CPPS/non bacterial prostatitis need help

[Kavm12012]

Hi my name is Mark I live in the UK, I'm 40 and just feel like I needed to contact someone who has had this problem, I've just left my doctors with ofloxisin, I doubt they will work had no where else to go, let me tell you my story it will be long so I do apologise.

I'm 40 now but I first had symptoms 12 years ago, tip of penis tingling, ache in groin, penis filling full, bottom back ache, peeing more often, split stream and after seeing 2 urologists they both said I had non bacterial prostatitis, one said I had to live with it when I got a second opinion he agreed but gave me a tablet which I can't remember if it was a antibiotic and also try a Prostabrit supplement which to my astonishment it worked that was about 12 years ago. Now since 2011 the symptoms have returned with an added one which is a odd sensation down both legs stopping at the knee I don't have all the symptoms at the same time so back to the doctors for tests, all negative, then to a urologist (different one this time) who was utterly horrible> They again said non bacterial prostatitis. Over the years had that many drugs, can't remember any of them working, then in 2014 I was rushed into hospital with septicaemia and nearly died. They never found out what caused it. I was let out April last year after being in intensive care for 2 weeks, and then I could not believe that my symptoms were gone — I was symptom free for 3 months. Then in July 2014 I've had these terrible feelings/sensations down both legs, mainly in upper legs, but I could manage that with gym and hot baths and trying to eat the right stuff. I don't know what happened 10 days ago, these symptoms came rushing in like a tornado where now the discomfort is not in legs but in penis and me wanting to pee but not much comes out, stinging in tip, split stream, weak stream, and aching back and pelvis ache. I do get sometimes a sharp sudden like bolt of pain in penis which lasts a second also. I'm trying to eat healthy by just having spinach, kale, cucumber, broccoli, chicken, salmon, corn flakes with semi skimmed milk I'm trying to cut out gluten as much as possible, I started this a week ago hope it works, also still on tamsulosin and started on saw palmetto, Prostabrit, quercetin, no change in symptoms as yet.

Has anyone tried amitriptyline? I was on that in hospital for anxiety when I was battling septicaemia. Don't know if that kept the symptoms at bay. I was symptom free for 3 months.

Also last week I started to take saw palmetto, quercetin and bromelain, zinc, magnesium and just ordered Prostabrit and pygeum. I don't know whether to take them all together with these antibiotic ofloxisin

Please if anyone is out there I would love to beat this once and for all . I'm waiting to go back to urologist.

Sorry this is such a long post !!!!
Please help
Mark

[elitynski]

Greetings Mark, I just wanted to respond to let you know that you are being heard. I'm not nearly as well informed as some of the others on this site but I can assure you that help will come. The Webmaster is excellent and there are some wonderful members on here. Please know that there is great hope and just be slightly patient for the replies. It sounds like you are doing some very positive things. Also, the recommendation will be to fill out your signature.

And remember that healing can and will come as you do your part and that Time is an important part of this process.

Warm Regards, Eric.

[Kavm12012]

Thank you Eric I just want to beat this terrible affliction. Eric How do you fill out your signature ?

[webslave]

1. Find your signature here
2. I don't think the ofloxacin will help or is necessary
3. Amitriptyline helps many men with CP/CPPS. Search the forums for "amitriptyline" or "Elavil"

[Kavm12012]

Last night I just started reading head ache in pelvis I've read a lot of good things about with a different approach, don't know how to go about finding a good PT to treat the pelvic floor and who does trigger point therapy ?!!! I'm married and a daddy to 2 young children I don't want this to ruin my life anymore

[Kavm12012]

Sorry to say I live in Birmingham England

[Kavm12012]

Seen doctor yesterday she prescribed 10mg of amitriptyline 1 at night to start off with and then may be build up to 20mg. I am seeing urologist end of the month, I'm running out of ideas how to help myself I'm taking saw palmetto, prostabrit, querction and bromelain, pygeum, still on ofloxasin, changed my diet

Is any one out there who can give much needed advice. Don't know where to turn.

I thought I was having a good morning, I had a little discomfort in inner thighs and penis, soon as I went to toilet penis flared up like there was something stuck in it. How long should I feel the affects if gonna they gonna work on tablets I'm taking/

Please if anyone is there I'm really struggling !!!!

[webslave]

Try the starter list
viewtopic.php?f=5&t=6475

Your situation is not unusual, from what you have told us. Keep calm, things will improve.

Stop drinking alcohol. It can cause many problems for this patient group:
viewtopic.php?f=13&t=7741

[Kavm12012]

Thanks webslave I'm struggling to find a PT in my area who specializes in internal trigger points. How can I search for one on here (I live in the UK)? It's been 2 weeks since I had alcohol that's when the who thing flared up. I'm stopping drinking for good now. Am I doing the right thing taking all the tablets? I'm nearly half way through Headache in Pelvis book. Worried that I'll hurt myself doing internal trigger point therapy but I know I would need training.

Thanks for replying webslave !

[webslave]

How can I search for one on here (I live in the UK)?

Write to David Wise and ask him. His email is ahip at sonic d0t net

[JammyDodger]

If you want a good PT who does internal work try Julia Bowland in Warrington.

She does PT for men and knows her stuff about CPPS.

Her website is http://www.womenshealthphysiotherapy.co ... tacts.html

[mapletop]

Hello Mark,
I had the same problem for many years, urologists were of no help to me. Amitriptyline and Cardura helped me initially. I now take magnesium and zinc to keep symptom free.