My Experience

[SoraStar]

Can having a Cytoscopy cause CPPS Flares? The razor blade peeing feeling is almost completely gone but I have noticed pains starting up again in the usual places, and having to strain to get myself peeing. Just more side effects of the Cytoscopy maybe?

[webslave]

Yes. The pain from the cystoscopy upregulates nervous activity. It'll die down in due course.

[SoraStar]

Howdy! Just checking in on here. Life has been super busy lately but thought I'd come and give an update on myself.

The past couple months I've felt pretty damn good. Hardly any pains or discomfort at all. I saw the Urologist and we talked about the bladder irritation and he said he was leaning towards I.C. and he put me on Amitriptyline. I really don't like taking it cause it knocks me out for almost a whole day, so I don't know, I guess I'll take it as needed maybe.. but so far hardly any symptoms.

Every once in a while I might get a irritated feeling, pressure, or urge to go pee more than I need to, but that usually only lasts maybe an hour or two and then I'm back to completely fine again. So far so good honestly. When I started this journey around March of this year it was really bad but I've come so far and gotten so much better. I'm very thankful for this site and the advice I've read. So, Thank you, Webslave for keeping this place open for folks who suffer from this, you rock!

Also, that book, Headache in the Pelvis I think has been the major factor in my recovery. I do the stretches almost everyday and so far that's really calmed it down so if you don't have it yet, I highly recommend it, like most others on this site will do as well.

Keep fightin!

admin comment:

[SoraStar]

Hey guys! It's been awhile since I last posted on here so I thought I'd check in and give an update.

Holy crap it's been almost a whole year now since this all started and I've certainly learned a lot about this condition and how to battle it. Since my last post I honestly feel like I've been pain and discomfort free.. at least until today. My urologist gave me amitriptyline to take for the pain but it makes me so sleepy that I don't even want to get out of bed so I don't really take it at all. I've been taking a supplement that has a lot of good stuff in it and it seems to help. But especially lately I've been forgetting to take it in fact I've honestly been taking nothing not even doing my stretches and I'm doing okay for the most part no pain no discomfort really at all. But like I said today is a little different this morning I went to go urinate and I felt the muscle cramp and pull after I was finished so I knew that something was up.

So right now even as I type this out I can feel a little bit of discomfort in the usual places but it's not painful much or really bad it's just mildly annoying.

So this leads me to my question. Yesterday I was drinking an awful lot of fluids and going to pee almost every half an hour to one hour.

Can urinating a lot cause symptoms to flare up and irritate the muscles??

Because that's the only thing I can really think of because up until this point I was doing really really good.

Anyway hope all you guys are doing well and hope 2018 turns out to be a good year good for all of us with this condition.

[webslave]

What were you drinking so much of? Bladder could be irritated

[SoraStar]

White Tea.

[webslave]

That's a LOT of caffeine then. Caffeine is a well known trigger for IC symptoms. Try Rooibos tea.

[SoraStar]

Actually Black and Green tea have more Caffeine than White Tea does. White Tea levels of Caffeine are pretty low in fact, but still has it nonetheless..

But yeah, I'm going to try and switch off of Caffeine as much as possible so I'll give Rooibos a try. I've heard of it before but never tried it.

I've been feeling slight discomfort the past couple days, so I'll do what I have to so it doesn't go back to how it use to be..

[webslave]

White Tea levels of Caffeine are pretty low in fact

Nope.

The mean caffeine content of white, green, oolong, and black teas were tested as 16.79, 16.28, 19.31, and 17.73 mg/g.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4787341/

[SoraStar]

Very interesting read. That sure makes me view Tea a little differently now.

Thanks for that.

[SoraStar]

Hello people. Been a long time since I was last on here. Last time I posted was March and it's October now and considering I felt a slight pain down there today it reminded me of this place, haha.. Since I last was here I've had barely any pain or discomfort at all. The only time I get pain is when I'm doing things of a sexual nature. Especially post-orgasm, that's when I get a little bit of pain but it's nothing bad, just a very mild ache but it eventually goes away after 30 mins or so. Some stretching and relaxing helps big time (for me at least).

I am not taking any medication or supplements at the moment and overall I seem to be doing pretty well.

Have I finally conquered this? Hmm.. I wouldn't go that far but it's pretty damn close. It doesn't affect me like it did last year and as I stated above, the only time I feel any discomfort is during sexual activities which I hear is pretty common any way.

Hope every one else is doing ok as well as made progress combating this nasty condition!

Admin comment:

[SoraStar]

Hello folks. Wow! My last post was back in 2018!! Time sure goes by fast doesn't it??? I hope every one has been doing well and keeping safe and healthy.

I thought I would come back and say that an old friend has come back to visit me once, that friend being CPPS Pain. Yep, it's back once again. It was gone for a few years and then came back like 3 days ago. But I'm pretty sure it's my own fault that it came back this time. I wasn't sure at first what was going on but then those all too familiar symptoms I had back when I first joined up here back in 2017 started up and then I instantly knew it had come back. Needless to say I was floored. I thought I was over this. I had been living my life and thought this was all way in my past but I guess it never truly was gone fully.

Can you have flare up every few years or so? Is that common? Because I've noticed the first time this all started was back when I was 16 then it went away for 4 years then it started again in March 2017 when I was 20 then it went away and now it's back.. once again in March2021 and now I'm 24. So it's like it comes back every 4 years to say Hi and remind me its still around.

Any way, I do feel like I brought this upon myself this time. I'll spare you to details but I probably way over did it with the self pleasuring about 3 days ago and ever since that day stuff down there has started to hurt and been super tight along with the typical CPPS symptoms so I'm guessing I have reagitate my old condition back once more.

Thoughts?

[webslave]

Excessive use of the nerves in the pelvic floor can reactivate a subclinical condition.

[SoraStar]

Excessive use of the nerves in the pelvic floor can reactivate a subclinical condition.

Yep, that's what I kind of figured. Going to take it easy for a few day and hopefully it'll calm things down.

How have you been doing, webslave? It's been a long time.

[webslave]

Doing okay, thanks. Glad to hear you've had long remissions, and no doubt you'll soon be in remission again!