Hello, Strobers here

Male pelvic pain, prostatitis, IC
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Re: Just wanted to introduce myself (Strobers Case)

Post by webslave »

Females are unfortunately often not able to access trigger points with their shorter, weaker fingers.
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Re: Just wanted to introduce myself (Strobers Case)

Post by strobers »

webslave wrote:Females are unfortunately often not able to access trigger points with their shorter, weaker fingers.
She did some serious poking around and I'm up there all the time with a dildo much bigger than even my finger and I never feel anything either. That's what makes this so frustrating. I'm so sick of being sick.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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Re: Just wanted to introduce myself (Strobers Case)

Post by webslave »

If you react to old cheeses as it says in your signature, then you have food intolerances, and should look at using an elimination diet to isolate problem foods. Straight away I can tell you that you have a yeast/fungus/mold intolerance, so keep away from anything containing vinegar, alcohol, yeasty things, mushrooms etc. That's just for starters.
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First Orgasm in Six Months

Post by strobers »

After not having any sexual release for six months because I just couldn't bear going through another three week flare, I went ahead and took the sexual plunge.
I worked with a hypnotherapist who put me in a trance while I was doing it and did some post orgasm work to keep me relaxed. Our focus was the pelvic floor, bladder and prostate, the three areas I'm addressing as part of my personal protocol for wellness. Prior to calling her, I took a .5 of Valium and after our session I soaked in the tub for 1/2 hour and took 10 mgs. of Elavil and did some stretches.

My ejaculation was pretty spectacular. :lol: Mount Saint Helen's couldn't hold a candle to me. I came close to losing my eye. There was absolutely no pain on discharge and no cramping/spasm. It was a powerful, but normal ejaculation. What was weird was that as copious as the fluid was, it was very watery and light. It didn't have the texture or consistency of regular sperm. I was expecting a thicker discharge, especially after so many months. I'm not sure why that it.

I did the act at 12:30, about two hours ago. I feel about the same as before I had the orgasm, with the exception that there is a deeper feeling of pain in the prostate areas. Almost like a bruised feeling. When I sit I feel I have to void. When I stand about 80% of the feeling goes away.

I'll report tomorrow about how I feel. Last October 13, 07, which was the last time I had an ejaculation, I was fine for the day and the next day my flare hit me big time. I'm prepared this time with a myriad of pain pills and benzos and if I have to spend the next three weeks in a state of oblivion, so bit it.

I suffered for three weeks and then went into a two month remission for some reason. I mean a complete remission where I was absolutely perfectly normal with the exception of two days. Let's hope for the best.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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My 2nd Day after masturbating

Post by strobers »

I went into an eight hour flare yesterday after I finally got the courage to masturbate. My hypnotherapist is wonderful, patient and very professional. I think that her putting me in a trance and giving me the post hypnotic suggestions to relax my pelvic area made a huge difference in how I reacted.

Interestingly, when this started in April of 07, masturbation caused me to be in an almost five month long flare. After abstaining for four months and then doing it again on October 13th, I went into a three week flare and then had a two month remission of symptoms.

This time, I had an eight hour flare and although I don't feel perfect, I can live with what I'm feeling at present.

This progression tells me one thing about my own condition and something that men particuarly should be aware of. An orgasm is an extremely powerful contraction and when it's over done, there is no doubt in my mind that the contraction causes the nerves in that entire area to get inflamed, which in turns affects the bladder in some way, which caused my symptoms. This is especially true for men who compulsively masturbate. Although the evidence is anecdotal, the amount of men who develop IC/CPPS due to over stressing the area due to excessive masturbation seems to number quite a lot.

Before I got sick I was masturbating daily, sometimes multiple times in the same day and had been doing so since I was little. I let myself get fooled that it was "perfectly natural" but too much of a good thing is bad and now I'm suffering the consequences. Based on my hypothesis, I think that the tipping point occured in regards to all the pelvic nerves, which obviously are affected during an orgasm, which led to my particular symptoms. My uro said my bladder looked normal, which leads me to believe that if I do have strictly bladder issues (and I don't think so at all) it is caused by overstimulated nerves that connect with the bladder. The fact that the prostate gland is right next to the bladder lends credence to this theory.

What is so funny, pathetically funny really, is that NONE of the four uros I saw think that my masturbation had anything to do with my symptoms. None whatsoever. They refuse to believe there is a connection and I'm not sure why.

I waited six months the last time to masturbate. This time I'm going to wait three months and continue my personal protocol, which includes all the parts of the pelvic floor as I have previously discussed. Hopefully, the fact that the flare times are getting shorter and shorter seem to point out that my nerves are healing.

I am really starting to believe this is more a nerve issue than anything else brought about by excessive masturbation.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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Re: My 2nd Day after masturbating

Post by carld »

Instead of just pulling your pud, why not just bang a hot babe or any chick for that matter( take one for the team...if you have to) every now and then in a relaxed state. Have her on top . :wink:

Whacking off in front of a computer to those free big tit websites were a big killer for me. :62_58_40: (still do it from time to time when my Wife needs a break from me...My libido is still off the charts/ horn dogger and not so sure this is a good thing. :)

Being hunched over the damn screen clicking away, clenching is horrible for pelvic myoneuropathy. I mean a big factor here. Masturbation is a lot harder to do relaxed than sex I think....Just my opinion :wink:
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Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
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Re: My 2nd Day after masturbating

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I would guess that for most people there is a real mental component when it comes to masturbating vs. intercourse. Usually masturbating causes some kind of a flare for me, but I can dampen it with a hot bath, stretching, and some klonopin. When it comes to sex though, I can still have a flare but the fact that I 'got laid' boosts my confidence and self-esteem which counter-acts the physical pain. Too bad I haven't gotten any in awhile :icon8:
Age:33 | Onset Age: 21 | Symptoms: Penile/rectal/testicular pain, urgency/frequency, constipation | Helped By: Relaxation, PT, eating healthy, just started some acupuncture-seems to be helping | Worsened By: stress/anxiety, poor diet
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Re: My 2nd Day after masturbating

Post by strobers »

carld wrote:Instead of just pulling your pud, why not just bang a hot babe or any chick for that matter( take one for the team...if you have to) every now and then in a relaxed state. Have her on top . :wink:

Whacking off in front of a computer to those free big tit websites were a big killer for me. :62_58_40: (still do it from time to time when my Wife needs a break from me...My libido is still off the charts/ horn dogger and not so sure this is a good thing. :)

Being hunched over the damn screen clicking away, clenching is horrible for pelvic myoneuropathy. I mean a big factor here. Masturbation is a lot harder to do relaxed than sex I think....Just my opinion :wink:
That's why I did it in a trance state. Going from a four month flare to three week flare to an 8 hour flare is great progress. No doubt my hypnotherapist had a lot to do with it. I can't relax with a partner. I'm too on edge and can't get the machinery going. It's also not very spontaneous when you first have to go to the bathroom, take a Valium, and then take a hot bath. It's not really conducive to romance. Like I said, I think that the nerves affect the muscles, not visa versa. Don't you find it interesting how many people have other issues besides chronic prostatitis / chronic pelvic pain syndrome that are also nerve related? It's too coincidental.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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This Clenching Thing

Post by strobers »

I'm continuing to have this issue with the clenching, but maybe I'm wrong about it being a spasm. Maybe it's something totally different.

As I stated before, when it started, I was urinated standing up and then all of a sudden in mid stream I clenched. The muscle that clenched had to have been the PC muscle that all men and women have that controls the flow of urine. It's a voluntary muscle because we can control it. However, this particular time it did not seem that I was able to. It seemed to be an involentary reflex.

This happened more than two weeks ago. Since then, I have been voiding sitting down. I was O.K. for a couple of days and then I clenched, which caused a flare. I got better, was able to go without clenching and then it happened again and again I flared. Today I got up and clenched and then an hour later the same thing happened again and it made my flare even worse. Now, I'm so anxious that I'm actually afraid of going to the bathroom. It's crazy.

This happens while I'm going to the bathroom. Not before, not after, during. I just want to be able to sit down and go, but every time I sit down and go I start thinking about clenching. Either I come close to clenching, I don't clench, or I do clench. No matter what, however, the whole act of using the restroom is now becoming this fear that I'm going to clench, flare and never get better. It's crazy, but I don't know how to stop it.

I have tried pulling my hair while I go, pinch myself, all kinds of things to distract myself, but it does not help or just helps temporarily.

I went to see my PT this morning and she said that I do not have PDF. The tightness she does feel seems to be related more to anxiety/tension as it pertains to my personality and it's spread throughout my body; especially in times like these. I don't understand how just one muscle could be spasming, if in fact this is the problem, and it does not happen every time.

Does anybody have any idea of what I can do? How to stop this? I really am getting frustrated with this whole issue.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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Re: Just wanted to introduce myself (Strobers Case)

Post by webslave »

You need to get a course of benzos and see a psychologist, Dr Wise if you live close by, or else one that specialises in anxiety issues.
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I'm going downhill

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I started getting really constipated three or four days ago, to the point I was bleeding. The clenching of my PC muscle now happens when I defecate. I bought some magnesium and took the minimum and then my stools started getting watery, but I still continue to bleed. Yesterday I had one of the worst days of my life with this thing. Sitting down makes things so, so bad. There is this constant, CONSTANT, need to urinate even after I go and it hurts. It's hell. I have major hesitancy when I urinate. It takes several seconds to get things going and I have to concentrate not to clench. I also frequently feel the need to defecate, but it's less bothersome than the urination. This morning I went to the restroom and had loose, black stools and more blood.

This is what I'm doing:

I made an appointment to see my doctor to get me back on my anxiety meds.
I made an appointment to see my URO, but honest to God, I don't know what to ask him for. Flomax? Anti-spasmodic? Pain pills? Both? Something else? I've never had one of those uro-studies done. I'm wondering if I should ask him for one. I have to push him because it seems like he sees me as just a lost cause.

What is so crazy is that this sounds so much like a pelvic floor issue, yet my PT could not find any trigger points anywhere internally, and only a couple outside. She has told me more than a couple of times that my symptoms are much more pronounced then any tightness she feels when she is doing therapy. I'm going to have to scrounge up some money and go see Tim up in S.F. to see if he can help me. If he says that there is no PFD, then I don't know what the hell to do or what the hell is wrong with me. The clenching that seemed to have started this thing has nothing to do with my bladder, yet it is causing major flares.

How bizarre is this? Eating certain foods causes flares. Clenching causes flares. Defecating can cause flares. How do I tackle this thing?

What aggravates me the most is that today is Mother's Day. I have planned a big day with my mom whom I love dearly. I'm taking her out to dinner and then see a theater show. I want to surprise her afterwards and take her down to the beach for an ice cream and hang out with her. She's the greatest mom in the world and want to show her a good time. Instead of being healthy I feel like shit and I don't know how to fix myself.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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Re: I'm going downhill

Post by Jay »

Hi strobers,

I know how you feel. I'm afraid to go to the PT and be told that I don't have PFD, because I wouldn't know what to do next. I guess we'll both have to hope, eh?

This is hardly my area of expertise, but maybe Botox could help you somehow? My urologist said he had done Botox injections to help people experiencing difficulties urinating.

I have IBS with constipation, so I am almost always constipated. It runs in my family, and it sucks, but I have to say that I have never passed bloody stools from it (knock on wood). Is this a totally new thing for you? If so, you might want to see your doctor just in case. I use stool softener (Colace) to help, too.

Hang in there, man. We both seem to have unusual cases, but there must be an answer out there.
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Age: 26 Onset Age: 17 Symptoms: Shooting, nerve-like pains throughout the penis, which abruptly hit and leave. Testicular pain, perineum pain, burning/irritative urination, extended pain after ejaculation. Occasionally, some allodynia or ache in the coccyx/sacrum/thigh/buttocks/legs. Diagnosis: Pelvic floor dysfunction, degenerated lumbar disk, and mildly herniated lumbar disk. Helped By: Physical therapy, pain management doctor, hot baths, therapy pool, stretching regimen, breathing exercises, relaxation, distraction. Worsened By: Arousal/ejaculation (worst), constipation, panicking/obsessing, other triggers depend upon current symptoms. Tests/Prior Treatments: Too many antibiotics to count, multiple urine tests (all normal), testicular ultrasound (normal), bladder and renal ultrasound (normal), lumbar and pelvic MRI with and w/o contrast (revealed disk problems), Elavil 25mg (caused retention), Flomax 0.4mg.
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Re: Just wanted to introduce myself (Strobers Case)

Post by webslave »

Black stools can be a sign of bleeding in the gastrointestinal tract, and at worst, can denote cancer. It can also be caused by some medications, foods and iron tablets. Unless you are eating licorice a lot or taking iron, you need to consult a doctor urgently about this symptom, do a fecal occult blood test, and have a colonoscopy/sigmoidoscopy.
http://www.nlm.nih.gov/medlineplus/ency ... 003130.htm
http://ibdcrohns.about.com/cs/otherdise ... kstool.htm
http://www.wrongdiagnosis.com/sym/black_stool.htm
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Re: Just wanted to introduce myself (Strobers Case)

Post by ramana »

Strobers, I was reading divided mind by Sarno and it says frequent urination is due to TMS. Wanted to mention this to see if it helps you.
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
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Re: Just wanted to introduce myself (Strobers Case)

Post by strobers »

Thanks Ramana,

Yes, I've read the book. It's excellent. There is no doubt in my mind that my anxiety is a big, big part of this thing. I'm back on my anxiety meds and completely stopped all my other pills and supplements and am just drinking Green Vibrance, which is an excellent whole food source. I had three hours yesterday where I felt normal, but normal was created with 1/2 a vic and a .5 of Klonopin.

I just have to keep busy and stop thinking about my bladder.

I have faith and hope that things will get better and you should too.
Age: 46 | Onset Age: 45 | Symptoms: "gotta go to the bathroom feeling almost constantly, even after I go." Raw/irritated feeling mainly when sitting down. | Helped By: Following IC diet, Alo Vera caps, Cod Liver Oil, Flax seed oil, very warm baths, stretching, relaxation tapes, Yoga and meditation, | Worsened By: citrus fruits, chilie, old cheeses, coffee, alcohol, stress, anxiety, obsessing on the problem.
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