My Experience

[webslave]

Remember that once pathology has been ruled out, uros aren't much use to people with IC/CPPS.

Don't let him put you on antibiotics again. Simply refuse them unless you are given a test that shows high bacterial count, NOT simply pus cells.

If you have not had a cystoscopy, and he wants to give you one, allow it, if only to rule out some conditions and maybe rule in IC (google "Hunner's ulcers")

Ask about the IC diet. If he does not know what that is, don't see him again.

Try Flomax or other alpha blocker if offered (probably won't help, but worth a try).

[SoraStar]

Thanks, Webslave!

Yeah, I think I'm past Antibiotics now. At this point I'm willing to do any test at this point that might help figure it out because they havent DONE ANY on me. The only tests I've had done we're 1 simple unrine test and 2 DRE. So more tests would be nice, if only to rule out stuff so things are more clear.

Btw, I'm a little worried he'll want to check my Prostate again. The last time that happend when the NP did it, it seemed like it made stuff down there worse. Is that possible?

[webslave]

Yes, it can make things worse temporarily. By pushing the prostate and muscles behind the prostate, a flare can result. Happened to me as well. But it only lasts a couple of weeks usually.

You can ask him not to push too firmly on the prostate because it causes you a flare in pain. The firm pushing is to check for nodules (cancer) usually, but in someone your age it's inappropriate.

[SoraStar]

Also, you mentioned Flomax, the crappy Uro I went to see suggested that for me as well but I've never ever had any issue with going to pee, so I dont think thats needed in my case.

Alpha blocker? What is that and what does it do?

[webslave]

I don't think alpha blockers like Flomax (which relax the smooth muscles of the prostate) are much help, but a few men like them and it's one of the only medicines uros can prescribe for this disorder. So if offered, try it. They are pretty harmless.

[SoraStar]

So Flomax and Alpha blocker is the same thing? Didn't know that.

Like I said above I've never had a problem with urine retension or peeing at all. It's been perfectly normal so I dont see how that would help me out at all.

My main issue right now is just pain and discomfort. Back in March when I first posted here about this I had a few issues going on but that's pretty much all gone and now I just have pain that comes and goes day to day.

I'll ask about it though and see what he says.

Also, can a Uro give referals to a PT since I've seen that seems to be the most help that I've seen people talk about..

I have no way in hell right now of getting money to goto that Wise Anderson Clinic so I don't know what else to do after this if the Uro can't help me.

[webslave]

Alpha blockers and prostatitis / CPPS:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1765040/

PT referral can be helpful

[SoraStar]

Thanks for that link, webslave! That was very informative and I will be sure to bring it up with the Uro. It might be worth a shot since it was said it can help with pain.

The only thing I really dont like about taking those, and I know this will seem kinda silly since I know it's harmless... but I know that those kind of meds can mess up the whole ejaculating process and it can go into your bladder. For some reason that really weirds me out. I know it's completely harmless but still makes me feel weird just thinking about it.

Also, if I do get those meds and they help me out. Is this going to have to be some thing I take the rest of my life?

[webslave]

No, not for the rest of your life, just while CPPS lasts.

If you do try a-blockers, give them at least 3 months to see if they work.

[SoraStar]

Ok, so I'm back from the new Urologist that I was refered to and I learned this Uro is in the same group that the first and BAD Uro I went to see is..

He was a bit more helpful than the last one.. A BIT.. He did actually listen to me, but still didn't have a good bed side manner. I guess the jerks all seemed to work together eh? .. He didn't even shake my hand

SO I told him everything that happened from the very beginning and told him about CPPS and Stress and he did nod his head like he had heard of it before. He said my Urine looked fine and that there was no sign of bacterial infection. He said he wanted to give me a Xray of my bladder, kidneys.. etc and said it was completely clear and no signs of anything. He also gave me another Prostate exam and said he felt perfectly normal (yay!). Last one I had a couple months ago I was told it was a boggy.

He gave me a prescription for Flomax and said that in his experience people with Nonbacterial Prostatitis a lot of guys get some relief from this and gave me a 2 months script for it and will see me in 2 months too and check up with me. He said that yes it does help voiding but it does so by relaxing the nerves down there which made me ask him if he thought it might be stress related and he said "possibly, yes. I've seen that people who have stress do get tense down there and it causes the nerves to become over active."

So, looks like I've on the right path I THINK.. We'll see how this Flomax does. The retrograde Ejaculation still weirds me out though, I don't want to mess up my plumbing down there.

Anyway, I'll keep ya posted on how the Flomax does for me. I'm going to start taking them tomorrow!

[SoraStar]

Anyone have any comments?

[webslave]

I think you're about finished with uros. Let's see if Flomax helps within 3 months. Meanwhile, try the other recommendations discussed on the forum

[SoraStar]

Yeah, I think so too. There isn't much they can do for me since there isn't much options yet for this condition.

Webslave, I did want to ask you if you know any thing about tricyclic drugs such as Tofranil. My mother has bladder issues which is caused by stress and her Doc gave her Tofranil and she said it does help her. The reason I ask is becaus this Uro I went to mentioned it to me as well. He said it might be an option too.

Do you have any experience or knowledge of that kind of drug and CPPS?

Thanks!

[webslave]

Imipramine (tofranil) is almost the same as Elavil aka amitriptyline. Search the forum for those to see the sort of issues. Worth trying. Hydroxyzine (Vistaril) also worth trying. Don't try them all at the same time.

[SoraStar]

Well, I've experienced my first Flare.

It was going fine for the past 2 months, had barely any pain at all, just faint discomfort from time to time, then today BAM it hit. All the familiar symptoms. Weak ejaculation, pain in my butt/rectum area. Pain at base of penis and further in and the lovely pain after ejaculating. fun stuff.. :/

Now the question is, what caused this. I stopped talking my Quercetin supp a couple days ago but I don't think the pain and discomfort would come back that fast after stopping it would it?

My next guess is the Uro I saw who checked my prostate. Maybe touching around up there irritated things all over again.

Also, my anxiety was super super high today, so bad that i tried to take a nap and couldn't because I was shaking. I haven't had the shakes happen to me in about a year and a half.

Hopefully this one will blow over soon