Frequency gone but pain remains - extreme3 case

Male pelvic pain, prostatitis, IC
extreme3
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Frequency gone but pain remains - extreme3 case

Post by extreme3 »

I was diagnosed with chronic prostatitis/CPPS a few months back. I've been through everyones collective disappointment with the conventional treatments: antibiotics, alpha blockers, pain meds, etc. My urologist did the routine exam, said my prostate was only slightly inflamed and sent me on my way with a prescription.

As I've become more aware of my symptoms behavior (perineal pain ONLY when sitting for extended periods of time, urinary problems), I noticed that I habitually place my wallet in my back right pocket. I also recalled that my symptoms started with pain in the left groin area around the left testicle right before it became full blown perineal pain. Basically, I was putting most of my weight on my left buttock due to the wallet in my right backside tipping me that way. I wasn't even remotely aware of this. As best practice now, I've just started to put the wallet in my front pocket and distribute my weight evenly in my hips. I must say this eases the pain a bit.

I've read a good deal of literature about contracting back pain and damaging nerves by sitting on a wallet all day, but I'm very curious to see if there are any documented connections to pelvic pain specifically.

I just wanted to share these thoughts with the group and see if anyone could relate to this.
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
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carld
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Re: Poor sitting habits related to CPPS?

Post by carld »

Extreme,

Welcome...Most of us have jobs that have us sit for long periods of time and this can really cause problems and contribute to pelvic myoneuropathy. I set up my computer at work so I can stand any time I want and work standing as needed. I find this to be very helpful.

I also take my wallet out of my back pocket and put in in my desk. When I do sit, I try to ballance the weight as best I can. Or you can get a seat friendly chair or thera seat. Do a search. :smile:
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I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Jay
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Re: Poor sitting habits related to CPPS?

Post by Jay »

Hi there,

Welcome to the boards. Carl has already brought up a very good point about the sitting thing. If you read around, you'll see that most of our sufferers have that same thread in their lives. Programmers, computer people, gamers, desk jockeys, traders, truckers, etc. People who sit for most of the day, their pelvic muscles bunched up as they work their way through often stressful jobs.

I can't say with regard to sitting on a wallet specifically, but sitting in general is certainly an issue for many folks.
I am not a physician. This is not medical advice. Consult your doctor!

Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
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webslave
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Re: Poor sitting habits related to CPPS?

Post by webslave »

Sitting on a wallet is a well-known cause of back problems as it destabilises the lower spine. It will also compress nerves running through the buttock and may create a pain syndrome in the pelvis.
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extreme3
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Re: Poor sitting habits related to CPPS?

Post by extreme3 »

Started doing yoga/stretching and purchased a thera-seat.

The stretches give immediate relief. There a whole slew of stretches beyond whats listed in HITP and I think the key is finding the ones that work best.

The thera-seat works wonders - I think just staying off that area will go a long way in helping it heal. I can finally be productive again.

I'm also much more conscious of the tension in my pelvic floor. I make an effort to relax this area - this seems to help as well.

Also quit my job recently and am really relaxed these days. The change of scenery will hopefully do me some good.

Keys: find ways to relax, don't think about it or obsess over it, know that it will get better.

This board is great - thanks all for the support.
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.
extreme3
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Frequency gone but pain remains

Post by extreme3 »

I've had this condition for over a year now. In the beginning, I had some very apparent urinary frequency issues. I've noticed this has subsided over the past few months and now I'm at the point where frequency is very normal.

What I'm still having is that burning pain in the rectal/perineum area especially upon sitting. I was doing yoga for a while, and that did seem to help the pain. I'll probably go back to doing that regularly. Walking/running seems to help a great deal as well.

I guess what I wanted to poll is whether this is something that anyone else has gone through - no frequency issues but just the underlying pain and whether this is at least some sign of the road to recovery.

Thanks everyone.
Age: 49 | Onset Age: 36 Initial | Symptoms: Pain in perineum and rectum, urinary symptoms (esp. frequency). Current | Symptoms: Pain in perineum/rectum when sitting, burning in feet. | Helped By: sleep, yoga type stretches, relaxing, walking, yard work!, jogging, positive thinking, changing life outlook. No help: antibiotics, alpha blockers | Worsened By: Sitting too long, diet: unidentified food triggers, obsessing over it.