Just a remark: recently I have been experiencing a rather strange feeling in the muscles in my perineum, right round the back. It is like they are 'fluttering' - sort of pulsating really fast. Is that what you would call a muscle spasm? I am surprised because I thought a muscle spasm would be painful, whereas the fluttering - although certainly noticable - is not painful, just odd.
While I'm at it I might as well wheel out the old chestnut: is this fluttering likely to be more part of the cause of or an effect of my pelvic pain? Thanks as always to respondees.
Fluttering Muscles
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webslave
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I think it's common, I know I get it once in a while, even in my eyelid. I don't think it's significant, perhaps relating to strain of some sort. 
Good News! The great ProstaQ is BACK at last! You must try it.
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twerges
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Re: fluttering
Personally, I would consider this symptom highly significant. This is a symptom that I had often, and my prostatitis was caused by a muscular mechanism.
Age: | Onset Age: | Symptoms: | Helped By: | Worsened By:
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bti20
Thanks Tom. I must say I thought that the fluttering was significant too. I think that my pain is caused by muscle dysfunction but I don't know what is triggering it. Possibly it is something inside my urethra: I recieved two urethral swabs at a GUM clinic and urinating has felt different ever since. The pressure now seems to build up in my backside when I urinate...! This disease is curable and, Tom, you are testament to that fact. There is, I think, too much talk from uros about wierd, diffuse and intractable regional sensitivity as causing the symptoms of prostatitis, as if sufferers are doomed because their nerves have decided to go crazy.
The worst trick is when uros say that the pain is in your brain! You might as well not actually have genitals once your brain has decided to project a permanent image of pain in that region! That is ludicrous, surely. Why do uros play the 'psychology' card when they are supposed to be experts on a physcial part of the body? Imagine somebody saying that a broken leg was 'in the head'. You would tell them that they were crazy. So why do we put up with uros telling us that we have hypersensitivity in the brain, like it is some intelligent hypothesis, instead of a vacuous piece of psuedo-psychology? Thanks again for the comment, Tom. Glad to hear you are well,
The worst trick is when uros say that the pain is in your brain! You might as well not actually have genitals once your brain has decided to project a permanent image of pain in that region! That is ludicrous, surely. Why do uros play the 'psychology' card when they are supposed to be experts on a physcial part of the body? Imagine somebody saying that a broken leg was 'in the head'. You would tell them that they were crazy. So why do we put up with uros telling us that we have hypersensitivity in the brain, like it is some intelligent hypothesis, instead of a vacuous piece of psuedo-psychology? Thanks again for the comment, Tom. Glad to hear you are well,
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webslave
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I know you're angry, and I was once too. But try to be patient. Good things will come in time, of this I'm sure.
Good News! The great ProstaQ is BACK at last! You must try it.
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alprost
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"Personally, I would consider this symptom highly significant. This is a symptom that I had often, and my prostatitis was caused by a muscular mechanism"
I would agree with this statement 100%. My current symptoms are exactly like the symptom complex of levator ani syndrome, and I frequently have a fluttering sensation in my perineum. Two key sites of pain for me are the origin and insertion of the levator ani muscle group - The coccyx and central tendon of my perineum.
Read my recent post in the thread 'Recovery and treatment' - I too had problems getting my Uro to listen. If only all Uros were as enlightened as those who post on this forum, and realised that different processes are at work to different extents in different people, and that treatment needs to be based on the specific symptom complex of an individual. Too many focus only on the urinary tract and prostate and compeletly ignore other pelvic pathologies which could be responsible for an individuals pain.
I am currently pursuing treatment through my GP and physiotheapist, who are both excellent, but would plan to travel to see someone like Dr Shoakes or Dr Dimitrakov if my symptoms don' resolve somewhat.
Good Luck,
Al.
I would agree with this statement 100%. My current symptoms are exactly like the symptom complex of levator ani syndrome, and I frequently have a fluttering sensation in my perineum. Two key sites of pain for me are the origin and insertion of the levator ani muscle group - The coccyx and central tendon of my perineum.
Read my recent post in the thread 'Recovery and treatment' - I too had problems getting my Uro to listen. If only all Uros were as enlightened as those who post on this forum, and realised that different processes are at work to different extents in different people, and that treatment needs to be based on the specific symptom complex of an individual. Too many focus only on the urinary tract and prostate and compeletly ignore other pelvic pathologies which could be responsible for an individuals pain.
I am currently pursuing treatment through my GP and physiotheapist, who are both excellent, but would plan to travel to see someone like Dr Shoakes or Dr Dimitrakov if my symptoms don' resolve somewhat.
Good Luck,
Al.
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
