Did anyone get an MRI done

Male pelvic pain, prostatitis, IC
ramana
Old Hand
Old Hand
Posts: 343
Joined: Thu Jul 05, 2007 2:48 am

Did anyone get an MRI done

Post by ramana »

Just wondering if anyone had an MRI done before being diagnosed with CP / CPPS.
Age:36 | Onset Age: 31 (chronic incomplete evacuation since 29) | Symptoms: Anal fissure (3); Pain in the rectum. Left Testicular pain started in August 2007. Professional PT (5 sessions) in June 2007. Stanford/Wise-Anderson Protocol in July 2007. Back to professional PT from Dec 17 2007 onwards twice a week; Dry needling once a week since March 06 2008. | Helped By: Sleeping; lying down; Thermotex infrared heating pad | Worsened By: Any activity; Medications Lyrica 75 mg* 2, Elavil 10mg Supplements; Cod liver oil ; Natural calm started 02/15; Vitamin B12 started 02/16;Vitamin D 1000U 03//08;Glucosamine+hyaluronic acid+MSM 04/08 Bed ridden since August 2007; Working from bed since Dec 2007 ;Botox done 100 units 04/03/08;RAST for wheat/rye/oats/milk -ve. Dairy free since 04/20/08. Gluten free since 04/25/08;Tried without success so far: Baclofen, PEMF machines, pranic healing reiki ;
GS
Intermediate Member
Intermediate Member
Posts: 79
Joined: Wed Jan 08, 2003 1:08 am
Location: New Jersey

Post by GS »

I had a pelvic CT which was normal
Age: 39 | Onset Age: 32 | Symptoms: urethral burning, increased urge to urinate, pain after sex, rectal fullness, now much better 6 years into Stanford/Wise-Anderson Protocol | Helped By: PT(trigger point therapy), paradoxical relaxation, valium, hot bath, stretching, Theracane | Worsened By:too vigorous sex, skipping stretches and daily relaxation
User avatar
webslave
Maintenance
Maintenance
Posts: 11432
Joined: Wed Oct 30, 2002 3:18 pm
Location: Please give your location so we can help better

Post by webslave »

Ditto. These imaging tests usually show nothing.
Good News! The great ProstaQ is BACK at last! You must try it.

HAS THIS SITE HELPED YOU?
Say Thanks by donating. Keep the
Forum alive on the Internet!
PayPal link at end of page ↓

Contact me at support at ucpps.men
inflamed
Veteran
Veteran
Posts: 152
Joined: Thu Nov 11, 2004 8:07 pm
Location: ireland

had 1 done

Post by inflamed »

wish I hadnt, I knew this 2 before getting it done but had the whole what if theory driving me nuts
Age:29 | Onset Age:19 | Symptoms: constant discomfort, dribbling | Helped By: Stanford/Wise-Anderson Protocol, jogging, taking it easy | Worsened By:
mbaker
Experienced
Experienced
Posts: 148
Joined: Fri Mar 23, 2007 3:46 pm
Location: Washington DC area

Post by mbaker »

I just had a pelvic and abdominal MRI done. Both came back as normal.

--MB
Age: 45; Onset: Jan 2007; Initial | Symptoms: perineal, pubic, penile, right testicle pain, pain while sitting; Current | Symptoms: 95% better; very seldom do I have pain now; caffeine was the culprit; Helps: No caffeine (even decaf), Red tea, Getting exercise, Pure Encapsulations Nutrient 950 multi-vitamin; Hurts: Caffeine, sometimes when my l5s1 back issue acts up.
kevin
Retired Mod
Retired Mod
Posts: 458
Joined: Tue Aug 03, 2004 2:23 am
Location: USA

Post by kevin »

Normal for me too. MRIs can show anatomical abnormalities, but for most of us the problem is physiological (related to the way the system functions).
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.
User avatar
prisoner
Beginner
Beginner
Posts: 31
Joined: Tue Mar 15, 2005 4:33 pm
Location: Pacific Northwest

Post by prisoner »

Wanted to dig up this discussion.

I understand that our problems are physiological by nature. I can't understand why, with the detailed imaging equipment available, we can't observe this disorder.

Detailed 3-D imaging of the brain helps diagnose many issues. We should be able to identify taut muscles, lack of blood flow at times and nerve dysfunction using these systems.

If we could identify the exact muscle and nerve group and the triggers associated, it should help speed our healing practices.

Age: 31 | Onset Age: 28
Symptoms: Pain in perineum, tight sphincter muscles, referred pain at tip of penis.
Helped By: sleep, hot baths, relaxation, stretching protocol.
Worsened By: Sitting and stress. No connection with food, alcohol or caffeine.
User avatar
carld
Retired Mod
Retired Mod
Posts: 1554
Joined: Mon Aug 21, 2006 11:49 pm
Location: Newbury Park

Post by carld »

prisoner wrote:Wanted to dig up this discussion.

I understand that our problems are physiological by nature. I can't understand why, with the detailed imaging equipment available, we can't observe this disorder.

Detailed 3-D imaging of the brain helps diagnose many issues. We should be able to identify taut muscles, lack of blood flow at times and nerve dysfunction using these systems.

If we could identify the exact muscle and nerve group and the triggers associated, it should help speed our healing practices.
Great question... :?:
I am not a medical doctor. Please fill out your signature (click here) ☼ ☼ My Starter List for new members
I encourage anxiety prone UCPPS people to consider L-Theanine
Age, 44 onset age 37 Feb 2006 Freq. need to urinate. Sensation of having to urinate soon after going. Perineum discomfort/burning/tightness, pubic area discomfort @ times,poor urine stream, post urine dripping/spray. All symptoms have improved with my protocol. At the worst I give it a 1 to 2 on irritation and discomfort and frequency. Helps: Elavil 5mg for anxiety and mast cell protection, (will only take it as needed) self internal PT as needed, stretching, walking, stairmaster cardio workout and light weights, reducing stress, moment to moment relaxation, deep breathing relaxation and using a Theracane. Makes worse: sitting for long periods, stress, over focusing on it. Currently 95%-98% recovered. Stay positive, relaxed and control your anxiety.
Orion
Beginner
Beginner
Posts: 37
Joined: Mon Jun 19, 2006 7:29 pm

Post by Orion »

My Uro wants me to have a pelvic CT done before I start PT. I'll do it, but don't think they'll find anything.
Age: 31; age at onset: 18; symptoms: perineum pain, joint pain, pain in back, pain on left or right testicle, very bad fatigue, malaise, frequent/urgent urination (good stream though), weak/muted orgasms with symptoms getting worse after orgasm, anxiety, depression, 3 surgeries to repair bad strictures (urethrotomy and urethroplasties).
mbaker
Experienced
Experienced
Posts: 148
Joined: Fri Mar 23, 2007 3:46 pm
Location: Washington DC area

Post by mbaker »

It'd be nice if an MRI or CT could see trigger points but alas it cannot at this time. The resolution of both is simply not good enough. Dr. Travell in her books mentions that to see an actual TrP, they had to use an electron microscope of tissue in a dog's leg. MRI's and CT can't even typically see nerves either which can be much larger than a TrP.

There is a more advanced MRI called MR neurography which is claimed to be able to see larger nerves like the sciatic nerve. I discussed this with my neurologist recently and he said MR scans can work fine with larger nerves but not smaller ones like the superior or inferior gluteal nerves in the buttock.

So we await technology to improve to the point where it can "see" this stuff. Probably another reason why mainstream doctors aren't always convinced that this is a muscle-tension related disorder - they can't really test for it.

--mb
Age: 45; Onset: Jan 2007; Initial | Symptoms: perineal, pubic, penile, right testicle pain, pain while sitting; Current | Symptoms: 95% better; very seldom do I have pain now; caffeine was the culprit; Helps: No caffeine (even decaf), Red tea, Getting exercise, Pure Encapsulations Nutrient 950 multi-vitamin; Hurts: Caffeine, sometimes when my l5s1 back issue acts up.
kevin
Retired Mod
Retired Mod
Posts: 458
Joined: Tue Aug 03, 2004 2:23 am
Location: USA

Post by kevin »

prisoner wrote:Wanted to dig up this discussion.

I understand that our problems are physiological by nature. I can't understand why, with the detailed imaging equipment available, we can't observe this disorder.

Detailed 3-D imaging of the brain helps diagnose many issues. We should be able to identify taut muscles, lack of blood flow at times and nerve dysfunction using these systems.

If we could identify the exact muscle and nerve group and the triggers associated, it should help speed our healing practices.
We're at the frontier of science here.

First, I'll say that I believe that if you look at the nervous system of someone with CPPS/IC, you will rarely see lesions or gross abnormalities. The difference will be at a much more microscopic level -- for example, at the synapse, or the junction between neurons, which is unimaginably tiny. The chronic prostatitis / chronic pelvic pain syndrome patient's neuron will be completely intact, but it could be secreting a bit more neurotransmitter, because of some irritant, or because it's been conditioned that way. Detecting these kinds of changes with medical imaging is a huge challenge.

It's definitely true that brain imaging helps diagnose a lot of issues. However, these imaging techniques (e.g. fMRI and PET scans) are seriously limited in that they can only detect gross activity in very large areas (thousands of neurons at a time). This makes these imaging techniques very good for some issues, and useless for others. These techniques are being used in urology research right now to a certain degree, mostly at the level of the brainstem or brain. Some scientists are starting to image the spinal cord of animals/humans during urination, but the spinal cord is comparatively very small, and it's hard to tell what exactly is going on there.

Imaging is a very hot area in neuroscience right now. Techniques like multi-unit recording give an amazing amount of precision, but only now are they starting to become technologically feasible. We'll see in future years what they yield.
Started: Spring 2003; high urinary frequency and pain associated with bladder filling; urinary hesitancy; pubic/prostate/perineal discomfort; Helped by: trigger point therapy, Afrin nasal spray, Cymbalta, hydrocodone (small doses), distraction. Makes worse: sex.

Not medical advice. Consult your doctor.