Aleve (naproxen)?
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nteeman
Aleve (naproxen)?
Doctor I spoke with today said that Aleve (naproxen) is fantastic for CP/CPP pain relief--anyone here ever tried it? Any good? Please advise.
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A50
Re: Aleve (naproxen)?
I've heard the same thing my friend. I'll certainly keep you posted on how well it works. I'll be adding it to my arsenal to fight the pain from this dreaded disease.nteeman wrote:Doctor I spoke with today said that Aleve (naproxen) is fantastic for CP/CPP pain relief--anyone here ever tried it? Any good? Please advise.
Aleve (naproxen)
Last year the second urologist I saw gave me 2x500mg per day of naprosen(Aleve (naproxen)) to take for one month. I never felt worse in my life. The naprosen made me very tired and dizzy all day. Did not do much for my chronic prostatitis / chronic pelvic pain syndrome so I quit and started on Elavil which worked better. Personally I do not like any of the non steroidal analgesics but that is not too say they won't work for others.
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nteeman
latte,
On the bottle of Naproxen Sodium it warns:
'Allergy alert: Naproxen sodium may cause a severe allergic reaction which may include; hives, asthma(wheezing), facial swelling, shock. Do not use if you ever had an allergic reaction to any other pain reliever/fever reducer. Stop using and ask a doctor if an allergic reaction occurs. Seek medical help right away'.
I think this is a pretty clear indication that some people do have problems with this kind of medication.
As for myself, I prefer taking supplements(quercetin, beta sitosterol, saw palmetto, cranberry extract, etc.) and watch my diet to control cp/cpp symptoms when possible and only use Naproxen Sodium for a severe flare up(which I did find helpful). I hope that I never have to use it on a regular basis.
On the bottle of Naproxen Sodium it warns:
'Allergy alert: Naproxen sodium may cause a severe allergic reaction which may include; hives, asthma(wheezing), facial swelling, shock. Do not use if you ever had an allergic reaction to any other pain reliever/fever reducer. Stop using and ask a doctor if an allergic reaction occurs. Seek medical help right away'.
I think this is a pretty clear indication that some people do have problems with this kind of medication.
As for myself, I prefer taking supplements(quercetin, beta sitosterol, saw palmetto, cranberry extract, etc.) and watch my diet to control cp/cpp symptoms when possible and only use Naproxen Sodium for a severe flare up(which I did find helpful). I hope that I never have to use it on a regular basis.
Aleve (naproxen)
Yes I agree that people have different reactions to meds and I did not benefit from taking high doses of Aleve (naproxen). Other non-steroidal analgesics may have proven to be better for me if I had tried them. Nickel suggests high doses of vioxx in his book. I have tried ibuprofen with mild success. I don't know about you guys but when I hurt the only thing that really does anything is codeine. Perhaps I have a different type of chronic prostatitis / chronic pelvic pain syndrome that others.
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I use Vioxx to take the edge off sometimes. Lots of chronic prostatitis / chronic pelvic pain syndrome sufferers like Tramadol (Ultram) which is a codeine analog.
Elavil hasn't touched my pain (which I now presume is mainly muscle spasm), but some part of it has helped my fatigue and maybe desensitized the nerves. I'm loath to come off it as I don't want fatigue again.
Are you still on the Elavil Latte?
Elavil hasn't touched my pain (which I now presume is mainly muscle spasm), but some part of it has helped my fatigue and maybe desensitized the nerves. I'm loath to come off it as I don't want fatigue again.
Are you still on the Elavil Latte?
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Elavil
No, I switched to Klonopin and then to Imipramine due to side effects. The Elavil really helped but I would wake up in the nite with my hands asleep(vasoconstiction) so my doctor gave me the Imipramine. It doesn't work as well to relax the pelvis and it makes it harder to pee but does help some. I'm thinking of trying a muscle relaxer instead. It think a lot of this is muscle related also. I would like to try PT with a pelvic floor specialist but I can't find one in my area.
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Apologies Latte - I do remember you saying you stopped the Elavil.
I seem to have pushed thru a barrier with Elavil in terms of retention/difficulty. It does make me more tense in the pelvis though. I would supplement with a muscle relaxant but I didn't get on with Baclofen (can't take it with Elavil anyway), and I don't fancy Valium.
I seem to have pushed thru a barrier with Elavil in terms of retention/difficulty. It does make me more tense in the pelvis though. I would supplement with a muscle relaxant but I didn't get on with Baclofen (can't take it with Elavil anyway), and I don't fancy Valium.
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
I did take a few Flexarils last year and it worked pretty well. I took it at nite and I had trouble sleeping but if I take it during the day it might be an option. How many drugs can you take at once, I mean, I hate being a guinea pig for all these meds. I wouldn't want to take the Imipramine and the muscle relaxers at the same time either. I am more and more dissillusioned witht the medical community that they can't get a better treatment regiment for this condition. Here try this and try this just gets old really fast. My GP doesn't know what to do with me. I'm sure he hates to see me walk in the door.
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Management of fatique
Richard,
could you be more specific on how you have managed with the fatigue.
Thank you.
could you be more specific on how you have managed with the fatigue.
Thank you.
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I would love to be more specific on how I manage the fatigue! All I know is that Elavil, even at doses as low as 5mg has an impact on the flu-like symptoms I experienced for five months.could you be more specific on how you have managed with the fatigue.
Three theories present themselves as to why Elavil helps my malaise: 1. the strong antihistamine effect 2. the serotonin uptake inhibition effect 3. placebo effect. Or a combination.
I don't think it's mainly placebo however as I tried to use Cardura instead of Flomax recently and Cardura's broader alpha blockade gave me a glimpse of the malaise again. I went back to the flawed but predictable Flomax
. I guess that could point more towards the serotogenic effect of Elavil helping out the fatigue?I'd really like to find out the specifics so I can be more specific in my medication choice. Elavil has many drawbacks because of it's side effects.
Hope this helps
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
I took Elavil last year as I posted but there are side effects. I found that low dose prednisone helped me with the fatigue. I took 20mgs of prednisone for a few weeks last year and the fatigue pretty much disappeared. The steroids do make you a bit loopy but the fatigue and some of the pain were much improved. Subsequently most of the pain returned but the fatigue really hasn't been as much of a problem for me.
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I don't think Flexaril is available here. I can't seem to find it on Netdoctor anyway. I had disturbed sleep on Baclofen though.I did take a few Flexarils last year and it worked pretty well. I took it at nite and I had trouble sleeping but if I take it during the day it might be an option
I had a look at Tizanidine's profile and that looks promising. But who knows until you try it (and in combination with all the other drugs!).
Yeah - my GP is only too happy to prescribe if I bring the idea of something new to try to him! I just try and be upbeat and positive. It can't be easy for medical professionals either. I'm not excusing the diabolical dearth of understanding though.My GP doesn't know what to do with me. I'm sure he hates to see me walk in the door.
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
That's good newsthe fatigue really hasn't been as much of a problem for me.
Some say the fatigue is self limiting.
Richard
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.
Age: 39. | Onset Age: 30. Onset Date: January 2002. Symptoms (back then): Supra-pubic pain, back pain, urinary frequency, urgency and difficulty, weak stream, nocturia, (and variously) chronic fatigue, IBS. Current symptoms: more frequent than normal, but pretty much under control. Current amelioration: Xatral 10mg, Mirtazapine 30mg. | Worsened By: Stress, binge drinking, strained bowel movements, bloating, sitting on hard surfaces, jogging, and regularly - THE WINTER!
I'm not a medical expert. My comment is opinion. See your medical professional.