Little Backstory:
Suffering from chronic prostatitis / chronic pelvic pain syndrome for 5+ years (does that make me the youngest here? who knows)...with pyschotherapy, intermittent physio, relaxation and stretching i've cut out all my symptoms except post-ejaculatory pain...onset in about an hour after orgasm...manifests itself as a sore "bruised" type feeling in shaft and similar pain through pelvic floor, with spasms and occasionally electric-shock nerve type pain. I also suffer from pretty bad premature ejaculation, which I think is a probably connected to the hyper-activity of nerves in that area + basic over sensitivity because of lack of circumcision + anxiety surrounding post-orgasm pain.
Recent Discovery: I was in a bad car accident a while ago and had been prescribed a lot of Vicodin. My stomach is very sensitive to Naproxin and other NSAIDS, so a while ago I decided to take a Vicodin (7.5 + 500 APAP) before ejaculation and noticed two things: totally killed any post-ejac pain (expected), but also significantly delayed orgasm (surprise). I've read around and never heard of synthetic opiates causing this, and there are some pretty obvious reasons (tolerance, etc etc) why it isn't used as an off-label treatment for this condition, but I found it is a great one-two punch for my specific set of symptoms. Curious about this I tried the same with a much smaller dose (50 mgs Codeine) and I found basically the same results. While taking vicodin twice a week seems a little overkill, I'm interested in pursuing the possibility of using this dose of Codeine as a combination flare-breaker and PE treatment on a semi-frequent basis. I'm a little worried about pitching this to my CPPS-friendly doctor (even though he has happily prescribed Valium to me over long periods of time for my pain), and not entirely sure if this will work on a longer term basis, but I'm going to bring it up next time I see him.
I used to be very adverse to the idea of pain management because I thought, like many here, it meant giving in to a short term symptomatic treatment...but with a lot of psychotherapy (surprise: I'm a type A perfectionist) I've realized this condition isn't about "all or nothing" decisions and used effectively and with the right mindset, pain management can do a lot to increase the quality of life and help break us out of our catastrophic thinking routines.
Just thought I'd throw this out there for anyone suffering in the same way as a possible avenue (obviously this is not a medial opinion, or medical advice). Also wondering what others experience/thoughts on this are? Advice?
Codeine/Hydrocodone, good combo for PE+CPPS
Codeine/Hydrocodone, good combo for PE+CPPS
Age:22 | Onset Age:16.5 | Symptoms: Pain with extended sitting, Pain shortly folllowing urination, mostly above pubic bone, Pain after defecation mostly around external sphincter, Pain after ejaculation mostly in Urethra | Helped By: Progressive and Moment to Moment Relaxation, Stretching, Bed Rest (laying down and relaxing muscles), Hot Baths, Hot Showers, | Worsened By: Alcohol (variably), Ejaculation, Urination, Defecation, Stress, Extended Sitting, Sleeping in the wrong position, tensing my muscles while writing or doing anything else stressful/intense, Progress: 65%, basically only dealing with post-ejaculatory pain, onset after about an hour, peaks for 3-6 hours and then remains sore for a day.
Re: Codeine/Hydrocodone, good combo for PE+CPPS
Hi there,
I'm 23 and first developed some symptoms around the age of 17, so you just barely edge me out in terms of youth. I believe Graeme started a bit younger still.
As for pain management, there is absolutely no shame in taking what measures you must to improve your quality of life. I was on Vicodin for a little while, sporadically, but I switched to Ultram because it has a lower addiction potential and is intended for long-term treatment. I now take Valium only. That may change, but that's to be seen. Depends on how things go!
If you go on pain medication for an indefinite period, I would highly suggest that you do so with a specialized pain management doctor. They will be prepared to monitor your dosage and titrate as necessary, as well as to keep things generally safe for you.
I'm 23 and first developed some symptoms around the age of 17, so you just barely edge me out in terms of youth. I believe Graeme started a bit younger still.
As for pain management, there is absolutely no shame in taking what measures you must to improve your quality of life. I was on Vicodin for a little while, sporadically, but I switched to Ultram because it has a lower addiction potential and is intended for long-term treatment. I now take Valium only. That may change, but that's to be seen. Depends on how things go!
If you go on pain medication for an indefinite period, I would highly suggest that you do so with a specialized pain management doctor. They will be prepared to monitor your dosage and titrate as necessary, as well as to keep things generally safe for you.
I am not a physician. This is not medical advice. Consult your doctor!
Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
Re: Codeine/Hydrocodone, good combo for PE+CPPS
I'm all for doing what you have to do to break a flare and stop the vicious cycle...Now with that being said..I don't think this one two combo of codeine/hydrocodone your speaking of is meant for long term use I think your suggesting. There is no such thing as using this stuff on a "semi-frequent basis" with out getting to some degree of addiction. I don't think this is a healthy protocol...I don't support it...I've seen and done my fair share of drugs in my life to know this is a dangerous path...Even for the hell we CP/CPPS sufferers go through...
http://en.wikipedia.org/wiki/Codeine
http://en.wikipedia.org/wiki/Hydrocodone
It's one thing to have a benzo/relaxation/hot bath/massage weekend to break a flair...It's a different ball game when you mess with opiates or "semi" synthetic opioids.
Just my opinion and I'm not a doctor...
http://en.wikipedia.org/wiki/Codeine
http://en.wikipedia.org/wiki/Hydrocodone
It's one thing to have a benzo/relaxation/hot bath/massage weekend to break a flair...It's a different ball game when you mess with opiates or "semi" synthetic opioids.
Just my opinion and I'm not a doctor...
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I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Re: Codeine/Hydrocodone, good combo for PE+CPPS
Just to let you know I had a bout of this for 24 hours when I was 15, I remember been in school and getting horrific penile pain and an urge to pass water 
Also I would just like to add when I was at my worst I would use codeine and did help with post ejaculation pain, it take about 1 hour to kick in so I would take 1 hour before sex
I found it effective and helped a lot when pain was to bad to handle.
The maximum 24 hour dose mixed with paracetomol is 240 mg or 60 mg every 4 hours I would just take two 30 mg tablets of an evening to try and have some quality time with family. I only took it every other day due to constipation.
I found solpadol much more effective than tramadol, and was glad of it when I was desperate.
http://emc.medicines.org.uk/emc/assets/ ... entID=6991
Used sensibly it can be a great help !
Also I would just like to add when I was at my worst I would use codeine and did help with post ejaculation pain, it take about 1 hour to kick in so I would take 1 hour before sex
I found it effective and helped a lot when pain was to bad to handle.
The maximum 24 hour dose mixed with paracetomol is 240 mg or 60 mg every 4 hours I would just take two 30 mg tablets of an evening to try and have some quality time with family. I only took it every other day due to constipation.
I found solpadol much more effective than tramadol, and was glad of it when I was desperate.
http://emc.medicines.org.uk/emc/assets/ ... entID=6991
Used sensibly it can be a great help !
Age:33 | Onset Age:19 | Symptoms:burning urethra, deep sore stinging around the perineum, dribbling | Helped By:when flare starts deep relaxing over a toilet to let out dribbling urine, hot bath, rubbing a heat cream on the perineum, Tens with a pad on the perineum, running, medication (solpadol) for pain. Current treatment: PT. | Worsened By:sitting, stressing over it, ejaculation, sometimes alcohol but I risk it. Been feeling a lot better last 6 months about 85% with a few flares lasting about 5 days. No longer having PT. Stretching every other night and I believe time is also a big factor for me