Need Some Serious Help (GARYS case)
A cold & a flare up?
I know there can be a connection and I have read about it years ago. I had a cold for a week a month ago that caused no problems, I was only over it for 2 weeks when I got another one, a bad one. This time for the first time in about 2 and a half years I had to take a Pyridium pill ( the one that makes your urine red). My symptoms weren't completely gone, but I could of managed the rest of my life the way it was. Now my mind keeps telling me its back, along with that depressed losing your mind, scared to death feeling. The only other thing that I changed was going from Lexapro to wellbutrin, but when I think about it, my symptoms did seem to get a lot better when I started the Lexapro. Can anyone refresh my mind about these things? I haven't been on here much in the past couple of years for my minds sake. Thanks.
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
Re: A cold & a flare up?
Hi ya your symptoms are identical to mine with the big flare after urination that can bring you to your knees not every time but pray each time it's not that big one. Dont stress too much, it will probably pass, but I know how you feel. I tried private messaging you a while back to see how you were but the function is not available now. I'm pretty good at the moment not 100 % but can live a normal life minus beer, too much sex and getting dehydrated while in this state.
Fingers crossed for you mate
Fingers crossed for you mate
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me
Re: A cold & a flare up?
Thanks for responding graeme. I had a couple of good years (after about 12) with little problems here and there. This time it seems something got irritated again and its trying to hold on. Have you had things come back for a month or so and leave again. What do you or have you done for the urethral burning symptom? I tried PT but couldnt handle the flare ups. Pain I can deal with, but the urethral thing can like you said can bring you to your knees not to mention make you crazy. Hope your doing well!!
Gary
Gary
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
Re: A cold & a flare up?
Hi garys, Yes I have had things come and leave. I've had it 100 % leave for 4 years and still come back. Not sure what can help urethral burning but I know what can make it worse, concentrated urine. For this reason I drink plenty. 
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me
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Sleeper Service
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Re: A cold & a flare up?
When I get a cold it flares up and when it passes things settle down.
Age 56: Onset 2006 and bouts on and off since then. See posts for details.
Re: A cold & a flare up?
Me too. My symptoms have improved massively since my last trip to the W-A clinic, but during a recent bout of suspected swine-flu my symptoms flared up. I didn't have a flare up like when I had trigger points, when I would get severe burning/aching/'tight' symptoms. At the moment all I am left with is a mild electrical/tingling neural 'memory' of this pain. When I had the virus, this mild electrical tingling (which is fading away gradually over time) became much more intense.Sleeper Service wrote:When I get a cold it flares up and when it passes things settle down.
From what I gather, it is related to the parts of the brain which are activated during a fever to raise body-temp etc (HPA axis) along with the inhibition and facilitation of different spinal pathways.
After my temperature went away, it took about another 6 days to fully recover from the virus, and my flare up also completely disappeared over this time.
I'm sure the immune response to a virus equals a stress response, and we all know the links between stress and CPPS!!!
This is not Medical advice - Consult your Doctor!
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Age:39. Age at onset:31. Symptoms prior to treatment: Golf ball in rectum, severe urinary frequency (2-3x/hr; 5-10x/night); weak stream; painful ejaculation; coccygeal pain; tip of penis pain; general pelvic pain on left; testicular pain; supra-pubic pain. Current | Symptoms: Urinary frequency 1x every 2-3 hrs and 1-2 x a night; mild pelvic pain on left hand side (all symptoms still improving!)
Helped by: Trigger point release; avoiding exercise; pelvic floor relaxation; Neurontin decreased bladder sensitivity somewhat. Worsened by: Exercise; frequent ejaculation; ibuprofen irritates bladder. Made no difference: Diet; biofeedback; quercetin; Steroid anti-inflammatories; Elavil.
****UPDATE*** I am now able to sit again at work all day, and can perform moderate aerobic exersise again for the first time in 8 years!!!
Please read:
viewtopic.php?f=37&t=808&p=3954
viewtopic.php?f=7&t=239&p=1158
viewtopic.php?f=37&t=248&p=1214
Any new meds for stinging in urethra
Did good for a couple years but it kind of came back. What I am having is that burning/ stinging in the urethra after urinating and the feeling that you need to try and keep urinating. It sucks! Pain I can deal with, but this is different and anyone who has or had it knows what I am talking about. I haven't been keeping up with the posts here for a while because I do better not reading about all of this and dwelling on it. So I just wanted to see if anyone has found anything for it or even knows where it comes from. Food has no effect as far as I can tell, alcohol makes it better while your drinking but can't really stay drunk and dont want to (got a wife and small children). One thing I can usually guarantee is ice cream but other than that nothing (I dont have dairy). Thanks
Garys
Garys
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
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webslave
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Re: Any new meds for stinging in urethra
Burning after urinating often happens when the urine contains irritating chemicals or the urine is too concentrated. Alcohol can cause the latter. Avoid strong spices and pungent foods, like garlic. Some people also get the burning from soda that contains benzoate preservatives.
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Flare after four years.
Hi everyone, I haven't posted here for a long time but any of the guys that have been around for awhile might remember me. I've had all the symptoms over the past thirteen years but the only one I could never deal with was the horrible urethral burning after urinating. The only thing that ever helped has been time and not reading up all the time. I have gone about four years with not too many symptoms and I could of lived the rest of my life that way if I had to. But starting a few weeks ago the burning started coming on again but yesterday it really hit me hard again eased up from my Pyridium but then tonight hit me really hard again. I did just have another baby three weeks ago and work has been stressful lately but I haven't felt more stressed than I have from time to time over the past four years. I guess I really need some advice or reassurance that things aren't back again. Has anyone found anything that helps this terrible urethral burning? Thanks for any help!
Gary
Gary
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
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webslave
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Re: Flare after four years.
New baby + work stress = flare.
Are you doing any form of relaxation therapy?
Are you doing any form of relaxation therapy?
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Re: Flare after four years.
No but I started. This seems different than the little flares I've had over the past five good years I've had. I really hope not. My rectum feels swollen and irritated now and feels like it increases the urethral burn. Is it normal to have a really bad flare after so long and do they end?
Thanks
Thanks
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
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webslave
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Re: Flare after four years.
Well yes, if you are essentially doing nothing other than taking Pyridium to control the condition, it can always return under the right circumstances!
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Re: Flare after four years.
Dear Garys,
I am having teh same thing. A really bad flare after in my case almost a year of absolutely no complaints. The starnge thing is that my last big flare, which lasted a year, went away at a time when I was almost not treating my self for a little time since I felt that trigger point release actually made me worse off at the time. However, now it came back and its clearly related to stress as actually my second bout of chronic prostatitis / chronic pelvic pain syndrome started when I had my baby and it reappeared now when my wife left me sadly enough. Maybe the more experienced members who are doing better now could look back on their road to recovery comment on what their experiences with such flares is.
I am having teh same thing. A really bad flare after in my case almost a year of absolutely no complaints. The starnge thing is that my last big flare, which lasted a year, went away at a time when I was almost not treating my self for a little time since I felt that trigger point release actually made me worse off at the time. However, now it came back and its clearly related to stress as actually my second bout of chronic prostatitis / chronic pelvic pain syndrome started when I had my baby and it reappeared now when my wife left me sadly enough. Maybe the more experienced members who are doing better now could look back on their road to recovery comment on what their experiences with such flares is.
34 yrs old. Now rectal pain, some suprabic discomfort an occasional urgency. Still trying to figure out what helps. Episode of frequency in 2008 but this dissapeared for a year.
Re: Flare after four years.
I have another question. I have taken a couple Valiums and a couple Vicodin I've the past couple days. Nothing yesterday but I am so exhausted and fatigued that I have been stuck on the couch just sleeping and feel very weak. Is this normal with a flare? I have never had this before I'm used to moving and trying to keep my mind busy but I can't move which is causing me more anxiety.
thanks
thanks
Age:33 | Onset Age: 20 | Symptoms: burning urethra after urinating, followed by rush to urinate again, rectal pain after a bowel movement sometimes, frequency. | Helped By: Pyridium and Ativan | Worsened By: stress, sitting and unknown reasons.
Re: Flare after four years.
Did you try Aplha-Blockers? Xatral or Flomax?
They have side effects on some people (like me...) but many take them and they are OK, they did help me a lot with tip of penis irritation/burning. From bad&constant to mild&intermittent.
Those symptoms are directly affected by stress - sometimes on a daily basis.
(BTW - Phenazopyridine had no effect besides the color..., also from what I understand this is not intended for long term use).
Best
George
They have side effects on some people (like me...) but many take them and they are OK, they did help me a lot with tip of penis irritation/burning. From bad&constant to mild&intermittent.
Those symptoms are directly affected by stress - sometimes on a daily basis.
(BTW - Phenazopyridine had no effect besides the color..., also from what I understand this is not intended for long term use).
Best
George
Age: 51 | Onset Age: Early 2011 Symptoms: Before the Clinic: Pain while sitting. Pain in tip of penis. Reduced urine flow. Intermittent rectum and testicles pain. Poor sleep. After Clinic: Mild discomfort after long sitting, mild penis irritation. Attended the Wise-Anderson Clinic July 2011. Helped By: Physical Therapy (external & internal using the WA Wand - mainly external - abdominals and glutes), Paradoxical Relaxation, 30-min daily walk, Uroxatral (reduced tip-of-penis pain, but with side effects). Hot bath. Not helped by: Antibiotics, NSAIDS, Acupuncture, Homeopathy, supplements. Worsened By: Stress, Catastrophic Thinking, specific Yoga exercises, weight lifting.