In my experience, you have to get the mental aspect of CP/CPPS under control first before the physical relief can follow. This is a slow process and can take a year or more before you notice your symptoms calm down, after you get the anxiety issues worked out. This is what happened to me. My reason for posting this is because I have been here for a while now and I see new posters riddled with anxiety over this...Rightfully so because I have been there....
Just prepare your self to first calm the anxiety down and the physical relief will slowly follow...It sucks I know, but I have read so many posts from so many different men and the one's I see getting better are the men that deal with their stress by accepting and getting to work.
I read posters here saying they are working real hard, but in the end they are chasing the dragon that is their anxiety. I see it over and over here! Quite amazing, really!
Anxiety control = physical symptoms easing over time...It's just that way...
Mental recovery first before the physical can follow
Mental recovery first before the physical can follow
Last edited by carld on Wed Feb 18, 2009 10:28 pm, edited 1 time in total.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Mental recovery first before the physical can follow
Spot on my friend :)
Not medical advice: Read my progress to date : Read about my W-A clinic visit
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
Age: 54 CPPS: 20 Yrs Recovery Status: 95% Symptoms: Pain around perineum Makes Worse: Tension, sitting Makes Better: Stretching, triggerpoint therapy, relaxation
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Re: Mental recovery first before the physical can follow
Carl, very accurate comment, as usual. Again and again the key thing I observe holding men back from recovery is their own mental state, usually involving one or another anxiety spectrum disorder. Anxiety disorders include Generalized Anxiety Disorder (GAD), social anxiety disorder (also known as social phobia), specific phobia, panic disorder with and without agoraphobia, OCD, posttraumatic stress disorder (PTSD), anxiety secondary to medical condition, acute stress disorder (ASD), and substance-induced anxiety disorder.
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Re: Mental recovery first before the physical can follow
Most men reading this forum would have had a panic attack. They are associated with anxiety disorders. If you recognize these symptoms, you've learned something about yourself.
DSM IV-TR Criteria for a Panic Attack
A panic attack is a period of intense fear or discomfort, developing abruptly and peaking within 10 minutes, and requiring at least four of the following:
DSM IV-TR Criteria for a Panic Attack
A panic attack is a period of intense fear or discomfort, developing abruptly and peaking within 10 minutes, and requiring at least four of the following:
- Chest pain or discomfort
- Chills or hot flushes
- Derealization (feelings of unreality) or depersonalization (being detached from oneself)
- Fear of losing control
- Feeling dizzy, unsteady, lightheaded, or faint
- Feeling of choking
- Nausea or abdominal distress
- Palpitations or tachycardia
- Paresthesias
- Sensations of shortness of breath or smothering
- Sense of impending doom
- Sweating
- Trembling or shaking
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Re: Mental recovery first before the physical can follow
Thanks Mark and Richard...That means a lot to me... 
I think I had an epiphany after I read the thread, "does chronic prostatitis exist" and thinking about the great work of Dr. Dimitrakov and that I believe we will all benefit from his great work...In the full-text of his article, the conclusion really struck a note with me...I think it's all going to tie in with anxiety disorders because we all could have hormonal abnormalities.
From his article...Dr Dimitrakov ROCKS!!!
I think I had an epiphany after I read the thread, "does chronic prostatitis exist" and thinking about the great work of Dr. Dimitrakov and that I believe we will all benefit from his great work...In the full-text of his article, the conclusion really struck a note with me...I think it's all going to tie in with anxiety disorders because we all could have hormonal abnormalities.
From his article...Dr Dimitrakov ROCKS!!!
Best, Carl...Conclusions
"The hormonal differences we identified in CP/CPPS patients may help us understand the etiology of CP/CPPS and/or serve as biomarkers for the disease. Our study suggested that some men with CP/CPPS may have a defect in CYP21A2.. Future studies should explore the possibility that CP/CPPS patients meet the diagnostic criteria for nonclassical CAH due to 21-hydroxylase deficiency by performing a CRF and cosyntropin stimulation test with 17-OHP measurements, and, if confirmatory, DNA testing for CYP21A2 mutations. Follow-up studies should further assess whether the hormonal findings described in this paper improve or worsen in parallel with symptom severity. Finally, if our work is confirmed, consideration may be given to performing a randomized, controlled trial of low-dose dexamethasone (the treatment of choice for patients with CAH) in patients with CP/CPPS to assess whether normalization of these hormonal abnormalities improves symptoms."
Last edited by carld on Thu Feb 19, 2009 4:05 pm, edited 1 time in total.
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Mental recovery first before the physical can follow
Its very heartening to see that these well respected Doctors are suggesting some treatment ideas for CPPS. I wonder what their feelings are on an "effective treatment" within the next 10 years.
Just having a quick read about dexamethasone it seems to be a drug that can only be used either in very low dose, or over a short period of time else side effects can be severe. Obviously, for us we need something to take every day to control the symptoms, so I wonder if a very low dose would be sufficient. Would also be interesting to see results of trials taking place for people trying this drug and the response they have with it.
Good to hear though....
Edit : The abstract says that Testosterone levels were higher in men with CPPS. But if this is the case, why, for some of us, does our sex drive lower so much? I went back to my Drs again yesterday for another blood test to measure my testosterone levels. All very interesting though.
Just having a quick read about dexamethasone it seems to be a drug that can only be used either in very low dose, or over a short period of time else side effects can be severe. Obviously, for us we need something to take every day to control the symptoms, so I wonder if a very low dose would be sufficient. Would also be interesting to see results of trials taking place for people trying this drug and the response they have with it.
Good to hear though....
Edit : The abstract says that Testosterone levels were higher in men with CPPS. But if this is the case, why, for some of us, does our sex drive lower so much? I went back to my Drs again yesterday for another blood test to measure my testosterone levels. All very interesting though.
Age: 33 | Onset Age: 32 Initial Symptoms: Frequent urination Current Symptoms: The odd feeling of frequency but not much else Helped By: Not thinking about it, hot bath, red wine, light exercise, Bowen technique seems to help, getting on with my life Worsened By: catastrophic thinking, worrying things will get worse, feeling depressed, reading websites too often! Work! Sitting in work all day isn't good!! Current Progress : Since 1st Sept 08, no pain!!! :)
Re: Mental recovery first before the physical can follow
Good positive post carl and I have no doubt in what your saying. Even though I can't say I've had a panic attack I am nervous person who will worry and obsess over small matters. At the moment I'm giving the Sarno method a go and finding it a good read. Just wondering what practise or method do you use to relax or calm them stressful thoughts.
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me
Re: Mental recovery first before the physical can follow
I think the abstract said some hormones were higher and some were lower in men w/ CP/CPPS...garyholc wrote:
Edit : The abstract says that Testosterone levels were higher in men with CPPS. But if this is the case, why, for some of us, does our sex drive lower so much?
I think the stress over this condition effects all of us differently...and with some men, the stress over the condition effects the sex drive or libido...distraction if you will...Just my opinion...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Mental recovery first before the physical can follow
I like autogenic-relaxation and of course the cognitive work I do once a month...Neurofeedback to check my alpha and beta waves and work on smoothing them out...Just over all letting go of things and try not to react to things that upset me...Still very difficult, but I have my anxiety and panic disorder under control...I will never be cured of it, but at least I know how to deal with it as I get upset or start to feel those scary physical feelings of panic...Just knowing I have this disorder, I can chill my self out by breathing and understanding that I can work through this...and sure enough...it passes...I also take 200mg of theanine every day in the evening...and more info here...http://www.web-us.com/l-theanine_anxiety_reducer.htmgraeme wrote: Just wondering what practise or method do you use to relax or calm them stressful thoughts.
Best, Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Mental recovery first before the physical can follow
Absolutely. Getting the anxiety and fear under control is very important in the recovery. I find breathwork and meditation to be the most helpful techniques. A question to ask yourself is what is causing the anxiety. I think for 80% of us, it is job related. I just read in a magazine about a guy who took a job as a project manager for a large telecommunications company after graduation. It didn't take long before he got sick and was out on sick-leave for a year. He changed his career to a kindergarten teacher. This reduced his income by 50%, but he became symptom free.
Age: 31 Previous symptoms: penile pain, pain in the rectum, occasional shooting pain in the perineum. Helped by: relaxing / meditation, internal massage, abdominal massage, stretching Makes worse: stress, being out of comfort zone. Current symptoms: Occasional mild soarness. www.kroniskprostatitt.com 95 % better
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Re: Mental recovery first before the physical can follow
I did what Viking suggests, and that is one of the chief reasons I am symptom-free today.
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Re: Mental recovery first before the physical can follow
I completely agree with what Viking says "Mental recovery first, then the physical will follow".
I remember a point in my recovery where if I had no stress, I would have no symptoms. Then some stressful trigger would occur (a fight with my wife, work related garbage, traffic, or whatever) and then WHAM! the pelvis and low back would start to hurt again. Then I would sit or lay down quietly in a room and do my Byron Katie Cognitive work for several hours and the stress would go away and shortly after that I would feel better physically - it was pretty amazing.
The reward provided more and more incentive to do more of the Cognitive work as I was seeing the immediate payoff of being in a more stress free state.
It seems that in the earlier stages of recovery there is pain no matter what, and if there is more stress bad pain just feels worse. But in the middle stages one can be pain free as long as there is little or no stress. Eventually one can get to the point where even under stress there is no pain, but in the back of my mind I know that I don't want to be in that stressful state for too long.
I remember a point in my recovery where if I had no stress, I would have no symptoms. Then some stressful trigger would occur (a fight with my wife, work related garbage, traffic, or whatever) and then WHAM! the pelvis and low back would start to hurt again. Then I would sit or lay down quietly in a room and do my Byron Katie Cognitive work for several hours and the stress would go away and shortly after that I would feel better physically - it was pretty amazing.
The reward provided more and more incentive to do more of the Cognitive work as I was seeing the immediate payoff of being in a more stress free state.
It seems that in the earlier stages of recovery there is pain no matter what, and if there is more stress bad pain just feels worse. But in the middle stages one can be pain free as long as there is little or no stress. Eventually one can get to the point where even under stress there is no pain, but in the back of my mind I know that I don't want to be in that stressful state for too long.
Age: 41 | Onset Age: 24 | Symptoms: You name it, I had it. | Helped By: Wand, Theracane, Cognitive Enquiry (Byron Katie) Stretches, The right kind of excercise | Worsened By: Stress, The wrong kind of excercise,
Re: Mental recovery first before the physical can follow
Actually, that's my quote...NoMoPain wrote:I completely agree with what Viking says "Mental recovery first, then the physical will follow".
I have 3 in the books now..."Charge hard in a relaxed way", "Mental recovery first, before the physical can follow"and my personal favorite.... "Stay away from those free big tit websites...it's a pelvic killer"
My gift to CP/CPPS...
Cheers, Carl...
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.