue with me privately, I am more than willing to debate or advise you. Email me at [email protected] if you wish.
Or, as a German speaker, you will find many sympathetic to the "Old School" of thought at the German Prostatitis forum:
http://www.medizin-forum.de/partner/ind ... D=44876951
Or, if that looks like a dead end, start again, with a different attitude, here:
viewtopic.php?t=1095
Or, as a German speaker, you will find many sympathetic to the "Old School" of thought at the German Prostatitis forum:
http://www.medizin-forum.de/partner/ind ... D=44876951
Or, if that looks like a dead end, start again, with a different attitude, here:
viewtopic.php?t=1095
Good News! The great ProstaQ is BACK at last! You must try it.
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alprost
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- Location: Scotland, UK
I've been thinking about this and it has made me re-examine many of the emotions I went through when I was first diagnosed. I think a key reason many men still cling to this opinion is, quite simply, the hope for a quick fix or magic bullet to 'cure' them.webslave wrote: Why are so many men reluctant to read this research and absorb this fact?
When I was first diagnosed, and read that bacterial prostatitis (but NOT CPPS) could be easily treated with ABX I wanted to believe that I had an infection which was solely responsible for my condition, as it meant that my problem could be easily treated and would quickly clear up. In short, I too wanted a 'magic bullet'. When I was switched to a course of Doxycycline, and the intense burning/red hot coal sensation coming from my prostate started to subside, I thought I had found it and that my life would soon be back to normal.
Unfortunately, although my prostatitis went away as a result of the ABX, I was still left with all of the usual pelvic pain and urinary problems associated with CPPS. I then was forced to face the reality that infection was no longer responsible for my remaining symptoms, and that there was not going to be any magic bullet for these.
However, the question about infection still lingered in my mind, and it was not until I saw a Physio who specialised in pelvic pain that I finally accepted that infection was in not in any way responsible for my remaining symptoms, and that now I had severe pelvic floor muscle spasm (whcih he felt was initiated by the Prostatitis). However, my hope for a magic bullet was replaced by a new hope, albeit a 'slow fix as opposed to a quick fix', that my condition would be significantly improved by a course of myofascial release.
So for those people who are long time sufferers and are still clinging to the belief/hope that, despite of all of the current research, they have an infection, I don't believe there will be any quick fix in the form of an antibiotic. Most people with chronic prostatitis / chronic pelvic pain syndrome do not even have an inflamed prostate, let alone an infection!
I know I've stated this before, but diagnosis of chronic prostatitis / chronic pelvic pain syndrome should involve 2 key parts:
1 - Urological conditions such as UTI, strictures and bacterial prostatitis MUST be ruled out (the vast majority of sufferers) or treated - New sufferers should not jump to the conclusion about whether or not they have an infection until they have seen a specialist. I believe this is the first step in the Stanford/Wise-Anderson Protocol.
2 - After this you must have a full examination of your pelvic floor muscles comprising of a manual exam, and a computerised assessment of pelvic floor muscle function. According to high quality research, you have around a 90% chance that pelvic floor muscle spasm is a large part of your problem.
An important point is that by the time they get here, most sufferers have already been through the first stage - Some several times as Mark points out above! So, to those people who have been through the first stage, but, despite the current research, believe that they still have an infection, I have a question: How many of you have actually had your pelvic floor muscles examined by a specialist?
If you haven't I'd advise you to let go of your hopes that you have an infection which will be easily cured by ABX, and go and get a pelvic floor exam ASAP.
Take a look at the 'Success stories' forum - How many people who have had longstanding chronic prostatitis / chronic pelvic pain syndrome are reporting significant improvements as a result of ABX?
Being right or wrong about something is not important - getting better is
Last edited by alprost on Mon Oct 20, 2003 11:08 am, edited 3 times in total.
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
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MastCells
- Retired Mod

- Posts: 748
- Joined: Sun Nov 10, 2002 3:46 am
- Location: USA
Amen, Mark! For those obsessed with bacteria, who choose to ignore all the recent research on this condition, and who are impervious to reason, see ya!webslave wrote:A couple of posters have complained about my stance on this issue, feeling that we should encourage lots of bacteria-related chit-chat and anal-compulsive discussion on this tired topic, perhaps even creating another forum for those who want to vent on bugs.
I have deleted those complaints and will continue to do so.
If you want to have an uninformed and reactionary discussion about Flat Earth theory or bacterial chronic pelvic pain, please visit Usenet:
http://groups.google.com/groups?as_ugro ... rostatitis
Goodbye!
This is not medical advice. Please consult your physician.
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tractor316
I agree , but unfortunately Dr.s keep looking for bacteria and treating bacteria , so the average person puts too much trust in there MD when it comes to CP . Its hurting these individuals who will not change there way of treating CP . Its really a shame . We can only keep on passing out the truth here on this site .....
